Causes of death (hlth_cdeath)

National Reference Metadata in Single Integrated Metadata Structure (SIMS)

Compiling agency: Instituto Nacional de Estatística - INE (Statistics Portugal).


Eurostat metadata
Reference metadata
1. Contact
2. Metadata update
3. Statistical presentation
4. Unit of measure
5. Reference Period
6. Institutional Mandate
7. Confidentiality
8. Release policy
9. Frequency of dissemination
10. Accessibility and clarity
11. Quality management
12. Relevance
13. Accuracy
14. Timeliness and punctuality
15. Coherence and comparability
16. Cost and Burden
17. Data revision
18. Statistical processing
19. Comment
Related Metadata
Annexes (including footnotes)
 



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1. Contact Top
1.1. Contact organisation

Instituto Nacional de Estatística - INE (Statistics Portugal).

1.2. Contact organisation unit

Departamento de Estatísticas Sociais

1.5. Contact mail address

manjos.campos@ine.pt

eduarda.gois@ine.pt


2. Metadata update Top
2.1. Metadata last certified 09/01/2024
2.2. Metadata last posted 09/01/2024
2.3. Metadata last update 09/01/2024


3. Statistical presentation Top
3.1. Data description

Data on causes of death (CoD) provide information on mortality patterns and form a major element of public health information.

CoD data refer to the underlying cause which - according to the World Health Organisation (WHO) - is "the disease or injury which initiated the train of morbid events leading directly to death, or the circumstances of the accident or violence which produced the fatal injury".

CoD data are derived from death certificates. The information provided in the medical certificate of cause of death is mapped to the International Statistical Classification of Diseases and Related Health Problems (ICD).

3.2. Classification system

Eurostat's CoD statistics build on standards set out by the World Health Organisation (WHO) in the International Statistical Classification of Diseases and Related Health Problems (ICD).

The regional breakdown is based on the Nomenclature of Territorial Units for Statistics (NUTS 2).

 

Classification and updates applied by years

 

Data year ICD classification used (ICD-9, ICD-10) (3 or 4 chars) For ICD-10: updates used
2011 ICD-10 2007
2012 ICD-10 2007
2013 ICD-10 2007
2014 ICD-10 2007
2015 ICD-10 2007
2016 ICD-10 2007
2017 ICD-10 2007
2018 ICD-10 2007
2019 ICD-10 2016
2020 ICD-10 2016
2021 ICD-10 2016
3.3. Coverage - sector

Public Health

3.4. Statistical concepts and definitions

Concepts and definitions are described in the Commission regulation (EU) No 328/2011 in articles 2 and 3.

3.4.1. National definition used for usual residency

Definition according to the Commision Regulatin (EU) No 328/2011.The usual resident population based on legal or registered residence.

3.4.2. Stillbirth definition and characteristics collected

National definition used for stillbirths

A product of fertilisation whose death occurs before delivery or complete extraction from the mother's body, regardless of the duration of the pregnancy. Death is indicated by the fact that, after separation, the foetus has not breathed or shown any signs of life such as heartbeat, umbilical pulse or actual contractions of any muscles subject to voluntary action.
STILLBIRTH: A product of fertilisation whose death occurs before delivery or complete extraction from the mother's body, regardless of the duration of the pregnancy. 

The characteristics of collect:

Gestational age, weight.

3.5. Statistical unit

The statistical units are the deceased persons and the stillborns, respectively.

3.6. Statistical population

Usual residence’ shall mean the place where a person normally spends the daily period of rest, regardless of temporary absences for purposes of recreation, holidays, visits to friends and relatives, business, medical treatment or religious pilgrimage.

(i) those who have lived in their place of usual residence for a continuous period of at least 12 months before the reference date; or

(ii) those who arrived in their place of usual residence during the 12 months before the reference date with the intention of staying there for at least one year.

Where the circumstances described in point (i) or (ii) cannot be established, ‘usual residence’ shall mean the place of legal or registered residence.

3.6.1. Neonates of non-resident mothers

The neonates of non-resident mothers are not considered residents in Portugal.

3.6.2. Non-residents

Definition according to the Commision Regulatin (EU) No 328/2011.The usual resident population based on legal or registered residence.

Deaths of non-residents are separately classified as deaths of residents abroad. Deaths of non-residents are included in the dataset.

Residents and non-residents who die in the country are included in data base.

3.6.3. Residents dying abroad

Include residents dying abroad in national statistics, if we have the certificate of death.

3.7. Reference area

Portugal and NUTS II

3.8. Coverage - Time

Time series available from 1994 onwards.

3.9. Base period

Not applicable.


4. Unit of measure Top

The unit is number.


5. Reference Period Top

2021


6. Institutional Mandate Top
6.1. Institutional Mandate - legal acts and other agreements

CoD data was submitted to Eurostat on the basis of a gentleman's agreement established in the framework Eurostat's Working Group on "Public Health Statistics" until data with reference year 2007.

