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Inspiring a Digital Society (Hall X3)


Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool


Area: Inspiring a Digital Society (Hall X3)

Stand number: i09

The digital ecosystem developed within MyCyFAPP aims to improve the wellbeing of Cystic Fibrosis patients, promoting an active role for patients. The system includes a self-management app, a Web Professional Tool (WPT) and a game app.

The self-management app gives patients access to a scientifically validated tool for self-calculating their optimal dose of supplementary pancreatic enzymes. The app is also linked to the WPT so healthcare professionals can do online checks of the symptoms, the nutritional intake and the adherence to the Pancreatic Enzyme Replacement Therapy (PERT) and send recommendations to the patients. A set of educational tools includes an extensive nutritional guide with practical examples.

For children under 12, MyCyFAPP has created a game app in which players learn to take care of a monster. While playing with Pat the monster, they learn what are nutrients and how having a healthy lifestyle can help to improve their well-being.

Website: http://www.mycyfapp.eu

Watch a video presentation.

ID: 21879