Causes of death (hlth_cdeath)

National Reference Metadata in Single Integrated Metadata Structure (SIMS)

Compiling agency: Federal Statistical Office, Germany


Eurostat metadata
Reference metadata
1. Contact
2. Metadata update
3. Statistical presentation
4. Unit of measure
5. Reference Period
6. Institutional Mandate
7. Confidentiality
8. Release policy
9. Frequency of dissemination
10. Accessibility and clarity
11. Quality management
12. Relevance
13. Accuracy
14. Timeliness and punctuality
15. Coherence and comparability
16. Cost and Burden
17. Data revision
18. Statistical processing
19. Comment
Related Metadata
Annexes (including footnotes)
 



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1. Contact Top
1.1. Contact organisation

Federal Statistical Office, Germany

1.2. Contact organisation unit

Health Statistics

1.5. Contact mail address

Graurheindorfer Straße 198, 53117 Bonn


2. Metadata update Top
2.1. Metadata last certified 14/07/2023
2.2. Metadata last posted 12/07/2023
2.3. Metadata last update 12/07/2023


3. Statistical presentation Top
3.1. Data description

 Data on causes of death (CoD) provide information on mortality patterns and form a major element of public health information. CoD data refer to the underlying cause which - according to the World Health Organisation (WHO) - is "the disease or injury which initiated the train of morbid events leading directly to death, or the circumstances of the accident or violence which produced the fatal injury". CoD data are derived from death certificates. The information provided in the medical certificate of cause of death is mapped to the International Statistical Classification of Diseases and Related Health Problems (ICD). 

3.2. Classification system

Eurostat's CoD statistics build on standards set out by the World Health Organisation (WHO) in the International Statistical Classification of Diseases and Related Health Problems (ICD).

The regional breakdown is based on the Nomenclature of Territorial Units for Statistics (NUTS 2).

Classification and updates applied by years

Data year ICD revision used (ICD-8, ICD-9, ICD-10) For ICD-10: updates used
1990 ICD-9  
1991 ICD-9   
1992 ICD-9   
1993 ICD-9   
1994 ICD-9   
1995 ICD-9   
1996 ICD-9   
1997 ICD-9   
1998 ICD-10  1998 
1999 ICD-10  1999 
2000 ICD-10  2000 
2001 ICD-10  2001 
2002 ICD-10  2002 
2003 ICD-10  2003 
2004 ICD-10  2004 
2005 ICD-10  2005 
2006 ICD-10  2006 
2007 ICD-10  2007 
2008 ICD-10  2008 
2009 ICD-10  2009 
2010 ICD-10  2010 
2011 ICD-10  2011 
2012 ICD-10  2012 
2013 ICD-10 2013
2014 ICD-10 2014
2015 ICD-10 2015
2016 ICD-10 2016
2017 ICD-10 2017
2018 ICD-10 2018
2019 ICD-10 2019
2020 ICD-10 2020
2021 ICD-10 2021
3.3. Coverage - sector

Public Health

3.4. Statistical concepts and definitions
No additional definitions.
3.4.1. National definition used for usual residency

Person at place of single or main housing, registered according to the population registration regulations (obligation to register after stay of 2 months in Germany)

3.4.2. Stillbirth definition and characteristics collected

Child showed no sign of life and its weight is at least 500g.

 

3.5. Statistical unit

The statistical unit is the deceased person respectively the stillbirths.

3.6. Statistical population

The average population of the reference year.

3.6.1. Neonates of non-resident mothers

Since 1st January 2000 it is  possible that these children have german citizenship (if mother or father lives at least 8 years legally in Germany and has a residence permit).Births to women  with foreign citizenship and fathers with german citizenship are classified as having german citizenship. Births to women with german citizenship and fathers with foreign citizenship are classified as having german citizenship since 1974.text]

 

3.6.2. Non-residents

According to the requirements set in the Commission regulation n°328/2011, the data on non-residents who died in the country are transmitted to the European Commission.
Non-residents are not included in the national statistics.

3.6.3. Residents dying abroad

There is the possibility of a subsequent certification of the death on base of the death certificates from  abroad (§ 36 Personenstandsgesetz). After this certification, the person who died abroad is registered in the Statisitic of Causes of Death. The quality of the data depends on the abroad certification of death.

3.7. Reference area

Germany, The Federal Laender

 

3.8. Coverage - Time

Time series available from 1992 onwards.

Note that due to the fact that 2011 data is the first data collection with a legal basis (and few changes in the requested variables and breakdowns), the data before and after 2011 are not always comparable (In part due to the different groupings of causes of deaths). Moreover time series for data on stillbirths starts in 2011 and no information on previous data is available.

3.9. Base period

Not applicable.


4. Unit of measure Top

The unit is number.


