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Personalised Medicine Conference 2016

Conference Programme

The conference will take place in the Alcide De Gasperi room on the second floor of the Charlemagne building. Lunches and dinner will be served in the foyer on the second floor.

You will also be able to follow the meeting from the listening room on the ground floor.

  • 01/06/2016 Wednesday

    • 08:00 - 09:30 Welcome coffee

    • 09:30 - 11:00 Keynote session

      The Personalised Medicine Conference 2016 will explore personalised medicine through a research policy lens. It aims to showcase the current state-of-the-art in the area and explore research and innovation challenges for advancing the field to the benefit of patients and citizens.
      The keynote session will give an introduction to the area and to the aims of the conference. It will also present a new initiative, involving funding and policy making organisations from Europe and beyond, called the International Consortium for Personalised Medicine (IC PerMed).

    • 11:00 - 13:00 Developing Awareness and Empowerment

      Personalised Medicine (PM) promises more effective prevention and prediction of diseases, and earlier and safer treatment. It will change our approach to public health and the way we care for patients in the future. However, to successfully implement PM, all stakeholders, including patients and healthcare professionals, need to be empowered and aware of its potential. In modern societies, health care systems are increasingly difficult to navigate and education systems too often fail to provide people with adequate skills to access, understand, assess and use information to improve their health. We need to improve knowledge and understanding of PM, encourage public engagement, and provide evidence that PM will benefit patients and society.
      The aims of this session are to promote health literacy, citizen engagement and cultural changes in patient care and education of healthcare professionals. It will address patient’s information and participation, responsible sharing of health data, curricula changes at academic health centres, and interaction between healthcare providers, patients and researchers. The overall objective is to facilitate the move towards a patient centric healthcare model by developing common principles and practices that enable sharing of patient-level data for research in a way that is ethical and acceptable to patients and the public.

    • 13:00 - 14:30 Lunch break

    • 14:30 - 16:30 Integrating Big Data and ICT Solutions

      The datasets generated by large-scale sequencing and “omics” technologies are extensive and when combined with clinical, imaging, nutritional, life style and environmental exposure data they produce ‘big data’ of great value. These developments need further research efforts to fully develop their great potential, e.g. in improving disease stratification and paving the way of a more personalised medicine. In parallel, analytical methods, medical informatics and modelling approaches should be further developed to make use of individual datasets and support the decision-making process on all levels of health care. To translate these efforts into a real added value in practise, healthcare professionals and providers will need to strengthen their ICT proficiency. In parallel they will need suitable decision-support tools for their routine with an easy-to-use interface. With all of these efforts other research aspects should not be neglected, e.g. data security and ownership, privacy, ethical and social challenges and needs, patient’s benefit, transparency as well as the practicability for the doctors, other providers and patients, the economic value and the sustainability of our healthcare systems. These developments will be the essential basis for more personalised approaches in diagnosis, treatment and prevention within the health care.
      The session will investigate how ‘big data’ and related ICT solutions can be best used for the development and reasonable implementation of personalised medicine. The presentations will highlight examples of the data sets which are and will be available, how they could be processed, in which way they can support research and eventually how citizens/patients will benefit. The talks as well as moderated discussion with the speakers and the audience will highlight opportunities and restraints of these innovations for research, health systems as well as the personal and research data management.

    • 16:30 - 17:00 Coffee break

    • 17:00 - 19:00 Translating Basic to Clinical Research and Beyond

      In order for personalised medicine to reach its anticipated impact on human health and wellbeing, the collaboration and communication across the continuum of research is required. This starts with the establishment of cohorts of healthy people and patients in standardised platforms, which integrate all ‘omics’ data as well as complex information including life history, life style, environment, etc. The overall challenge is the efficient cross-talk of basic researchers, clinicians and public health experts during the long-term follow-up of healthy individuals and patients, which is a prerequisite for understanding the effect of genetic variations in diseases and for discovering robust biomarkers. The development of new methods, tools and services for preclinical and clinical research in personalized medicine with a focus on data integration and security is also required.
      The talks will cover the research efforts that need to be done by researchers and clinicians to make personalized medicine possible in most medical fields. Success stories will also be presented. The panel discussion will tackle the ways of addressing these challenges in the most effective ways, especially from the point of view of funding policies.

    • 19:00 - 21:30 Networking dinner

  • 02/06/2016 Thursday

    • 08:00 - 09:00 Welcome coffee

    • 09:00 - 11:00 Bringing Innovation to the Market

      Personalised Medicine has the potential to radically change the way citizens learn and care about their health, both in terms of disease prevention and management. However, bringing innovation to the market has several challenges which need to be addressed. It is moreover important to understand the drivers and enablers behind innovation so that they can be fully exploited. These topics could be further explored through research. The outcome of such research could for example help to inform new market policies, business models and regulatory frameworks.
      This session will look at challenges and drivers for bringing innovative personalised medicine approaches to the market. It will address a number of aspects, including how a better understanding of value can drive innovation and what the role of regulators should be. It will also look at examples of how early dialogue between all players involved in the innovation ecosystem can help getting new treatments to the market faster. Since personalised medicine is a patient centred approach, the session will moreover ask what role patients play in getting innovation to the market.

    • 11:00 - 11:30 Coffee break

    • 11:30 - 13:30 Shaping Sustainable Healthcare

      Personalised medicine presents both opportunities and challenges for health care systems. By making sure that only the patients who will benefit from treatments receive them, it could help contain costs. By focusing on prediction and prevention, it could also help to reduce healthcare spending in the long term. However targeted medicines are often very expensive and can strain the budgets of health care systems. Today, we lack a comprehensive framework for determining the value of interventions for health care systems and how to ensure the sustainability of these systems in view of new approaches for preventing, diagnosing and treating disease. Furthermore, it is not yet clear how personalised medicine approaches can best be put into practice in healthcare systems.
      This session will look at what hurdles must be overcome to implement personalised medicine in health care systems in a sustainable manner. Examples of personalised medicine approaches currently being applied will be presented and opportunities for collaboration between academia, industry and health care providers will be explored. Furthermore, health economic research and health system management and social collaboration will be discussed.

    • 13:30 - 15:00 Lunch break

    • 15:00 - 16:30 Forward Look

      The Forward Look session will be a panel discussion moderated by Brussels-based journalist Peter O’Donnell. The panellists and moderator will take stock of two days of information-rich exchanges and use the information to look forward at what research and innovation actions should be prioritised to progress the area of personalised medicine in Europe and beyond.