Area of activity Development of a Community-wide network for sharing health data
Title of project DAFNE III - European Food Availability Databank based on Household Budget Surveys
Organisation: Name: Public Health Nutrition and Nutritional Epidemiology Unit, Dept. of Hygiene and Epidemiology, School of Medicine, University of Athens Address: 75, M. Asias Str. GR-11527 ATHENS Web site: www.nut.uoa.gr E-mail: rc@elke.uoa.gr Contact person: Antonia TRICHOPOULOU Project coordinator WHO Collaborating Centre, Department of Epidemiology, Medical School, University of Athens Telephone : +30 210 746 2073 Fax: +30 210 746 2079 E-mail: antonia@nut.uoa.gr	Partner countries: B,E,EL,F,IRL,L,P,UK
Starting date and duration of project: - 15/12/1999 - 30,5 months	Budget: Total cost : 425.993,00 Euros Subsidy from the Commission : 377.994,00 Euros
Statement of the project's aims: Several chronic conditions, like cardiovascular diseases and cancers of various sites, have strong nutritional components. Identification and follow-up of trends in food habits across Europe are prerequisites for the detection and monitoring of groups at high risk of developing nutrition-related chronic diseases, high consumers of additives and contaminants and for formulating, monitoring and evaluating effective policies and programmes to improve nutritional well-being The proposed project aims at creating a cost-effective European databank, based on the nationally representative household budget survey (HBS) food, socio-economic and demographic data from 9 European countries (Belgium, France, Greece, Ireland, Norway, Portugal, Spain and the United Kingdom), which will allow : 1) the identification of disparities in food habits among Europeans and their socio-demographic determinants 2) the follow-up of trends in nutritional practices, based on comparable and regularly updated information 3) the identification of population sub-groups whose dietary habits are not favourable according to the current scientific knowledge on the association of diet and health and 4) the outlining of preventive interventions in order to support consumer choise towards a healthy nutrition. The ultimately developed databank will be appropriately designed in order to be integrated in the Health Information Exchange and Monitoring System (HIEMS) of the European Commission and potentially to other information systems, providing thus a nutrition monitoring tool which could be related to health data.
Outcomes of the project: Executive summary of the final report(17KB) Final report, April 2003(202KB) Annexes of the final report: Annex 1 (74KB) : Household Budget Survey data collection methodology Annex 2 (709KB): Food Aggregation Tables Annex 3 (162KB): Comparable categories of socio-demographic data Annex 4 (262KB): Mean daily individual availability of 15 main food groups Annex 5 (60KB): Graphical presentations of changes in food availability over time Annex 6 (288KB): Minutes of the project's plenary and bilateral meetings Annex 7 (170KB): "Public Health Nutrition", bimonthly publication Annex 8 (36KB): Proposal to EUROSTAT for the modification of the COICOP–HBS Codification System National reports: trends in food availability in: Belgium (78KB) Greece (89KB) Spain (46KB) France (56KB) Ireland (79KB) Italy (112KB) Norway (80KB) Portugal (45KB) United Kingdom (85KB) Glossy publication of the final report: Network for the Pan-European Food Databank based on Household Budget Surveys, 2003(3,54 MB) Publication: A. TRICHOPOULOU, A. NASKA, T. COSTACOU: Disparities in food habits across Europe, Proceedings of the Nutrition Society (2002) 61, 553-558. Contact the author A free abstract of the following publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). A. TRICHOPOULOU, A. NASKA and the DAFNE III Group: European food availability databank based on household budget surveys: the Data Food Networking initiative, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

