Projects funded in 2000 : description and outcomes

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT Indicators for Monitoring Musculoskeletal Conditions ORGANISATION: Name: UNIVERSITY OF OSLO Address: 166 Kirkeveien NO-1130 - BLINDERN - OSLO Telephone: +47.22.85.06.16 Fax: +47.22.85.05.90 Contact person: Dag BRUUSGAARD PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,IRL,NL,P,S,UK NO Total cost : 582.246,00 Euros Grant : 373.421,00 Euros START OF PROJECT: 1/10/2000 DURATION OF PROJECT (months): 27 STATEMENT OF THE PROJECT'S AIMS : Musculoskeletal conditions (MSC) are a heterogeneous group of well defined diseases like rheumatoid arthritis, as well as more unspecific conditions like chronic widespread musculoskeletal pain an low back pain. The conditions are rarely life threatening, but the major cause of sickness absence and disability pension. Prevention, treatment and rehabilitation of persons with MSC are insufficient, and in the scientific community the conditions have had low status, although research has increased the last years. The aim of the project is to identify and develop appropriate indicators to monitor MSC in the population, focusing on the public health aspects. The indicators should obtain necessary information on prevalence (overall and detailed for specific conditions), trends (time and regional), determinants (genetic, psychosocial and environmental), and consequences (quality of life, functional capacity, health care consumption and social security expenditures) on national and community level. The project will give priority to the so far poorly described conditions, lacking in the existing international classifications (ICD, ICPC, and IASP) and establish means to distinguish minor transient episodes occurring in any persons life from the more significant conditions. The project will recommend a set of indicators to be included in a permanent Community health Monitoring System. OUTCOMES OF THE PROJECT : Executive summary of the final report(223 KB) Final report, October 2003(1.3 MB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). D. BRUUSGAARD: International monitoring of musculoskeletal complaints: a need for consensus, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

AREA OF ACTIVITY Establishment of Community health indicators Development of a Community-wide network for sharing health data TITLE OF PROJECT Monitoring Public Health nutrition in Europe - Nutritional indicators and determinants of health status ORGANISATION: Name: Unit for Preventive Nutrition Department of Biosciences at Novum Karolinska Institutet Address: Mailing adress: PrevNut at Novum SE-141 57 - HUDDINGE Visiting adress: Hälsovägen 7 Plane 6, Lift F Telephone: +46.8.608.9140 (dir.) +46.8.608.3300 (secr.) Fax: +46.8.608.3350 Web site: http://www.prevnut.ki.se Contact persons: Michael SJÖSTRÖM Mobile phone: +46.70.537.9870 E-mail: michael.sjostrom@prevnut.ki.se Agneta YNGVE Tel: +46.8.608.9209 E-mail: agneta.yngve@prevnut.ki.se PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,IRL,NL,P,S,UK NO,IS,CH Total cost : 353.496,00 Euros Grant : 230.996,00 Euros START OF PROJECT: 1/11/2000 DURATION OF PROJECT (months): 18 STATEMENT OF THE PROJECT'S AIMS : 1) To establish the utility of a European surveillance system on nutritional indicators and determinants of health status. 2) To select a useful set of indicators and to collect available, reliable and relevant data on these indicators. 3) To design and test a European surveillance system according to the above, with emphasis both on European aspects, such as integration and comparability, and national and regional handling of the collected data. 4) To integrate and co-ordinate the new system with the other systems under development in parallel in the Commission Monitoring Programme. 5) To communicate the importance and efficacy of the above surveillance system towards policy makers at European, national and regional levels, as well as actors in health promotion, implementation and evaluation at national and regional levels. 