5. Reference Period Top

2021


6. Institutional Mandate Top
6.1. Institutional Mandate - legal acts and other agreements

Countries submitted data to Eurostat on the basis of a gentleman's agreement established in the framework Eurostat's Working Group on "Public Health Statistics" until data with reference year 2010. The first data submitted according to the Regulation (EU) No 328/2011 is data with reference year 2011.
A Regulation on Community statistics on public health and health and safety at work (EC) No 1338/2008 was signed by the European Parliament and the Council on 16 December 2008. This Regulation is the framework of the data collection on the domain.
Within the context of this framework Regulation, a Regulation on Community statistics on public health and health and safety at work, as regards statistics on causes of death (EU) No 328/2011 was signed by the European Parliament and the Council on 5 April 2011.

6.2. Institutional Mandate - data sharing

Eurostat, WHO, National Health Institutions, Scientific Resarchs Institutes, Media, broad public.


7. Confidentiality Top
7.1. Confidentiality - policy

Law on Personal Data Protection

7.2. Confidentiality - data treatment

All age groups showing a total mortality of less than 4 cases are considered as confidential. Therefore, any 'confidential' agegroup is grouped with another one to have higher numbers. In practice, this problem mainly occurs for young ages so, either the ages from 0 to 14 years old, or the ages from 0 to 14 and 15 to 24 years old are grouped. The age groups considered as confidential show then the value ':' and the age group '0-14y' (and '15-24y' if needed) shows the sum of all ages before 15 years old (or between 15 and 24 years old). In addition, special measures for ensuring confidentiality may be taken for small countries.

For stillbirth and neonatal figures, no breakdown by parity is displayed to ensure confidentiality.


8. Release policy Top

If the data is fully plausible, it will be published immediately in a press release

8.1. Release calendar

Not applicable.

8.2. Release calendar access

Not applicable.

8.3. Release policy - user access

At the moment the data is fully plausible, it will be published immediately in a press release.


9. Frequency of dissemination Top

Annual.


10. Accessibility and clarity Top
10.1. Dissemination format - News release

News releases on-line.

10.2. Dissemination format - Publications

On the website of the Federal Statistical Office.

10.3. Dissemination format - online database

Please consult free data on-line or refer to contact details.

10.3.1. Data tables - consultations

Not yet available.

10.4. Dissemination format - microdata access

Microdata can be obtained from the Federal research data center. All details you find at

 www.forschungsdatenzentrum.de

10.5. Dissemination format - other

https://www.destatis.de/DE/Themen/Gesellschaft-Umwelt/Gesundheit/_inhalt.html

10.5.1. Metadata - consultations

Not yet available.

10.6. Documentation on methodology

National Quality Report. https://www.destatis.de/DE/Methoden/Qualitaet/Qualitaetsberichte/Gesundheit/todesursachen.pdf?__blob=publicationFile

10.6.1. Metadata completeness - rate

100%.

10.7. Quality management - documentation

Internal procedure between the Statistical office and the Laender.


11. Quality management Top
11.1. Quality assurance

The causes of death data are based on a regulation, which defines scope, definitions of variables and characteristics of the data.

11.2. Quality management - assessment

Not available.


12. Relevance Top
12.1. Relevance - User Needs

Not available.

12.2. Relevance - User Satisfaction

Not available.

12.3. Completeness

All content-related requirements oft he relevant laws, regulation and guidelines are fulfilled.

12.3.1. Data completeness - rate

1. For mandatory variables:

100%

2. For voluntary variables:

 

3. For additional variables:

  • External CoD: 

           100%

  • Place of occurrence for external CoD:

 

  • Activity for external CoD:

           0%


13. Accuracy Top
13.1. Accuracy - overall

There are no reasons for any unreliability of the data.

13.2. Sampling error

Not applicable

13.2.1. Sampling error - indicators

Not applicable

13.3. Non-sampling error

Not applicable.

13.3.1. Coverage error

Unknown

13.3.1.1. Over-coverage - rate

Not applicable

13.3.1.2. Common units - proportion

Not applicable

13.3.2. Measurement error

Not applicable

13.3.3. Non response error

Not applicable

13.3.3.1. Unit non-response - rate

Not applicable

13.3.3.2. Item non-response - rate

Not applicable

13.3.4. Processing error

Not known

13.3.5. Model assumption error

Not applicable


14. Timeliness and punctuality Top
14.1. Timeliness

 

 Year Number of months between the end of the reference year and the publication at national level

2011

12

2012

12

2013

11

2014

12

2015

15

2016

24

2017

19

2018

17

2019

11

2020

11

2021

6

 

 

14.1.1. Time lag - first result

Not applicable.

14.1.2. Time lag - final result

Not applicable.