A Regulation on Community statistics on public health and health and safety at work (EC) No 1338/2008 was signed by the European Parliament and the Council on 16 December 2008. This Regulation is the framework of the data collection on the domain.

Within the context of this framework Regulation, a Regulation on Community statistics on public health and health and safety at work, as regards statistics on causes of death (EU) No 328/2011 was signed by the European Parliament and the Council on 5 April 2011. 

CoD data according to this regulation is submitted to Eurostat since reference year 2011.

6.2. Institutional Mandate - data sharing

National Organisations, institutes, researchers


7. Confidentiality Top
7.1. Confidentiality - policy

There are national legislation on data confidentiality.

The Code of Conduct for European Statistics and the Law on the National Statistical System, define statistical secrecy as a basic and structuring element in the production of statistical information.

7.2. Confidentiality - data treatment

Frequency of less than 3 cases are considered as confidential.


8. Release policy Top
8.1. Release calendar

Not available

8.2. Release calendar access

Not applicable

8.3. Release policy - user access

In line with the national and community legal framework, the National Institute of Statistics disseminates statistics through various means of communication, including on its website.


9. Frequency of dissemination Top

Annual


10. Accessibility and clarity Top
10.1. Dissemination format - News release

www.ine.pt

https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_destaques&DESTAQUESdest_boui=281091494&DESTAQUEStema=55538&DESTAQUESmodo=2

https://ine.pt/xportal/xmain?xpid=INE&xpgid=ine_publicacoes&PUBLICACOESpub_boui=257483090&PUBLICACOEStema=55538&PUBLICACOESmodo=2

10.2. Dissemination format - Publications

www.ine.pt

10.3. Dissemination format - online database

www.ine.pt

10.3.1. Data tables - consultations

Not available

10.4. Dissemination format - microdata access

Users do not have access to microdata due to data confidentiality.

10.5. Dissemination format - other

Portal-data dissemination on line

10.5.1. Metadata - consultations

Not available.

10.6. Documentation on methodology

Not requested

10.6.1. Metadata completeness - rate

Information for some concepts is not available.

10.7. Quality management - documentation

The causes of death data are based on a regulation, which defines scope, definitions of variables and characteristics of the data.


11. Quality management Top
11.1. Quality assurance

Not available

11.2. Quality management - assessment

Not available.


12. Relevance Top
12.1. Relevance - User Needs

The users need annual statistical data, by cause ICD, by NUTS I, II and III and by sex.

12.2. Relevance - User Satisfaction

Not available

12.3. Completeness

The content requirements of relevant legislation, regulations and guidelines are met.

12.3.1. Data completeness - rate

1. For mandatory variables: 100%

 

2. For voluntary variables:

 

3. For additional variables:

  • External CoD
  • Place of occurrence for external CoD
  • Activity for external CoD


13. Accuracy Top
13.1. Accuracy - overall

Not requested

13.2. Sampling error

Not applicable. Data collection is from administrative sources.

13.2.1. Sampling error - indicators

Not applicable.

13.3. Non-sampling error

Not applicable

13.3.1. Coverage error

Not applicable

13.3.1.1. Over-coverage - rate

Not applicable

13.3.1.2. Common units - proportion

Not applicable. Data collection is from administrative sources.

13.3.2. Measurement error

Not applicable

13.3.3. Non response error

Not applicable

13.3.3.1. Unit non-response - rate

Not applicable

13.3.3.2. Item non-response - rate

Not applicable

13.3.4. Processing error

Not applicable

13.3.5. Model assumption error

Not applicable.


14. Timeliness and punctuality Top
14.1. Timeliness
Year Number of months between the end of the reference year and the publication at national level
2011  
2012  
2013  
2014  
2015  
2016  
2017 11 months
2018 24 months
2019 24 months
2020 24 months
2021 24 months
14.1.1. Time lag - first result

Not applicable.

14.1.2. Time lag - final result

Not applicable.

14.2. Punctuality

From data collection with reference year 2011 onwards, Eurostat asks for the submission of final data at national and regional level and related metadata for the year N at N+24 months, according to the Implementing Regulation (EC) No. 328/2011, Article 4.

14.2.1. Punctuality - delivery and publication
Reference year Time between the end of the reference year and the delivery of final data to Eurostat
2011  
2012  
2013  
2014  
2015  
2016  
2017  
2018 18 months after getting the databases
2019  18 months after getting the databases
2020 18 months after getting the databases
2021 18 months after getting the databases


15. Coherence and comparability Top
15.1. Comparability - geographical

No problems of comparability between regions of the country

15.1.1. Asymmetry for mirror flow statistics - coefficient

Not applicable.

15.2. Comparability - over time

No issue that influences the comparability over time

15.2.1. Length of comparable time series

1980-2021

15.3. Coherence - cross domain

No discrepency

15.3.1. Coherence - sub annual and annual statistics

Not applicable, only annual data are available.