6) To integrate the surveillance system into training and educational systems, above all the programme for European Master's in Public health nutrition. Key actors in the project will be a selected group of centres in the European Network of Public Health Nutrition (ENPHN, see below), while all other centres will constitute an advisory group. The network includes centres, which at the same time also are active in practically all other ongoing and completed nutrition related monitoring projects in Europe. A major number of national authorities and NGOs are already closely related to the network, and efforts will be put on securing an almost complete representation of these. Furthermore, the centres in EUPHIN have extensive contacts with international organisations (such as FAO and WHO) and research centres and national authorities in countries around the world, especially USA (CDC) and Australia integration with the development of similar monitoring systems in other parts of the world to ensure global comparability. Of utmost importance is the immediate and continuous co-ordination and integration of the efforts with those of other centres/projects involved in the Programme of Community Action on health monitoring. OUTCOMES OF THE PROJECT : Executive summary of the final report(161 KB) Final report, October 2003(1.0 MB) Appendixes of the final report: Appendix II: Major events(76 KB) Appendix IIa: IPAQ, EUROHIS and EUPASS Consensus Workshop in Stockholm, 2-3 March, 2001(85 KB) Appendix IIb: Breastfeeding surveillance conference, Stockholm, 4-5 May 2001(726 KB) Appendix IIc: First Plenary Meeting, Luxembourg, 25-26 October, 2001(94 KB) Appendix III: Presentations and publications related to the project(103 KB) Appendix IV: Provisional list of indicators (Luxembourg meeting)(99 KB) Appendix V: Summaries of evaluation templates(104 KB) Appendix VI: Breastfeeding surveillance in the EU and EFTA: recommendations adopted at the breastfeeding surveillance conference, Stockholm 4-5 May, 2001(154 KB) Appendix VII: Training programmes and dissemination of material(69 KB) Appendix VIII: MONICA: Blood sample collection and initial processing(73 KB) Appendix IX: MONICA: Anthropometry(84 KB) Appendix X: EFCOSUM project: executive summary(103KB) Appendix XI: Assessment of physical activity(70 KB) Appendix XII: Assessment of aerobic fitness: what is the UKK walk test?(57 KB) Glossy publication of the final report: Making way for a healthier lifestyle in Europe: monitoring public health nutrition in Europe: list of indicators (summary report), October 2003(57 KB)

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT Setting up a coherent set of Health indicators for the European Union (Phase 2) / Proposition d'un ensemble cohérent d'indicateurs de santé pour l'Union Européenne (Phase 2) ORGANISATION: Name: CENTRE REGIONAL DE LUTTE CONTRE LE CANCER DE MONTPELLIER Address: Parc Euromedecine F-34298 - MONTPELLIER CEDEX 5 Telephone: +33.4.67.61.30.27 Fax: +33.4.67.61.30.47 Contact person: Jean-Marie ROBINE PARTNER COUNTRIES : A,B,DK,E,F,I,NL,P,UK Total cost : 425.238,00 Euros Grant : 297.238,00 Euros START OF PROJECT: 1/06/2000 DURATION OF PROJECT (months): 21 STATEMENT OF THE PROJECT'S AIMS : Setting up of a coherent set of health indicators for the European Union (part II) meeting the main objectives of the health monitoring programme : (i) estimation of the health levels of the European Union population' and (ii) determination of the respective weights of morbidity causes, in order to facilitate the definition of priorities and objectives in the field of public health. The concept of health refers both to a state and to a prognosis. Health status, strictly speaking, is based on several dimensions, such as disability level, mental health or perceived health. By measuring the durations spent in different health states, health expectancies estimate the dynamics of the situation. They make it possible to measure the evolution of mortality and that levels simultaneously. The complementary calculation of expected gains if various morbidity causes are suppressed makes it possible to estimate their respective weight in relation to the various health dimensions. Therefore, the set proposed will hinge around health expectancies. Independent from any age structure and form the populations' size, this set of indicators will contribute to better orientate public health policies through a simple comparison of the Union countries. OUTCOMES OF THE PROJECT Executive summary of the final report (13KB) Final report, June 2002(907KB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). J.-M. ROBINE, C. JAGGER and the EURO-REVES Group: Creating a coherent set of indicators to monitor health across Europe: the Euro-REVES 2 project, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT Health surveys in the European Union: European Health Interview & Health Examination Surveys (HIS and HIS/HES) evaluations and models (Phase 2) ORGANISATION: Name: KTL (NATIONAL PUBLIC HEALTH INSTITUTE) Address: Mannerheimintie 166 FIN-00300 - HELSINKI Telephone: +358.9.47.441 Fax: +358.9.47.445.52 Contact person: Arpo AROMAA Fax: +358.9.4744.8760 E-mail: arpo.aromaa@ktl.fi PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK NO Total cost : 534.532,00 Euros Grant : 357.632,00 Euros START OF PROJECT: 1/09/2000 DURATION OF PROJECT (months): 30 STATEMENT OF THE PROJECT'S AIMS : The overall project aims are to support Health Monitoring by up-dating the review of current methods of health interview (HIS), health examination (HES) and combined HIS/HES surveys and by developing models, methods and recommendations for health surveys in the MS and EFTA/EEA countries. The specific aims of this proposed second phase of the project are : 1. To select, evaluate and recommend methods for use in HES and HIS/HES surveys and for future field testing and development during phase 3. The project will concentrate on methods for measurement of major public health problems such as cardiovascular and musculoskeletal diseases and functional limitations and their determinants. 