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Knowledge Centre on Cancer: Tackling Cancer and other Non-communicable diseases (NCDs)
Issue 3, June 2024
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Introduction
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Guest corner
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Policy news
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MEPs approved the creation of a European Health Data Space (EHDS), improving citizens’ access to their personal health data and boosting secure sharing in the public interest.
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The EHDS has two main aims:
- to place citizens at the centre of their healthcare, granting them full control over their data, with the goal of achieving better healthcare across the EU;
- to allow the use of health data for research and public health purposes, under strict conditions.
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The JRC will fully support the EHDS implementation, offering its expertise in health data standardisation and harmonisation. To begin with, the JRC is an advisory board member of the QUANTUM project and looks forward to collaborating with other stakeholders.
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Image reproduced from: Factsheet - European Health Data Space (EHDS)
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European Health Union: stronger and better prepared for the future
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On 22 May 2024, the European Commission adopted a Communication on the European Health Union, which highlights the strides made in EU health policy over the last four years, for the benefit of citizens in the EU and worldwide.
The EC Knowledge Centre on Cancer, its first flagship initiative, supports many actions of the Europe's Beating Cancer Plan.
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♦ Stronger health security measures, to better respond to future crises.
♦ Equal and timely access to affordable medicines for all citizens
♦ A world-leading Cancer Plan
♦ Game-changing initiatives to digitalise healthcare
♦ Comprehensive action for better mental health
♦ Rules to boost patient safety and secure the supply of medicinal products
♦ A One Health approach to tackle major health risks
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On 31 May 2024, European Economic and Social Committee adopted an opinion on "Europe’s Beating Cancer Plan: Driving forces for the security of medical radioisotopes supply"
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Radiological and nuclear technologies are indispensable in the fight against cancer. They contribute significantly to all stages of cancer patients' care, including early detection, diagnosis, treatment and palliative care.
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On 24 April 2024, the European Parliament approved the new Regulation on standards of quality and safety for substances of human origin (SoHO) intended for human application.
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The new regulation,
proposed by the Commission in July 2022, provides a holistic approach for the regulation of substances of human origin. The new rules notably include better protection of recipients and donors of substances of human origin, as well as children born from medically assisted reproduction.
The new rules will:
- strengthen the protection of all patients treated by transfusion, transplantation or medically assisted reproduction;
- improve access to safe and proven SoHO therapies;
- create more opportunities for patients to access the treatment they need, regardless of where they live in the EU;
- support innovation.
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36 000 stem cell transplants for blood cancers per year
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Quote source: Factsheet
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Statement by Commissioner Kyriakides at the occasion of the European Week Against Cancer - 27 May 2024
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Check out the latest estimates for cancer burden in Europe.
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"Cancer touches us all. Only in the time taken to read this statement, around five new cancer cases have been diagnosed. This European Week Against Cancer, we owe it to them – and all those touched by cancer – to continue making a change, spreading dignity and hope for all."
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Statement by Commissioner Kyriakides to mark World No Tobacco Day - 31 May 2024
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Check out the Health Promotion and Disease Prevention Knowledge Gateway Tobacco and Smoking policy brief.
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"Tobacco consumption is the largest avoidable health risk in the European Union, responsible for 700 000 deaths each year. It also massively increases the risk of developing cancer, and smokers are also more likely to suffer a range of illnesses because of their tobacco use, including cardiovascular and respiratory diseases."
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Science News and Publications
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The EU Cancer Inequalities Registry published a factsheet on ‘Liver cancer inequalities in Europe and the role of viral hepatitis’ prepared by European Centre for Disease Prevention and Control (ECDC)
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Viral hepatitis is an infectious disease and a risk factor for primary liver cancer. Liver cancer is highly fatal (less than 10% survival in over 65yo), but vaccination against hepatitis B and screening and treatment against viral hepatitis, could reduce the heavy burden of liver cancer.
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Welcome to the 1+Million Genomes Minimal Dataset for Cancer
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The European 1+Million Genomes Initiative (1+MG) has developed the 1+MG Minimal Dataset for Cancer (1+MG-MDC).
This endeavour contributes to standardising data collection in cancer research by delineating 140 essential items across 8 domains, facilitating the aggregation of genomic and clinical data.
The minimal cancer dataset should facilitate data collection for research directly from hospital data sources. Through the application of a minimal dataset, data can be more easily queried among different centres, allowing standardised analytics to be executed at multiple locations. This comprehensive dataset captures the longitudinal aspects and the key complexities of cancer, the diagnostic process, the different therapies and specific regimens and complex mixtures of cycles of therapies.
