An in-depth look at how the European Reference Networks (ERNs) are tackling rare diseases
ERNs are cross-border networks that bring together European centres of expertise and hospitals to tackle rare, low prevalence and complex diseases and conditions requiring highly specialised healthcare. HaDEA interviewed Professor Luca Sangiorgi, Coordinator of ERN BOND, the European Reference Network of Rare Bone Disorders, and Chair of the ERN Coordinators Group, which is the governing board of the 24 ERNs.