2. To maintain and develop the health survey (HIS, HES and HIS/HES) database, to add new data and information on existing recommendations and standards and to develop the system for dissemination. OUTCOMES OF THE PROJECT : Executive summary of the final report (47 KB) Final report, June 2003(1,92 MB) Annexes of the final report: Annex 1 : List of HIS topic codes (27 KB) Annex 2 : HIS feed back letter/letter to contact persons (14 KB) Annex 3 : HIS methodological questionnaire (42 KB) Annex 4 : HES methodological questionnaire: Questionnaire concerning methodological aspects of health examination surveys (62 KB) Annex 5 : HES health status components and health topics lists 2002 (22 KB) Annex 6 : Summary of health interview surveys in database (2002) (35 KB) Annex 7 : Methodological aspects of health surveys (1232 KB) Annex 8 : List of HES included in the HIS/HES database as of end 2002 (12 KB) Annex 9 : List of HIS included in the HIS/HES database as of end 2002 (21 KB) Annex 10 : List of HIS and HIS/HES planned in the future in the EU, EFTA countries and in USA, Australia and Canada (14 KB) Annex 11 : European Community Health Indicators that can be measured by surveys. Full list of ECHI indicators (36 KB) Subprojects: Subproject 1: Comparison of HIS/HES data: Health-related quality of life and cardiovascular risk(758 KB) Subproject 2: Mental health measurement in comprehensive national health surveys(655 KB) Subproject 3: Survey Design and Methodology in National Health Interview and Health Examination Surveys. Review of literature, European survey experiences and recommendations(1.3 MB) Subproject 4: Measurement of physical functioning in comprehensive national health surveys - ICF as a framework(761 KB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). A. AROMAA, P. KOPONEN, J. TAFFOREAU, C. VERMEIRE and the HIS/HES Core Group: Evaluation of Health Interview Surveys and Health Examination Surveys in the European Union, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003 Online Database: European Health Interview & Health Examination Surveys Database

AREA OF ACTIVITY Analyses and reporting TITLE OF PROJECT Evaluation of national and regional public health reports ORGANISATION: Name: LOEGD (INSTITUTE OF PUBLIC HEALTH NORTHRHINE-WESTPHALIA) Address: Westerfeldstrasse 35-37 D-33611 - BIELEFELD Telephone: +49.521.8007.0 Fax: +49.521.8007.200 Web site: http://www.loegd.nrw.de E-mail: poststelle@loegd.nrw.de Contact persons: Helmut BRAND Fax: +49.521.8007.297 E-mail: helmut.brand@loegd.nrw.de Web site: http://www.eva-phr.nrw.de Gudula WARD Tel: +49.521.8007.269 Fax: +49.521.8007.297 E-mail: gudula.ward@loegd.nrw.de Birgit CORNELIUS-TAYLOR WHO European Office for Integrated Health Care Services Marc Aureli 22-36 E-08006 Barcelona Tel: +34.93.241.8270 Fax: +34.93.241.8271 E-mail: bct@es.euro.who.int PARTNER COUNTRIES : A,B,CZ,D,DK,E,EL,F,FIN,HU,I,IRL,L,NL,NO,P,PL,S,UK Total cost : 315.594,00 Euros Grant : 216.734,00 Euros START OF PROJECT: 1/10/2000 DURATION OF PROJECT (months): 30 STATEMENT OF THE PROJECT'S AIMS : Health reporting is considered as a substantial tool for health policy on every level : local, regional, national and international. Conditions for effective health reporting are a well formulated base of data and health indicators, and expertise in analysing and interpreting these indicators. Additionally, health reporting can only be effective, if politicians and administrations absorb health reports. The planned project aims at improving the process of health reporting in Europa and thus complement the efforts of health monitoring programme in it's pillars A, B and especially C. It is oriented on the following leading questions : - 'How is effective health reporting on different levels in Europe done ? Which data and methodologies are used ?' - 'What can the producers of health reports on different levels in different countries learn from each other.' At first the project has to demonstrate best-practice models of public health reporting. To supply this national and regional public health reports from the MS have to be collected, analysed