Causes of death (hlth_cdeath)

National Reference Metadata in Single Integrated Metadata Structure (SIMS)

Compiling agency: Statistics Netherlands


Eurostat metadata
Reference metadata
1. Contact
2. Metadata update
3. Statistical presentation
4. Unit of measure
5. Reference Period
6. Institutional Mandate
7. Confidentiality
8. Release policy
9. Frequency of dissemination
10. Accessibility and clarity
11. Quality management
12. Relevance
13. Accuracy
14. Timeliness and punctuality
15. Coherence and comparability
16. Cost and Burden
17. Data revision
18. Statistical processing
19. Comment
Related Metadata
Annexes (including footnotes)
 



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1. Contact Top
1.1. Contact organisation

Statistics Netherlands

1.2. Contact organisation unit

Health and Welfare

1.5. Contact mail address

Henri Faasdreef 312, 2490 HA Den Haag, The Netherlands


2. Metadata update Top
2.1. Metadata last certified 20/01/2023
2.2. Metadata last posted 19/01/2023
2.3. Metadata last update 19/01/2023


3. Statistical presentation Top
3.1. Data description

Data on causes of death (COD) provide information on mortality patterns and form a major element of public health information.

COD data refer to the underlying cause which - according to the World Health Organisation (WHO) - is "the disease or injury which initiated the train of morbid events leading directly to death, or the circumstances of the accident or violence which produced the fatal injury".

COD data are derived from death certificates. The medical certification of death is an obligation in the Netherlands. Statistcs Netherlands codes the information provided in the medical certificate of cause of death into ICD codes according to the rules specified in the ICD.


3.2. Classification system
Data year ICD revision used (ICD-8, ICD-9, ICD-10) For ICD-10: updates used
1990 ICD-9  
1991 ICD-9  
1992 ICD-9  
1993 ICD-9  
1994 ICD-9  
1995 ICD-9  
1996 ICD-10 1992
1997 ICD-10 1992
1998 ICD-10 1992
1999 ICD-10 1992
2000 ICD-10 1992
2001 ICD-10 1992
2002 ICD-10 1992
2003 ICD-10 1992
2004 ICD-10 1992
2005 ICD-10 1992
2006 ICD-10 1992
2007 ICD-10 1992
2008 ICD-10 1992
2009 ICD-10 1992
2010 ICD-10 1992
2011 ICD-10 1992
2012 ICD-10 1992
2013 ICD-10 2013
2014 ICD-10 2014
2015 ICD-10 2015
2016 ICD-10 2016
2017 ICD-10 2017
2018 ICD-10 2018
2019 ICD-10 2018
2020 ICD-10 2019
2021 ICD-10 2019
3.3. Coverage - sector

Public Health

3.4. Statistical concepts and definitions

Concepts and definitions are described in the Commission regulation (EU) No 328/2011 in articles 2 and 3.

3.4.1. National definition used for usual residency

The usual residency in the population statistics compiled by Statistics Netherlands are the people registered in the population register. 

3.4.2. Stillbirth definition and characteristics collected

A stillbirth is a fetus who was born lifeless after an gestational age of at least 24 weeks. Within this dataset only the stillbirth second group (gestational age of at least 28 weeks) are included.

3.5. Statistical unit

The statistical unit is the deceased person and the stillborns. 

3.6. Statistical population

Residents, non-residents and stillbithrs.

3.6.1. Neonates of non-resident mothers

They are not considered residents 

 

3.6.2. Non-residents

Non-residents are not included in the national statistics, but are included in this data delivery.

 

3.6.3. Residents dying abroad

Data is recorded in the population register, but in most cases there is no cause of death

3.7. Reference area

All people registrered in Dutch population register, died in the Netherland as wel as died abroad. And all other persons deceased in the Netherlands but not registered in Dutch population register.

3.8. Coverage - Time

Time series are available from 1994 onwards. Time series for data on stillbirths starts in 2011 and no information on previous data is available.

3.9. Base period

Not applicable.


4. Unit of measure Top

The data are provided in absolute numbers only.