Genome sequencing plays a pivotal role in precision medicine, especially in cancer care. The 1+MG-MDC serves as a blueprint for constructing high-quality databases, enabling standardized collection of cancer genomic and clinical information to foster international collaboration and advance precision medicine. The 1+MG-MDC framework is engrained into the Genomic Data Infrastructure project: a federated, sustainable, and secure infrastructure facilitating access to genomic and clinical data to European researchers and innovators.
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Supply AND DEMand model for the healthcare workforce in the EU27 report was just published
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This technical report presents the data and data sources used in the Supply ANd DEMand model for the healthcare workforce (SANDEM) to produce projections for the EU27 and will be followed by a policy-oriented
report presenting the results of the projections and their implications for EU policies on demography, health,
employment and education.
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Invitation to policy makers to fill in a survey on gastric cancer screening
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TOGAS is an EU co-funded research project designed to explore the opportunities for gastric cancer screening implementation in the EU. The TOGAS consortium is mapping Member States’ needs, willingness and readiness regarding the implementation of gastric cancer screening. To reach this goal, a survey was developed for representatives of Ministries of Health and cancer screening authorities in policy making positions.
TOGAS methodology is coordinated with approaches used in the EU, including European guidelines and quality assurance schemes.
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European Week Against Cancer: new EU4Health projects working on prevention, early detection and diagnosis and treatment
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Take a look at a selection of EU4Health cancer projects helping to contribute to EU’s objectives to fight cancer.
Check out more EC-funded projects on cancer on our Cancer projects tool.
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European Week Against Cancer: spotlight on CAPABLE, an EU-funded project serving the needs of cancer home patients and their caregivers
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The overall aim of CAPABLE project is to combine the most advanced technologies for data and knowledge management with a sound socio-psychological approach in order to develop a coaching system for improving the quality of life of cancer home patients. The system aims at early detecting and managing cancer-related issues and at satisfying the needs of patients and their home caregivers.
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"We hope that the CAPABLE model will enter the clinical practice to improve the quality of life of a big number of cancer patients." (Silvana Quaglini, coordinator of the CAPABLE EU-funded project)
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European Week Against Cancer: Horizon projects using artificial intelligence and digital means to better detect cancer, treat patients and improve their quality of life
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Discover a selection of research projects funded by HaDEA that are tackling cancer.
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Open calls for funding
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Improving the understanding and management of late-effects in adolescents and young adults (AYA) with cancer
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Use cases for the UNCAN.eu research data platform
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Support a pragmatic clinical trial programme by cancer charities
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Support dialogue towards the development of national cancer data nodes
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Implementation research for management of multiple long-term conditions in the context of non-communicable diseases (Global Alliance for Chronic Diseases - GACD)
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Accessible and affordable tests to advance early detection of heritable cancers in European regions
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An information portal for the European Cancer Patient Digital Centre
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Recently started EC-funded projects
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Projects that started between 1.- 3.6.2024
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Projects
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Upcoming events
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European Commission will host the EU4Health Stakeholders' Conference in Brussels and online, 09:00 - 16:30 (CEST)
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Live Webinar: Info Session - Open Call for Proposals EU4Health Annual Work Programme 2024, 9.30 - 12.30 CEST
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1st Greek Forum on Cancer: Policy, Research & Funding Strategies, Athens
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01/07/2024 - 02/07/2024
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Live Webinar: EU Cancer Mission - First project cluster policy webinar: Understanding Cancer, 9.30 - 12.30 CEST
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CONFERENCE: TOGAS - Towards gastric cancer screening implementation in the European Union, Porto, Portugal
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Vacancies
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FGIV - Coordinator for Inter-institutional Relations - European Parliament Relations
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FGIV - Project Officer Science and Research at electron linear accelerator based neutron time-of-flight laboratory
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Are you employed by a national, regional or local administration or an intergovernmental public organization? Check out the vacancy for a Seconded National Expert at DG SANTE
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This is an edition of the enewsletter published by the Knowledge Centre on Cancer via the European Commission's Knowledge4Policy platform.
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Luxembourg: Publications Office of the European Union, 2024
© European Union, 2024
The contents of the newsletter do not reflect the position or opinion of the European Commission. The Commission accepts no responsibility or liability whatsoever with regard to the information on this newsletter.
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The European Commission is committed to personal data protection. Any personal data is processed in line with the Regulation (EU) 2018/1725. Please read the privacy statement.
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ISSN: 2812-0493
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Catalogue Number: KJ-CH-24-003-EN-N
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