and compared with respect to criteria as contents, use of data and health indicators, and policy impact. Especially the comparison between national and regional level with different competencies in health policy will demonstrate the effectivity of health reports on health policy. Secondary, MS, European Regions (and others) have to be given the opportunity to use the made experiences and to base their health reporting on evidence by supporting a network of report makers and users. This will be done at first by organising a European Conference for persons who actually do health reporting at different levels in Europe and to discuss the best way of public health reporting. Secondly the data base for documentation of public health reports from Europe will be made available for the public e.g. by internet or the HIEMS system. OUTCOMES OF THE PROJECT : Executive summary of the final report(153 KB) Final report, June 2003(1,3 MB) Online database: Evaluation of National and Regional Public Health Reports (Eva PHR), June 2003 Based on the analysis of European public health reports, Eva PHR is providing guidance, help and useful hints for the preparation of policy-oriented health reports.

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT Human ressources of European health systems ORGANISATION: Name: BASYS (BERATUNGSGESELLSCHAFT FÜR ANGEWANDTE SYSTEMFORSCHUNG MBH) Address: Reisingerstr. 25 D-86159 - AUGSBURG Telephone: +49.821.25.79.40 Fax: +49.821.57.93.41 Contact person: Markus SCHNEIDER PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK NO,IS Total cost : 256.543,00 Euros Grant : 179.685,00 Euros START OF PROJECT: 1/07/2000 DURATION OF PROJECT (months): 15 STATEMENT OF THE PROJECT'S AIMS : The project aims at developing a system which will consistently and comprehensively provide data on human resources of European health systems. The project will cover all organisations providing preventive services, care and cure such as hospitals and other organisations. All organisations active in administering health care such as public sickness funds and economic sectors providing exclusively intermediate production for health care such as the pharmaceutical and medico-technical industry are equally included. Using the principle of ex-post harmonisation on the existing heterogeneous sources, comparable data will be made together with recommendations for improvement to overcome the outcome shortcomings of existing data collections. Together with other on-going efforts the Member States can analyse the efficiency and effectiveness of their respective health care production. The indicators on human resources resulting form the project will support international and national analysis on health accounts as about 70 per cent of health expenditures are spent on human resources. They will be given the chance to make better use of the potentials of a growing labour market which is characterised by increasing specialisation, new qualifications, intensive work-sharing and a highly qualified labour force. OUTCOMES OF THE PROJECT Executive summary of the final report (17KB) Final report, December 2001(365KB) Annexes of the final report: Annex 1 : Meta Data (266KB) Annex 2 : Workshop Report (281KB)

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT PERISTAT - Indicators for monitoring and evaluating perinatal health in Europe / Indicateurs pour la surveillance de la santé périnatale en Europe ORGANISATION: Name: AP-HP (ASSISTANCE PUBLIQUE HOPITAUX DE PARIS) Address: 3, Avenue Victoria F-75100 - RP-PARIS Telephone: +33.1.40.27.56.41 Fax: +33.1.40.27.41.08 Web site: Contact persons: Gérard BRÉART Director of INSERM U149 Epidemiological Research Unit on Perinatal and Women's Health Maternité Hôpital Tenon 4, rue de la Chine F-75020 Paris Tel: +33.1.56.01.71.85 Fax: +33.1.56.01.71.88 Jennifer ZEITLIN (Scientific Coordinator) INSERM U149 123, bd de Port-Royal F-75014 Paris Tel: +33.1.42.34.55.79 Fax: +33.1.43.26.89.79 E-mail: Zeitlin@cochin.inserm.fr Web site: http://europeristat.aphp.fr PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK Total cost : 506.299,00 Euros Grant : 310.000,00 Euros START OF PROJECT: 1/10/2000 DURATION OF PROJECT (months): 30 STATEMENT OF THE PROJECT'S AIMS : The overall project aim is to develop valid and reliable indicators which can be used for monitoring and evaluating perinatal health in the European Union. This general objective consists of four specific objectives : (1) definition of relevant measures of perinatal health and the determinants of perinatal health ; (2) development of methods, definitions and guidelines for the construction and publication of reliable and comparable indicators ; (3) assessment of the extent to which existing data collection