14.2. Punctuality

With the exception of the years 2011 (+1 month) and 2016 (+1 month), the data was always delivered on time within the Eurostat specifications

14.2.1. Punctuality - delivery and publication

 

Reference year

Time between the end of the reference year and the delivery of final data to Eurostat

2011

 26

2012

 24

2013

 20

2014

 13

2015

 24

2016

 25

2017

 23

2018

 19

2019

13

2020

15

2021

17


15. Coherence and comparability Top
15.1. Comparability - geographical

 The data are comparable for all territorial regions in the country. The process of collecting, coding and transmission of the data is the same for all regions.

15.1.1. Asymmetry for mirror flow statistics - coefficient

Well comparable.

15.2. Comparability - over time

The data of the referenceyYear 2011 is the first data collection with a legal basis (and few changes in the requested variables and breakdowns), the data between 1994-2010 and starting from 2011 are not always comparable (In part due to the different groupings of causes of deaths). Moreover time series for data on stillbirths starts in 2011 and no information on previous data is available.

 

15.2.1. Length of comparable time series

Since 2011.

15.3. Coherence - cross domain

The Causes of death data are compared with the data on the population.

15.3.1. Coherence - sub annual and annual statistics

There are no sub annual statistics yet

15.3.2. Coherence - National Accounts

Not applicable.

15.4. Coherence - internal

There is not any inconsistency in the data.


16. Cost and Burden Top

The cost and burden of the data collection is reduced by using validation and dissemination IT tools.


17. Data revision Top
17.1. Data revision - policy

Regular revision based on the current  guidelines of the ICD-10 and the adoption of it.

17.2. Data revision - practice

Depending on the changes of the ICD-10.

17.2.1. Data revision - average size

In coordination with the collaboration-center BfArM.


18. Statistical processing Top
18.1. Source data

All deceased with residence in Germany or the EU

18.2. Frequency of data collection

Yearly

18.3. Data collection

Annual full survey. Data are based on the death certificates Data source on causes of death statistics is the medical certificate of death. The form and content of thedocument are determined by the Ordinance № 42 of 8 December 2004 the Minister of Health, as the part ofthe causes of death and other medical information is standardized in accordance with the recommendationsof the World Health Organization (WHO).
The death certificate is filled in by the physician who recognized the death in accordance with theAmendment and supplement of Ordinance № 14/2004 of the Ministry of Health on medical criteria andprocedures for the identifying death, publ., SG 41 of 21.05.2019. The national legislation determines indetails all the precedures and medical criteria needed in order to identify the person as deceased
Supervision and control of the certification process is carried out by experts in Regional health inspectionsoccasionally or ad hoc on a specific issue.
The training in certification is part of the medical education.

18.3.1. Certification

Table on certification (Percentage)

Year

All doctors (certifiers) trained in the certification

All doctors (certifiers - pathologists or others doctors) trained in the post-mortem examination (autopsies)

Certificates filled by persons who attended a course on certification or post-mortem examination

Death certificates that are queried (only queries related to medical part of the death certificate should be included)

Replies received for queries sent

Deaths where the underlying cause is changed as a result of the query

Death certificates with incorrect sequence

2011

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2012

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2013

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2014

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2015

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2016

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2017

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2018

Not applicable

Not applicable

Not applicable

Not applicable 

Not applicable

Not applicable

Not applicable

2019

Not applicable

Not applicable

Not applicable

Not applicable

Not applicable

Not applicable

Not applicable

2020

Not applicable

Not applicable

Not applicable

Not applicable

Not applicable

Not applicable

Not applicable

2021

Not applicable

Not applicable

Not applicable Not applicable Not applicable Not applicable Not applicable
18.3.2. Automated Coding

 

Data year

Use of any form of automated coding

System used (IRIS, MICAR, ACME, STYX, MIKADO, others)

2011

 Yes and no

 Partly Iris, partly manual coding

2012

 Yes and no

 Partly Iris, partly manual coding

2013

 Yes and no

 Partly Iris, partly manual coding

2014

 Yes and no

 Partly Iris, partly manual coding

2015

 Yes and no

 Partly Iris, partly manual coding

2016

 Yes and no

 Partly Iris, partly manual coding

2017

 Yes and no

 Partly Iris, partly manual coding

2018

 Yes and no

 Partly Iris, partly manual coding

2019

 Yes and no

 Partly Iris, partly manual coding

2020

 Yes and no

 Partly Iris, partly manual coding

2021

 Yes and no

 Partly Iris, partly manual coding

18.3.3. Underlying cause of death

Data year

Only manual selection of underlying cause

Manual with ACME decision tables (if yes, version of ACME)

ACS utilising ACME decision tables (if yes, version of ACME)

Own system (ACS without ACME)

Comments

2011

 Yes and no

 

 

 

 

2012

  Yes and no

 

 

 

 

2013

  Yes and no

 

 

 

 