Area of activity Establishment of Community health indicators
Title of project ISARE 1 - Health indicators in Europe's regions (Phase 1) / Indicateurs de santé dans les régions en Europe (Phase 1)
Organisation: Name: FNORS (FÉDÉRATION NATIONALE DES OBSERVATOIRES RÉGIONAUX DE LA SANTÉ) Address: 62 Boulevard Garibaldi F-75015 PARIS Tel / Fax: + 33.(0)1.56.58.52.40 / + 33.(0)1.56.58.52.41 Web site: http://www.fnors.org E-mail: info@fnors.org Contact person: André OCHOA Observatoire régional de la santé d'Aquitaine 103 ter, rue Belleville F - 33000 Bordeaux Tel: +33.5.56.56.99.60 Fax: +33.5.56.56.99.61 E-mail: andre.ochoa@wanadoo.fr Web site: http://www.isare.org	Partner countries: A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK
Starting date and duration of project: - 01/07/1999 - 24 months	Budget: Total cost : 287.551,00 Euros Subsidy from the Commission : 249.751,00 Euros
Statement of the project's aims: The objective of the activity envisaged in 1999-2000 is to collect the information necessary for an appreciation of the information systems on regional health indicators in the 15 EU Member States. A summary of the information collected will be analysed and criticised by a "project group" composed of six persons, coming from WHO Europe, Germany, Belgium, France, United Kingdom and Sweden. This group will examine the possibility of using regional indicators that are comparable between the 15 Member States. This is the first stage of a larger project designed to permit interregional comparisons between the different EU Member States.
Outcomes of the project: Executive summary of the final report (47 KB) Final report , September 2001(791 KB) Annexes of the final report(1.1 MB): 1. Questionnaires: Health and social system functioning and data availability 2. Description of the ISARE survey process for each country 3. Country summaries 4. Detailed answers to the data availability questionnaire

Area of activity Development of a Community-wide network for sharing health data
Title of project EUMIP 1 - Methodologies for producing EU-wide comparable disease-specific morbidity data (Phase 1)
Organisation: Name: ONS (Office for National Statistics) Address: 1 Drummond Street UK-SW1V 2QQ - LONDON Telephone: +44.20.75.33.52.41 Fax: +44.20.75.33.52.52 Web site: http://www.statistics.gov.uk E-mail: info@statistics.gov.uk Contact person: Nikki BENNETT Tel: +44.171.5633.5369 Fax: +44.171.5633.5300 E-mail: nikki.bennett@ons.gov.uk	Partner countries: B,D,F,NL,S,UK
Starting date and duration of project: - 01/10/1999 - 12 months	Budget: Total cost : 164.093,00 Euros Subsidy from the Commission : 135.095,00 Euros
Statement of the project's aims: High quality, evidence based, comparable health data are essential for the planning, monitoring and assessment of Community actions in the field of public health; as stated in the Decision of the European Parliament and the Council of 30 June 1997, these are currently lacking in some areas. Our project is designed to develop a strategy for providing the Committee of the Health Monitoring Programme with incidence and prevalence data for a range of diseases together with an assessment of their reliability, validity and accuracy. Our project is organised into two parts: Part A : We will produce an electronic inventory of the sources of data available in Member States which can i) be used as a source of information to monitor the incidence and prevalence of specific diseases, for the EU's Action Programme on Health Monitoring in the field of Public Health and ii) be updated on a regular basis by MS for the Commission. Part B : We will carry out statistical methodological evaluation, review and assessment of morbidity data sources from different MS, to ascertain their suitability for providing comparable EU-wide estimates of diseases-specific morbidity, concentrating on groups of diseases which are generally recognised as contributing to the overall burden of diseases, eg cardiovascular and musculo-skeletal diseases. We will prepare "protocols" for producing EU-wide comparable morbidity data include these as part of the inventory (see Part A).
Outcomes of the project: Executive summary of the final report (11KB) Final report, March 2001(200KB) Appendixes of the final report: Appendix 1 : List of the representatives of the Steering Group(15 KB) Appendix 2 : Results on questionnaires sent out and received in the course of the project(21 KB) Appendix 3 : Questionnaire: Compiling a European-Union wide inventory of health morbidity data - Development of an electronic inventory of data sources(63 KB) The database on the main sources of morbidity data in the different Member States, developed in the framework of this project, was enhanced and put online under the "EUMIP 2 - Methodologies for producing European Union-wide comparable disease-specific morbidity data : Enhancement of the electronic inventory of data sources (Phase 2)".