5. Reference Period Top

Data refer to the calendar year 2021 (i.e. all deaths occurring during the year 2021).


6. Institutional Mandate Top
6.1. Institutional Mandate - legal acts and other agreements

Statistics Netherlands is in the Netherlands the institute who receives and processes the cause of death forms. This is stated in the burial act.

Countries submitted data to Eurostat on the basis of a gentleman's agreement established in the framework Eurostat's Working Group on "Public Health Statistics" until data with reference year 2010. The first data submitted according to the Regulation (EU) No 328/2011 is data with reference year 2011.
A Regulation on Community statistics on public health and health and safety at work (EC) No 1338/2008 was signed by the European Parliament and the Council on 16 December 2008. This Regulation is the framework of the data collection on the domain.
Within the context of this framework Regulation, a Regulation on Community statistics on public health and health and safety at work, as regards statistics on causes of death (EU) No 328/2011 was signed by the European Parliament and the Council on 5 April 2011.

6.2. Institutional Mandate - data sharing

Data sharing by Statistics Netherlands is regulated in the CBS law.

Common specifications with the World Health Organisation (WHO) were used in the data collection up to 2010; in addition, Eurostat asks for NUTS level 2. From 2011 onwards, Eurostat changed the specifications to take into account the data collected through the Regulation No 328/2011.


7. Confidentiality Top
7.1. Confidentiality - policy

Regulation (EC) No 223/2009 on European statistics (recital 24 and Article 20(4)) of 11 March 2009 (OJ L 87, p. 164), stipulates the need to establish common principles and guidelines ensuring the confidentiality of data used for the production of European statistics and the access to those confidential data with due account for technical developments and the requirements of users in a democratic society.

7.2. Confidentiality - data treatment

All age groups showing a total mortality of less than 4 cases are considered as confidential. Therefore, any 'confidential' age group is grouped with another one to have higher numbers. In practice, this problem mainly occurs for young ages so, either the ages from 0 to 14 years old, or the ages from 0 to 14 and 15 to 24 years old are grouped. The age groups considered as confidential show then the value ':' and the age group '0-14y' (and '15-24y' if needed) shows the sum of all ages before 15 years old (or between 15 and 24 years old). Since the Netherlands is not a small country no extra measures are taken. 

For stillbirth and neonatal figures, no breakdown by parity is displayed to ensure confidentiality.


8. Release policy Top
8.1. Release calendar

Provisional data is released on t + 6 months. Final data is released on t + 11 months.

8.2. Release calendar access

Not applicable.

8.3. Release policy - user access

Data is released on the website of Statistics Netherlands for the public, freely accessible.


9. Frequency of dissemination Top

Annual.


10. Accessibility and clarity Top
10.1. Dissemination format - News release

News releases online.

10.2. Dissemination format - Publications

On the website of Statistics Netherlands : www.cbs.nl

 

10.3. Dissemination format - online database

 

10.3.1. Data tables - consultations
  2018 2019 2020 2021*
Cause of death, most important causes of death (short list), age and gender 9994 10771 11020  27108
Causes of death, quarter and year of death 874 788 877  32264
Cause of death (expanded list), age and gender  2820 2878 2898  16580

* new calculation method implemented, this table includes both visits to the Dutch and English tables. 

10.4. Dissemination format - microdata access

Microdata send to Eurostat. Other researchers or research institutions through remote access accounts with restrictions.

10.5. Dissemination format - other

Information can be found here: https://www.cbs.nl/en-gb/our-services/methods/surveys/korte-onderzoeksbeschrijvingen/causes-of-death-statistics

10.5.1. Metadata - consultations

Information on number of consultations are reported in internal documents. 

10.6. Documentation on methodology

More information can be found here: https://www.cbs.nl/en-gb/our-services/methods/surveys/korte-onderzoeksbeschrijvingen/causes-of-death-statistics

10.6.1. Metadata completeness - rate

All metadata is provided. More information can be found here: https://www.cbs.nl/en-gb/our-services/methods/surveys/korte-onderzoeksbeschrijvingen/causes-of-death-statistics

10.7. Quality management - documentation

The quality of COD data is subject to the way in which the information on causes of death is reported and classified in each country. The Netherlands follow the standards and rules specified in the ICD.

