OverviewEvaluation of the European Reference NetworksWork of the ERNsTo review a patient’s diagnosis and treatment the members of an ERN consult, exchange information and share knowledge with other members in their…NetworksThe first 24 ERNs were launched in 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States.Board of Member StatesThe Board of Member States, as laid out in the European Commission implementing decision, was set up on 5 February 2014.The main tasks of the Board…ERNs and COVID-19In the context of the fight against the coronavirus pandemic, the European Commission launched the COVID-19 Clinical Management Support System (CMSS)…Rare diseasesUp to 36 million people in the EU live with a rare disease. There are more than 6000 distinct rare diseases in the EU. Latest updates News announcement8 March 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseasesNews announcement29 February 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)News announcement28 February 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherNews announcement16 February 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseasesSee all Highlights Information video for patients and healthcare professionalsStatus: Closed2019 call for membership to the existing European Reference Networks (ERNs)European Reference Networks NewsletterGeneral publications21 November 2018Directorate-General for Health and Food SafetyInformation flyer for patients and healthcare professionals Events 07Dec2023Partner meetingsBoard of Member States on ERNs – Exceptional meeting24Oct2023Partner meetingsBoard of Member States on ERNs – 27th meeting27Jun2023Partner meetingsBoard of Member States on ERNs – 26th meeting05Oct2022Partner meetingsBoard of Member States on ERNs – 25th meeting Documents Key documentsEventsConsultationsPublicationsVideos
Work of the ERNsTo review a patient’s diagnosis and treatment the members of an ERN consult, exchange information and share knowledge with other members in their…
NetworksThe first 24 ERNs were launched in 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States.
Board of Member StatesThe Board of Member States, as laid out in the European Commission implementing decision, was set up on 5 February 2014.The main tasks of the Board…
ERNs and COVID-19In the context of the fight against the coronavirus pandemic, the European Commission launched the COVID-19 Clinical Management Support System (CMSS)…
Rare diseasesUp to 36 million people in the EU live with a rare disease. There are more than 6000 distinct rare diseases in the EU.
News announcement8 March 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases
News announcement29 February 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)
News announcement28 February 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together
News announcement16 February 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases
General publications21 November 2018Directorate-General for Health and Food SafetyInformation flyer for patients and healthcare professionals