Area of activity Analyses and reporting
Title of project Highlights on health in the applicant countries to the European Union
Organisation: Name: HEALTH INFORMATION UNIT / HEALTH INFORMATION AND EVIDENCE UNIT, WORLD HEALTH ORGANIZATION, REGIONAL OFFICE FOR EUROPE Address: 8 Scherfigsvej DK-2100 COPENHAGEN Telephone: +45 39 17 12 00 Fax: +45 39 17 18 95 E-mail: rpf@who.dk Web site: http://www.euro.who.int/countryinformation http://www.euro.who.int/InformationSources/Evidence	Partner countries: DK, F, D, IRL, NL, PT, UK
Starting date and duration of project: - 01/08/1999 - 36 months	Budget: Total cost : 490.380,00 Euros Subsidy from the Commission : 180.000,00 Euros
Statement of the project's aims: 1. In accordance with Pillar C of the Health Monitoring Programme and Article 1 (2) and Annex 1 (c) of the Decision N° 1400/97/EC of the European Parliament and of the Council: To improve, strenghten and support the applicant countries in their tasks of analyzing, evaluating and monitoring public health issues. 2. In particular, in close collaboration with the applicant countries, to produce "Highlights" on health for each of the applicant countries that analyze and give an overview of the health and the health-related situation in each country. They will, where possible, compare the position of each country in relation to other applicant countries and also in relation to the European Union Member States. 3. The analyses contained in the "Highlights" together with a supplementary report will also help to assess the effect of Community Policies on the health status and on the health services and systems of the applicant countries.
Outcomes of the project: Final report, July 2002(66 KB) Annexes of the final report: Annex 1(57 KB) : List of project partners Annex 2(15 KB) : List of project team Annex 3(19 KB) : Timetable - description of tasks Annex 4a(80 KB) : 1st project meeting, Luxembourg, 26 March 2000 Annex 4b(66 KB) : 2nd project meeting, Luxembourg, 1 December 2000 Annex 4c(77 KB) : 3rd project meeting, Luxembourg, 1 March 2001 Annex 4d(59 KB) : 4th project meeting, Brussels, 8 December 2001 Annex 5a(8 KB) : Highlights on health templates: Standard list of contents of Highlights on Health Annex 5b(39 KB) : Highlights on health templates: Template of standard paragraphs Annex 5c(10 KB) : Highlights on health templates: Indicators that will be in all Highlights on Health Annex 5d(16 KB) : Highlights on health templates: List of sources Annex 5e(24 KB) : Highlights on health templates: Recommended set of indicators and tables for Highlights on Health Publication: Health status overview for countries of Central and Eastern Europe that are candidate for accession to the European Union, July 2002 Health status in each country: Highlights on health in Bulgaria, December 2001(302KB) Highlights on health in Czech Republic, November 2001(348KB) Highlights on health in Estonia, December 2001(987KB) Highlights on health in Hungary, December 2000(521KB) Highlights on health in Latvia, April 2001(377KB) Highlights on health in Lithuania, March 2001(491KB) Highlights on health in Poland, December 2001(394KB) Highlights on health in Romania, December 1999(498KB) Highlights on health in Slovakia, December 2001(446KB) Highlights on health in Slovenia, December 2001(352KB)

Area of activity Establishment of Community health indicators Analyses and reporting
Title of project Rasch conversion of disability data to Community indicators: a pilot study (Phase 1)
Organisation: Name: TNO PREVENTION AND HEALTH Address: PO Box 2215 NL-2301 CE LEIDEN Telephone: +31-71-518-1696 Fax: +31-71-518-1920 Contact person: Marijke HOPMAN-ROCK E-mail: m.hopman@pg.tno.nl	Partner countries: NL,UK
Starting date and duration of project: - 01/09/1999 - 18 months	Budget: Total cost : 136.850,00 Euros Subsidy from the Commission : 95.157,00 Euros
Statement of the project's aims: Comparing health data for policy purposes is often hampered by the use of different measurement instruments. Despite substancial effort, traditional harmonisation approaches in the Member States have only been partially successful. The project aims : 1. to propose community indicators for disability categories ICIDH-D codes 30-60, 2. to develop a methodology for Rasch conversion of regional and national disability statistics. A pilot project will be conducted that focuses on the conversion of walking and dressing disability information (in terms of physical disability and activity limitations) from all Member states. The goals of the pilot project are : 1. to demonstrate a new methodology on a relatively small, well-defined problem, 2. to identify key problems, if any. Requested financing and work plan only cover the pilot project.
Outcomes of the project: Executive summary of the final report (122KB) Final report, June 2001(449KB) Publication: A free abstract of this publication, is available at the editor's web site. If you need more information on this publication please contact the author(s). S. VAN BUUREN, S. EYRES, A. TENNANT, M. HOPMAN-ROCK: Assessing comparability of dressing disability in different countries by response conversion, European Journal of Public Health, Volume 13, Supplement 1 ("The European Health Monitoring Programme"), September 2003