15.3.2. Coherence - National Accounts

Not applicable.

15.4. Coherence - internal

No inconsistencies.


16. Cost and Burden Top

Not applicable


17. Data revision Top
17.1. Data revision - policy

Not applicable

17.2. Data revision - practice

Not applicable

17.2.1. Data revision - average size

Not applicable.


18. Statistical processing Top
18.1. Source data

INE,Statisticas of causes of deaths.

18.2. Frequency of data collection

Annual.

18.3. Data collection

Data on causes of death (COD) provide information on mortality patterns and form a major element of public health information.

18.3.1. Certification

Table on certification (Percentage)

Year

All doctors (certifiers) trained in the certification All doctors (certifiers - pathologists or others doctors) trained in the post-mortem examination (autopsies) Certificates filled by persons who attended a course on certification or post-mortem examination Death certificates that are queried (only queries related to medical part of the death certificate should be included) Replies received for queries sent Deaths where the underlying cause is changed as a result of the query Death certificates with incorrect sequence
2011              
2012              
2013              
2014              
2015              
2016              
2017              
2018 Not available            
2019 Not available            
2020 Not available            
2021 Not available            
18.3.2. Automated Coding
Data year Use of any form of automated coding System used (IRIS, MICAR, ACME, STYX, MIKADO, others)
2011 no no
2012 no no
2013 no no
2014 no no
2015 no no
2016 no no
2017 no no
2018 no no
2019 no no
2020 no no
2021 no no
18.3.3. Underlying cause of death
yesData year Only manual selection of underlying cause Manual with ACME decision tables (if yes, version of ACME) ACS utilising ACME decision tables (if yes, version of ACME) Own system (ACS without ACME) Comments
2011 yes        
2012 yes        
2013 yes        
2014 yes        
2015 yes        
2016 yes        
2017 yes        
2018 yes        
2019 yes        
2020 yes        
2021 yes        
18.3.4. Availability of multiple cause
Data year Information stored in the national CoD database, UC (Underlying cause) or MC (Multiple cause)
2011 UC
2012 UC
2013 UC
2014 UC
2015 UC
2016 UC
2017 UC
2018 UC
2019 UC
2020 UC
2021 UC
18.3.5. Stillbirths and Neonatal certificates

For the stillbirths and Neonatal we use separate certificate of death.

There are the Stillbirths and Neonatal certificates.

For neonatal deaths the certificate is the same for the stillbirths.

18.4. Data validation

No procedures for checking and validating

We check potencial inconsistency between ICD codes and gender and age of deceased.

18.4.1. Coding

Description of coding procedure (central level, distributed among other bodies, etc.):

-Central level

Description of the procedures to detect errors (i.e.errors such as potential inconsistency in the death certificate or error due to mistake when filling the deaths certificates):

 - Procedures of WHO guides

Description of the measures taken in order to solve detected errors:

To detect errors or inconsistencies in the death certificate, there is another source of data collection. It is the collection of information on deaths through the civil registry offices.

 

Coding performed by a certifier:

ICD-10

Estimation of the percentage of autopsy from which information is available for coding:

No estimation 

Description of double coding exercises and rate of codification errors for underlying cause of death:

not available

18.4.2. Unspecified CoD code

ICD codes for the underlying cause (% of the Total)

Year Unspecified CoD (for ICD10: R00-R99 codes, for ICD9: 780-790 codes) Unknown CoD (for ICD10: R98-R99 codes, for ICD9: 799.9, 798.9, 798.2 codes) Deaths due to senility (for ICD10: R54 code, for ICD9: 797 code) Deaths due to exposure to unspecified factor (for ICD10: X59 code, ICD9: 928.9 code)
2011        
2012        
2013        
2014        
2015        
2016        
2017        
2018 Unknown Unknown Unknown Unknown
2019 Unknown Unknown Unknown Unknown
2020 Unknown Unknown Unknown Unknown
2021 Unknown Unknown Unknown Unknown
18.4.3. Unknown country or region

Unknown country/region (%) for residents and non-residents who died in the country

 

Year Residents Non-residents
Unknown residency (NUTS2) Unknown occurrence (NUTS2) Unknown residency (country) Unknown residency (NUTS2) Unknown occurrence (NUTS2)
2011          
2012          
2013          
2014          
2015          
2016          
2017          
2018 Unknown Unknown Unknown Unknown Unknown
2019 Unknown Unknown Unknown Unknown Unknown
2020 Unknown Unknown Unknown Unknown Unknown
2021 Unknown Unknown Unknown Unknown Unknown
18.4.4. Validation of the coverage

Not applicable

18.5. Data compilation

Not applicable.

18.5.1. Imputation - rate

Not applicable.

18.6. Adjustment

Not applicable.

18.6.1. Seasonal adjustment

Not applicable.


19. Comment Top


Related metadata Top


Annexes Top