However, national differences in interpretation and use of ICD rules exist and as a result important quality and comparability issues remain. The Netherlands is working towards further improving certification and coding procedures, for example by training doctors on certifying COD forms.


11. Quality management Top
11.1. Quality assurance

The causes of death data are based on a regulation, which defines scope, definitions of variables and characteristics of the data.

11.2. Quality management - assessment

Statistics Netherlands is part of the IRIS core group and is working on keeping the quality on a high level.


12. Relevance Top
12.1. Relevance - User Needs

The main users are Research Institutes, Universities, Public Government agencies, Private, Commission services and Business companies. The data needs of these users is collected regularly.

12.2. Relevance - User Satisfaction

Data is published with a good quality and on a timely basis.

12.3. Completeness

See subconcept 12.3.1

12.3.1. Data completeness - rate

1. For mandatory variables:

 complete

2. For voluntary variables:

 none

3. For additional variables:

  • External CoD

 complete

  • Place of occurrence for external CoD

 complete

  • Activity for external CoD

 none


13. Accuracy Top
13.1. Accuracy - overall

For people in the Dutch population register: All deceased persons registered in the Dutch population register, not all have death certificates for example when died abroad.

For people not registered in Dutch population register, but deceased in the Netherlands: only received death certificates.

13.2. Sampling error

Not applicable.

13.2.1. Sampling error - indicators

Not applicable.

13.3. Non-sampling error

Not applicable.

13.3.1. Coverage error

Not applicable.

13.3.1.1. Over-coverage - rate

Not applicable.

13.3.1.2. Common units - proportion

Not applicable. Data collection is from administrative sources.

13.3.2. Measurement error

Not applicable.

13.3.3. Non response error

Non response, as in not receiving a cause of death form for a Dutch citizen died in the Netherlands, is added to the data set with a cause of death as R99. Information on age, gender and region of death and recidence is known.

13.3.3.1. Unit non-response - rate

Non response, as in not receiving a cause of death form for a Dutch citizen died in the Netherlands, is added to the data set with a cause of death as R99. Statistics Netherlands does not receive around 0,8% of the cause of death forms for Dutch citizens who died in the Netherlands.

13.3.3.2. Item non-response - rate

 Statistics Netherlands does not receive around 0,8% of the cause of death forms for Dutch citizens who died in the Netherlands, therefor 0,8% of the causes of death are unknown and set to the ICD10 code R99. All information on gender, age and residence is available, even for citizens without a cause of death form.

13.3.4. Processing error

Coding of the COD forms is primarily done with the Iris software. However, about 85% of the number of COD forms are still paper forms and have to be typed manually for further processing in Iris. Typing errors are kept to minimum by controlling the typed data.

13.3.5. Model assumption error

Not applicable.


14. Timeliness and punctuality Top
14.1. Timeliness

Statistics Netherlands sents final data for the year N at N+24 months.

14.1.1. Time lag - first result

Not applicable.

14.1.2. Time lag - final result

Not applicable.

14.2. Punctuality

From data collection with reference year 2011 onwards, Eurostat asks for the submission of final data at national and regional level and related metadata for the year N at N+24 months, according to the Implementing Regulation (EC) No. 328/2011, Article 4. 

14.2.1. Punctuality - delivery and publication
Reference year Time between the end of the reference year and the delivery of final data to Eurostat
2015   18
2016  24
2017  13
2018  13
2019 12
2020  14
2021 13


15. Coherence and comparability Top
15.1. Comparability - geographical

There is a complete comparability of the different regions of the Netherlands. 

The process of collecting, coding and transmission is the same for all the regions in the Netherlands. 

15.1.1. Asymmetry for mirror flow statistics - coefficient

Not applicable.

15.2. Comparability - over time

The comparability of the data over time is checked before dissemination. 

15.2.1. Length of comparable time series

Time series on causes of death for the Netherlands on ICD10 start in 1996. A break in the series can be found in 2013, because Iris was implemented in 2013.