Area of activity Establishment of Community health indicators
Title of project European health risk monitoring
Organisation: Name: KTL (NATIONAL PUBLIC HEALTH INSTITUTE) Address: 166 Mannerheimintie FIN-00300 HELSINKI Telephone: +358.9.47441 Fax: +358.9.4744 8338 Contact person: Pekka PUSKA (until 15.2.2001) pekka.puska@ktl.fi Kari KUULASMAA (since 15.2.2001) kari.kuulasmaa@ktl.fi	Partner countries: A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK
Starting date and duration of project: - 01/12/1999 - 31 months	Budget: Total cost : 516.205,00 Euros Subsidy from the Commission : 360.331,00 Euros
Statement of the project's aims: The objective of the project is to contribute to the Europeancommunity health monitoring system by planning indicators andmechanisms for coordinated standardized national population riskfactor surveys, based on the extensive experience in the MONICA and CINDI projects. Such surveys will gather original core information onmajor chronic disease risk factors, related behaviours anddeterminants, in order to serve and evaluate disease prevention andhealth promotion efforts in the countries and on European level.
Outcomes of the project: Final report, October 2002(50 KB) Appendixes of the final report: Appendix 1 (16 KB): Coordination and partners Appendix 2 (15 KB): Minutes of the 1st EHRM Steering Committee meeting Appendix 3 (19 KB): Minutes of the 2nd EHRM Steering Committee meeting Appendix 4 (10 KB): Minutes of the 1st EHRM Steering Committee telephone conference Appendix 5 (76 KB): Minutes of the 1st meeting of National Principal Investigators Appendix 6: Report from the Workshop Health Surveys in Europe - Role of surveys in monitoring Appendix 7: Review of surveys for risk factors of major chronic diseases and comparability of the results Appendix 8: Recommendation for indicators, international collaboration, protocol and manual of operations for chronic disease risk factor surveys Appendix 9: Reporting the risk factor survey data

Area of activity Establishment of Community health indicators Development of a Community-wide network for sharing health data Analyses and reporting
Title of project EUR-MED-DATA - Situation in Europe regarding the routine collection of medical data and their use in health monitoring / Situation européenne du recueil des données médicales de routine et de leur utilisation pour le monitorage de la santé
Organisation: Name: UNIVERSITE LIBRE DE BRUXELLES Address: Route de Lennik 808 CP 596 B-1070 BRUXELLES Telephone: +32.2.555 40 81 Fax: +32.2.555 40 49 Contact person: Raphaël LAGASSE E-mail: raphael.lagasse@ulb.ac.be	Partner countries: A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK IS,LI,NO
Starting date and duration of project: - 01/10/1999 - 24 months	Budget: Total cost : 349.742,00 Euros Subsidy from the Commission : 314.768,00 Euros
Statement of the project's aims: The objectives of the project are: - to inventorise the systems used in all the Member States for the routine collection and processing of medical data, in relation both to primary and secondary health care; - to analyse link-up possibilities between the different codings used; - to propose data collection and processing protocols for the epidemiological monitoring of public health indicators at local, regional, national and European levels. To do this, a European network of referees in the field of medical data will be set up.
Outcomes of the project: Executive summary of the final report (14KB) Final report, December 2001(1419KB)