systems can be used to construct reliable perinatal health indicators ; and (4) creation of a data base containing perinatal health indicators currently available for EU member states. OUTCOMES OF THE PROJECT : Executive summary of the final report(108 KB) Final report, October 2003(651 KB) Publications: A free abstract of these publications, is available at the editor's web site. If you need more information on thes publications please contact the author(s). Indicators to Monitor and Evaluate Perinatal Health in Europe: Results from the PERISTAT project, European Journal of Obstetrics & Gynecology and Reproductive Biology, Vol. 111 Supplement 1, 28 November 2003. Abstract available online J. ZEITLIN, K. WILDMAN, G. BRÉART, S. ALEXANDER, H. BARROS, B. BLONDEL, S. BUITENDIJK, M. GISSLER, A. MACFARLANE and the PERISTAT Scientific Advisory Committee: PERISTAT: indicators for monitoring and evaluating perinatal health in Europe, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT Bold CHILD - Child Health Indicators of Life and Development ORGANISATION: Name: CENTRE FOR HEALTH PLANNING AND MANAGEMENT KEELE UNIVERSITY Address: Darwin building Keele UK - ST5 5BG - STAFFORDSHIRE Telephone: +44.17.82.58.31.93 Fax: +44.17.82.71.17.37 Contact person: Michael RIGBY Tel. : +44 (0)1782.58.31.93 Fax : +44 (0)1782.71.17.37 E-mail : m.j.rigby@hpm.keele.ac.uk PARTNER COUNTRIES : A,B,D,DK,E,F,FIN,I,IRL,L,NL,P,S,UK IS,NO Total cost : 586.560,00 Euros Grant : 378.884,00 Euros START OF PROJECT: 1/10/2000 DURATION OF PROJECT (months): 24 STATEMENT OF THE PROJECT'S AIMS : Child and young persons' health sets the health pattern for the whole of that generation's lifespan, and thus determines the health not only of individuals but also of communities. Each country has its own programmes and monitoring tools to address child health, but these are widely divergent even within Europe, and there is little comparative evaluation. Even within countries, there is debate as to effective relevant indicators. However, this vital topic is not yet represented in the Community action on health monitoring. This project CHILD aims to reach consensus on a set of relevant indicators, and to assess their feasibility when related to existing national data sources. The age-group covered will be post-perinatal to 15 years ; within the limitations of available data it will seek to focus on health and development, though the most reliable data are likely to concern death, accidents, and illness. OUTCOMES OF THE PROJECT Executive summary of the final report (191KB) Final report, September 2002(647KB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). M.J. RIGBY, L.I. KÖHLER, M.E. BLAIR, R. METCHLER: Child Health Indicators for Europe: a priority for a caring society, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT Hospital Data Project ORGANISATION: Name: DEPARTMENT OF HEALTH AND CHILDREN Address: Hawkins House IRL - DUBLIN 2 Telephone: +353.1.635.40.00 Fax: +353.1.635.40.01 Contact persons: Hugh MAGEE Head of Information Management Unit Tel: +353.1.635.43.00 Fax: +353.1.635.43.78 E-mail: Hugh_Magee@health.irlgov.ie Ciara O'SHEA Tel: +353.1.635.42.53 Fax: +353.1.635.43.78 E-mail: ciara_O'shea@health.irlgov.ie PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK Total cost : 429.465,00 Euros Grant : 300.225,00 Euros START OF PROJECT: 1/10/2000 DURATION OF PROJECT (months): 30 STATEMENT OF THE PROJECT'S AIMS : The project aims to prepare a detailed and practical methodology for the production of comparable hospital data. This will involve addressing a range of issues including inventories of existing data, examination of comparability, specification of levels of aggregation, and arriving at country-specific algorithms for the creation of 'common EU hospital data sets'. National authorities with direct responsibility for the collection and dissemination of hospital data will be directly involved in the project and will be funded to carry out the work required to produce data sets in the agreed common format. A successful conclusion to the project will be delivery of well-specified hospital data and deliverable indicators to the HIEMS database. OUTCOMES OF THE PROJECT : Executive summary of the final report (134 KB) Final report, June 2003(1,1 MB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). H.F. MAGEE: The Hospital Data Project: comparing hospital activity within Europe, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003 Database: In the project a pilot data collection was conducted and a software to expose and analyse the data. The data owners will decide on access case by case. In order to get access please send a request to euphin@ec.europa.eu, stating your contact details and purpose of the request.