15.3. Coherence - cross domain

A check is done with(on a daily basis) between the death records (the data provided by demography) and the processed death certificates.

There is a minor discrepency (app. 0,5%) caused by not received death certificates.

15.3.1. Coherence - sub annual and annual statistics

Not applicable, only annual data are available.

15.3.2. Coherence - National Accounts

Not applicable.

15.4. Coherence - internal

For people in the Dutch population register: All deceased persons registered in the Dutch population register, but not all have death certificates for example when deceased abroad.


16. Cost and Burden Top

The cost and burden of the data collection is reduced by using validation and dissemination IT tools.


17. Data revision Top
17.1. Data revision - policy

The dates of both the provisional data and the final data are published. 

17.2. Data revision - practice

There is no systematic revision of previous year data. 

17.2.1. Data revision - average size

Not applicable.


18. Statistical processing Top
18.1. Source data

Deaths certificates

18.2. Frequency of data collection

On daily basis

18.3. Data collection

 

 

18.3.1. Certification

 

Table on certification (Percentage)

In 2013 we started (partly) coding with IRIS, due to which we didn't query any death certificate.

Year

All doctors (certifiers) trained in the certification All doctors (certifiers - pathologists or others doctors) trained in the post-mortem examination (autopsies)* Certificates filled by persons who attended a course on certification or post-mortem examination Death certificates that are queried (only queries related to medical part of the death certificate should be included) Replies received for queries sent Deaths where the underlying cause is changed as a result of the query Death certificates with incorrect sequence
2011  Unknown  Unknown  Unknown  not available    not available   not available    not available  
2012 Unknown  Unknown Unknown   1% 89%  69%  Unknown 
2013 Unknown   Unknown Unknown   0%  0%  0% 0% 
2014 Unknown  * Unknown  ~1% Majority responded   Unknown  Unknown
2015 Unknown  * Unknown  ~1%  Majority responded  Unknown  Unknown 
2016 Unknown  * Unknown  ~1%  Majority responded  Unknown  Unknown
2017 Unknown  * Unknown  ~1%  Majority responded  Unknown  Unknown
2018 Unknown  * Unknown  ~1%  Majority responded  Unknown  Unknown
2019 Unknown * Unknown ~1%  Majority responded Unknown Unknown
2020 unknown * Unknown ~1% Majority responded Unknown Unknown
2021 Unknown * Unknown 0%** NA Unkown Unknown

 *All pathologists are trained in post-mortem examinitions, including autopsies, all certfiers are trained in the external examination of the dead body. 

** Due to working from home no queries could be sent 

 

18.3.2. Automated Coding

 

Data year Use of any form of automated coding System used (IRIS, MICAR, ACME, STYX, MIKADO, others)
1990 No  
1991 No  
1992 No  
1993 No  
1994 No  
1995 No  
1996 No  
1997 No  
1998 No  
1999 No  
2000 No  
2001 No  
2002 No  
2003 No  
2004 No  
2005 No  
2006 No  
2007 No  
2008 No  
2009 No  
2010 No  
2011 No  
2012 No  
2013 Yes partly Iris, partly manual
2014 Yes  partly Iris, partly manual 
2015 Yes  partly Iris, partly manual 
2016 Yes  partly Iris, partly manual
2017 Yes  partly Iris, partly manual
2018 Yes partly Iris, partly manual

2019 Yes partly Iris, partly manual
2020 Yes partly Iris, partly manual
2021 Yes partly Iris, partly manual
18.3.3. Underlying cause of death
Data year Only manual selection of underlying cause Manual with ACME decision tables (if yes, version of ACME) ACS utilising ACME decision tables (if yes, version of ACME) Own system (ACS without ACME) Comments
2011 Yes       We are working at automated coding
2012 Yes        We are working at automated coding
2013 No  yes, Iris 4.2.0. MMDS2013  MMDS2013    From 2013 we are coding automatic with Iris, but not all records are coded completely final with Iris
2014 No   yes, Iris 4.2.0, MMDS2014  MMDS2014    
2015 No   yes, Iris 4.4.1, MMDS2015  MMDS2015    
2016 No   yes, Iris 4.4.1, MMDS2016  MMDS2016    
2017 No   yes, Iris 4.4.1, MMDS2017  MMDS2017    
2018 No   yes, Iris 5.5.0, MMDS2018  MMDS2018    
2019 No  yes, Iris 5.6.0, MMDS2019 MMDS2019    
2020 No  yes, Iris 5.6.0, MMDS2020 MMDS2020    
2021 No  yes, Iris 5.6.0, MMDS2021 MMDS2021    