Area of activity Establishment of Community health indicators Development of a Community-wide network for sharing health data Analyses and reporting
Title of project EUPASS - European Physical Activity Surveillance System
Organisation: Name: TECHNISCHE UNIVERSITÄT CHEMNITZ Address: Strasse der Nationen 62 D-09111 CHEMNITZ Telephone: +49-371-531-1235 Fax: +49-371-531-1684 Contact person: Alfred RÜTTEN E-mail: alfred.ruetten@phil.tu-chemnitz.de	Partner countries: B,D,E,FIN,UK
Starting date and duration of project: - 01/10/1999 - 15 months	Budget: Total cost : 531.615,00 Euros Subsidy from the Commission : 402.637,00 Euros
Statement of the project's aims: The European Physical Activity Surveillance System (EUPASS) aims to contribute to the establishment of an appropriate, cost-effective and feasible Community health monitoring system. This is to be achieved by developing and testing a surveillance system, using physical activity (PA), being a major indicator of public health, as its substantive focus and starting point. Specifically, EUPASS, for PA and in general, aims to contribute to the methodological foundation of health monitoring in Europe and to improve the quality of monitoring data bases by : a) implementing a surveillance system combining a continuous data collection approach with survey time series data collection, using computer-aided telephone interviewing (CATI) for the former and both CATI and mail survey methods for the latter, b) conducting an implementation analysis of national health monitoring systems in Europe, with a focus on policy impact ; c) contributing to the establishment of a valid and internationally comparable list of both core indicators and optional indicators for health-enhancing-PA. Hence, EUPASS has a strong focus on action and implementation, and on how best to conduct surveillance in the European context. It aims at providing concrete recommendations for decision-making in health monitoring, both regarding PA and in general. In doing so, EUPASS will closely co-operate with national institutions in the EU involved in health monitoring and physical activity.
Outcomes of the project: Executive summary of the final report (11KB) Final report, March 2001(132KB) Appendixes of the final report: Appendix A: Inventory of surveys, indicators and policy environment for physical activity surveillance(93KB) Appendix B: Questionnaires(107KB) Appendix C: Test-Retest-Reliability of Physical Activity Indicators(296KB)

Area of activity Establishment of Community health indicators Development of a Community-wide network for sharing health data
Title of project European collaboration for assessment of health interventions
Organisation: Name: THE SWEDISH COUNCIL ON ASSESSMENT OF HEALTH PRACTICES AND TECHNOLOGY Address: Tyrgatan 7 S-114 86 STOCKHOLM Telephone: +46-8-412-3200 Fax: +46-8-411-3260 Contact person: Debora EGENVALL E-mail: egenvall@sbu.se	Partner countries: A,B,D,DK,E,EL,F,FIN,I,IRL,L,NL,P,S,UK
Starting date and duration of project: - 15/02/1999 - 32 months	Budget: Total cost : 438.468,00 Euros Subsidy from the Commission : 298.158,00 Euros
Statement of the project's aims: Pillar A in the Health Promotion Programme concerns the establishment of Community health indicators including the selection of relevant information and data for exchange between Member States, the Commission and international organisations and with conceptual and methodological work related to the process of making the data comparable and identifying and developing suitable indicators. This project will contribute to this aim by evidence based information of the value of different interventions as an important component in measures of health indicators, and as a crucial factor in the possibility of making comparisons between the Member States. The project aims to develop and strengthen the network(s) in the EU by promoting cooperation between the various centers and activities concerned with assessments of health intervention activities in the Member States.
Outcomes of the project: Executive summary of the final report (29KB) Final report, March 2002(1943KB)

Area of activity Analyses and reporting
Title of project EFCOSUM - European food consumption survey method
Organisation: Name: TNO NUTRITION AND FOOD RESEARCH INSTITUTE Address: P.O Box 360 NL-3700 AJ ZEIST Telephone: +31-3069-44273 Fax: +31-3069-57952 Contact person: Michiel R.H. LÖWIK E-mail: lowik@voeding.tno.nl	Partner countries: A,B,D,DK,E,EL,F,FIN,I,IRL,P,S,UK NO,IS, LT, CZ, HU, HR, SK, CH
Starting date and duration of project: - 01/10/1999 - 18 months	Budget: Total cost : 172.672,00 Euros Subsidy from the Commission : 155.405,00 Euros
Statement of the project's aims: The work proposed here aims to define a (minimum) set of dietary components which are relevant determinants of health and to define a method for the monitoring of food consumption in Europe, this method to be used alone, or as a calibration method for ongoing studies. The project will make use of the progress in relevant projects carried out until now and ensure the possibility for datafusion with other health monitoring studies. With this method it must be possible to estimate : - average (habitual) intake and distribution among individuals of energy, macro- and micronutrients - high intake levels for contaminants and additives individuals - the consumption of specific foods - data from different countries.
Outcomes of the project: Executive summary of the final report (22KB) Final report, June 2001(257KB) Annexes of the final report: Annex A: List of participants(26 KB) Annex B: Original papers (annexes B1-B16)(314 KB) Annex C: Figures(22 KB) Annex D: Overview nation-wide food consumption surveys with nutrient intake data on an individual level(42 KB) Annex E: Results of the questionnaires on operationalization and summary of the structure and principles of standardization of EPIC-SOFT(269 KB) Annex F: Questionnaires(88 KB)