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT EUROCISS 1 - Cardiovascular Indicators surveillance set in Europe (Phase 1) ORGANISATION: Name: CENTRO NAZIONALE DI EPIDEMIOLOGIA SORVEGLIANZA E PROMOZIONE DELLA SALUTE ISTITUTO SUPERIORE DI SANITA Address: Viale Regina Elena, 299 I-00161 - ROMA Telephone: +39.06.49.90.26.93 Fax: +39.06.44.86.94.40 E-mail: diriss@iss.it Contact person: Simona GIAMPAOLI Tel. 0039.06.4990.4231 Fax 0039.06.49904230 E-mail: simona.giampaoli@iss.it PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,NL,P,S,UK Total cost : 305.028,00 Euros Grant : 213.768,00 Euros START OF PROJECT: 1/11/2000 DURATION OF PROJECT (months): 32 STATEMENT OF THE PROJECT'S AIMS : The European countries are facing the lack of comparable data on cardiovascular health (morbidity, mortality, risk factors) ; the data collected are inadequate to satisfy the current needs for assessing the burden of cardiovascular diseases in Europe as the basic requirement to plan public health programmes. The present project aims at identifying among existing data-set, the relevant information for developing indicators and a standardisated method useful for monitoring Cardiovascular Health in the European Countries. The programme will assess the consistency of available data in the EU Member States according to the following main criteria : easy to be collected, reliability, comparability among EU countries, and representative of the country. The project evolves in the following phases : 1. Identifying cardiovascular diseases for which, on the basis of actually available knowledge, the incidence, prevalence and mortality in the population are significant, and for which preventive actions can be implemented ; including guidelines for appropriate criteria and diagnostic procedures for each aggregate of CVD ; 2. Identifying specific indicators of morbidity and determinants of cardiovascular risk for young, adult and elderly people, taking into accountthe different socio-economic status ; this will include to inventory sources of information for the selected indicators, describing methods of collection, assessing the degree of comparability and the quality weights needed to enhance comparabilty of the existing data-set ; 3 developing a method easily applicable within the different countries following 1 and 2 above, in order to obtain a reliable and significant contribution for the periodic monitoring of the cardiovascular health status in Europe. The project design facilities and foresees the integration and the close co-operation with other projects supported by the Community Action Programme on health Monitoring. The findings of the EUROCISS project most probably will exert a positive contribution for an integration with the results of the other projects and vice-versa. In particular we refer to HIS/HES, DAFNE III, EUPASS, Monitoring Socio-economic Differences, ECHI, European Health Risk Monitoring Projects, in relation to available data on mortality, cardiovascular risk factors, socio-economics status. The proposing consortium consists of representatives of member States (Austria, Belgium, France, Finland, Germany, Italy, The Netherlands, Portugal, Spain, Sweden and the United Kingdom) and includes leading epidemiological expertise involved in longitudinal studies, in registries and in prevention trials. OUTCOMES OF THE PROJECT : Executive summary of the final report (111 KB) Final report, September 2003 (477 KB) Annexes of the final report: Annex 1: EUROCISS Working Group (149 KB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). The EUROCISS Working Group: Coronary and cerebrovascular population-based registers in Europe: are morbidity indicators comparable? Results from the EUROCISS Project, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT EUDIP - Establishement of Indicators monitoring diabetes mellitus and its