 

 

18.3.4. Availability of multiple cause
Data year Information stored in the national CoD database, UC (Underlying cause) or MC (Multiple cause)
2011 UC + MC
2012 UC + MC
2013 UC + MC
2014 UC + MC 
2015 UC + MC 
2016 UC + MC 
2017 UC + MC 
2018 UC + MC 
2019  UC + MC
2020 UC + MC
2021 UC + MC
18.3.5. Stillbirths and Neonatal certificates

There are no different death certificates for neonates or stillbirhts.  However for stillbirths data from the mothers of the stillbirths are recorded on stillbirth cards with the population register. 

 

 

18.4. Data validation

The Dutch population register is used to validate the number of deaths.

Also checks are performed on: certain diseases which are gender specific and gender, perinatal death and age, and other diseases which are mostly seen in the eldery and age. 

 

18.4.1. Coding

Description of coding procedure (central level, distributed among other bodies, etc.):

Central level

Description of the procedures to detect errors (i.e.errors such as potential inconsistency in the death certificate or error due to mistake when filling the deaths certificates):

Crosstabulations are done on gender specific conditions (specific for a gender), perinatal deaths and age, maternal deaths, and age specific conditions (conditions which are mostly seen in the eldery). 

Description of the measures taken in order to solve detected errors:

Re-code the death certificate and manual checks. 

Coding performed by a certifier:

 NA, Dutch certifiers do not code. 

Estimation of the percentage of autopsy from which information is available for coding:

 NA

Description of double coding exercises and rate of codification errors for underlying cause of death:

 NA

18.4.2. Unspecified CoD code

ICD codes for the underlying cause (% of the Total)

Year Unspecified CoD (for ICD10: R00-R99 codes, for ICD9: 780-790 codes) Unknown CoD (for ICD10: R98-R99 codes, for ICD9: 799.9, 798.9, 798.2 codes) Deaths due to senility (for ICD10: R54 code, for ICD9: 797 code) Deaths due to exposure to unspecified factor (for ICD10: X59 code, ICD9: 928.9 code)
2011 3,7 1,7 1,0 0,5
2012 3,9  1,7  1,1 0,5 
2013 3,9  2,0  1,0  0,5 
2014 4,0  2,0  1,0  0,4 
2015 3,7  1,7  1,1  0,4 
2016 4,1  1,9  1,2  0,4 
2017 4,1  2,0  1,1  0,4 
2018 4,2 2,0  1,2  0,4 
2019  4,5  2,2  1,1  0,3
2020  4,5  2,4  1,1  0,4
2021  5,4  3,2  1,1  0,4
18.4.3. Unknown country or region

Unknown country/region (%) for residents and non-residents who died in the country

 

Year Residents Non-residents
Unknown residency (NUTS2) Unknown occurrence (NUTS2) Unknown residency (country) Unknown residency (NUTS2) Unknown occurrence (NUTS2)
2011 0 0     100%  
2012     100%  
2013     100%  
2014     100%  
2015     100%  
2016     100%  
2017   100%  
2018  42,7% 100%  0%
2019 0 0  40,3% 100%  0%
2020 0 0  47,7% 100%  0%
 2021 0 0  24,5% 100%  0%
18.4.4. Validation of the coverage

The Dutch registers are considered complete.

18.5. Data compilation

Not applicable.

18.5.1. Imputation - rate

Not applicable.

18.6. Adjustment

Not applicable.

18.6.1. Seasonal adjustment

Not applicable.


19. Comment Top

None.


Related metadata Top


Annexes Top