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05 December 2019

Interviews with key players

Interview with Dr Lennart Christiansson, MD, PhD - co-Chair of the ERN Board of Member States

Interview with Prof. Dr. Irene M.J. Mathijssen, MBA-Health - Chair of the 24 coordinators

News from the ERN community

ERNs in a crucial phase of enlargement

Intense and deep discussions at the ERNs Coordinators’ meeting in November

ERNs' geographical enlargement and scope boundaries at the centre of the Member States' discussion in November

EU protects campaign: Silver award for ERNs video at Cannes Corporate Film Awards

Good practices and inspirational stories

Adoption of the ORPHA codes by ERN-Rare Liver for a more detailed patient classification and targeted financial support

Successful collaboration between the ERN-EuroBloodNet and the French National Contact Point to ensure continuity of care of an Erasmus student affected by a rare disease

How our small baby was helped by MetabERN experts

"Emergency cards" proposed by ERN-Skin to help optimise patients' care in situations of emergency

First Italian joint meeting of Endo ERN, ERKNet and Bond ERN

ERN-EYE featured by France Télévisions in a reportage in the framework of the “EU Protects” campaign

Strategy of eUROGEN to integrate its Affiliated Partners

ERN TransplantChild launches a video to call for paediatric ERNs Crosstalk

VASCERN’s Patient pathways

ERN-EuroBloodNet: the establishment of a European Network of Sickle Cell Disease Patients Organisations

ERN-EYE ontology & classification revision

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The content of the section "Good practices and inspirational stories" does not reflect the official opinion of the European Union. Responsibility for the information and views expressed here lies entirely with the author(s).