morbidity ORGANISATION: Name: CENTRE HOSPITALIER DE LUXEMBOURG Address: 4, rue Barblé L-1210 - LUXEMBOURG Telephone: +352.44.11.31.73 Fax: +352.44.11.61.16 Contact person: Carine DE BEAUFORT (Project leader) Centre Hospitalier de Luxembourg Clinique Pédiatrique Tel : +352.44.11.31.33 Fax :+352.44.11.61.16 E-mail : debeaufort.carine@chl.lu PARTNER COUNTRIES : A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK NO Total cost : 222.499,00 Euros Grant : 147.699,00 Euros START OF PROJECT: 1/10/2000 DURATION OF PROJECT (months): 24 STATEMENT OF THE PROJECT'S AIMS : Diabetes mellitus and its complications have become a major public health problem in all countries. It causes significant physical and psychological morbidity, disability and premature mortality among those affected and imposes a heavy financial burden on health services. The prevalence of diabetes is rising globally, and the number affected is expected to double by 2010. The prevalence and complications can be reduced through early and appropriate intervention. Within Europe, important differences between potential risk factors (lifestyle, environmental factors, genetic predisposition etc) exist. Although diabetes has been identified as one of the leading and growing contributors to the global disease burden, so far no relevant and reliable indicators or available, based on comparable data collection, throughout the EU to monitor diabetes and its outcome. Objective of this project is to provide a set of indicators with a definition of the underlying data collection to monitor diabetes mellitus and its outcome in the Member States/EFTA on a routine, consistent and uniform basis. An inventory of available indicators and data sources in the different EU/EFTA countries will be established. Focussing on different aspects of diabetes mellitus requiring surveillance, further potential indicators and alternative data collection will be added to the inventory. From the list a set of indicators will be selected, based on relevance, validity, sensivity, reproducibility end responsiveness. Not only the numerator but the denominator will have to be taken into account. Data source/data collection will be described. The feasibility of obtaining these indicators over a longer timespan in all (most) of the member States (or within shortly) will be used as criteria in the final selection. A pilot study will be done to evaluate feasibility and to provide a valid initial data set in the different EU countries. The outcome will result in the recommendations of a set indicators to monitor diabetes and its sequelae. OUTCOMES OF THE PROJECT: Executive summary of the final report (134 KB) Final report, December 2002(458 KB) Annexes of the final report: Annex 1 : List of participants(63 KB) Annex 2 : Questionnaire 2001(329 KB) Annex 3 : Diabcare datasheets(729 KB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). C.E. DE BEAUFORT, A. REUNANEN, V. RALEIGH, F. STORMS, L. KLEINEBREIL, R. GALLEGO, C. GIORDA, K. MIDTHJELL, M. JECHT, I. DE LEEUW, E. SCHOBER, G. BORAN, G. TOLIS: European Union diabetes indicators: fact or fiction ?, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

AREA OF ACTIVITY Establishment of Community health indicators TITLE OF PROJECT Mid-term evaluation of the "health monitoring" programme / Evaluation à mi-parcours du programme "surveillance de la santé" ORGANISATION: Name: BAZAN BERATER IM GESUNDHEITSWESEN Address: Ostenhellweg 60 D- - DORTMUND Telephone: +49.231.937.20.70 Fax: +49.231.937.20.71 Contact person: Markus BAZAN PARTNER COUNTRIES : D Total cost : 168.789,00 Euros Grant : 168.789,00 Euros START OF PROJECT: 14/11/2000 DURATION OF PROJECT (months): 10 STATEMENT OF THE PROJECT'S AIMS : Mid term evaluation requested by the Decision 1400/97/EC (article 7). Proposal selected through a call for tender (JO S80-051802 - 22 April 2000). 100% financed.