2014

  Yes and no

 

 

 

 

2015

  Yes and no

 

 

 

 

2016

  Yes and no

 

 

 

 

2017

  Yes and no

 

 

 

 

2018

  Yes and no

 

 

 

 

2019

 Yes and no

       

2020

 Yes and no

       

2021

 Yes and no

       
18.3.4. Availability of multiple cause

Data year

Information stored in the national CoD database, UC (Underlying cause) or MC (Multiple cause)

2011           

 UC

2012

 UC

2013

 UC

2014

 UC

2015

 UC

2016

 UC

2017

 UC

2018

 UC

2019

 UC

2020

 UC

2021

 UC

18.3.5. Stillbirths and Neonatal certificates

Stillbirths are registered using birth certificates. Neonatal deaths are registered as births first and then additional as death, using birth and death certiticates.

18.4. Data validation

Data validation is a continuous and ongoing work. There are three ways to make sure, that the data is of high quality.

1.            Annual training for coders:

Every year all coders are trained by experts from the WHO-collaboration center in Germany. In this training the coders learn all new rules and codes, they also have changing topics for intensive learning.

 

2.            Ring-coding-study

The Federal Statistical Office send out five death certificates every month to all Federal States. All coders are advised to send back there underlying cause of death. With the beginning of the next month the coders get new death certificates and the results from the month before with a reference result from the WHO-collaboration center.

3.            Use of Iris/MUSE

More than 50% of all death certificates are coded automatically by Iris/MUSE. This is the best way to make sure, that the data is of high quality.

 

 
18.4.1. Coding

 

Description of coding procedure (central level, distributed among other bodies, etc.):

The Federal States are responsible for the coding of the death certificates. All coders get a annual training and have the possibility to take part in the monthly ring-coding-study.

Description of the procedures to detect errors (i.e.errors such as potential inconsistency in the death certificate or error due to mistake when filling the deaths certificates):

 

Description of the measures taken in order to solve detected errors:

 

Coding performed by a certifier:

 

Estimation of the percentage of autopsy from which information is available for coding:

The autopsy-rate in Germany is very low, there are no robust data about the percentage. We estimate the rate between 1% and 3%. There is no automatism that makes sure, that the result from an autopsy will be send to the Federal States.  

Description of double coding exercises and rate of codification errors for underlying cause of death

18.4.2. Unspecified CoD code

Non-specific codes are recorded with unknown cause of death

ICD codes for the underlying cause (% of the Total)

Year

Unspecified CoD (for ICD10: R00-R99 codes, for ICD9: 780-790 codes)

Unknown CoD (for ICD10: R98-R99 codes, for ICD9: 799.9, 798.9, 798.2 codes)

Deaths due to senility (for ICD10: R54 code, for ICD9: 797 code)

Deaths due to exposure to unspecified factor (for ICD10: X59 code, ICD9: 928.9 code)

2011

 2.8

 1.7

 2.6

 0.2

2012

 2.5

 0.5

 1.4

 0.1

2013

 2.6

 0.5

 1.4

 0.0

2014

 2.2

 0.3

 1.2

 0.1

2015

 2.3

 0.3

 1.3

 0.1

2016

 2.0

 0.4

 1.0

 0.1

2017

 2.3

 0.4

 1.3

 0.0

2018

 2.2

 0.3

 1.2

 0.0

2019

4.0

3.5

0.2

0.4

2020

3.6

3.1

0.2

0.3

2021

3.8

3.3

-

0.4

18.4.3. Unknown country or region

 Unknown country/region (%) for residents and non-residents who died in the country

Year

Residents

Non-residents

Unknown residency (NUTS2)

Unknown occurrence (NUTS2)

Unknown residency (country)

Unknown residency (NUTS2)

Unknown occurrence (NUTS2)

2011

 0.0

  0.0

 1.1

 100

 0.0

2012

 0.0

  0.0

 0.0

  100

  0.0

2013

 0.0

  0.0

 0.0

  100

  0.0

2014

 0.0

  0.0

 0.5

  100

  0.0

2015

 0.0

  0.0

 0.3

  100

  0.0

2016

 0.0

  0.0

 0.3

  100

  0.0

2017

 0.0

  0.0

 0.3

  100

  0.0

2018

 0.0

  0.0

 0.0

  100

  0.0

2019

0.0

0.0

0.0

100

0.0

2020

0.0

0.0

0.0

100

0.0

2021

0.0

0.0

0.0

100

0.0

18.4.4. Validation of the coverage

Not necessary because it is a full survey

18.5. Data compilation

The data is compiled when all federal states have supplied the data.

18.5.1. Imputation - rate

Not necessary because it is a full survey.

18.6. Adjustment

Not applicable.

18.6.1. Seasonal adjustment


19. Comment Top


Related metadata Top


Annexes Top