Progress to date
A recent internal evaluation revealed significant success in the implementation of a number of key clinical and administrative services across all of the pilot sites. Key examples:
In Uppsala, Sweden (the pilot leading the project), the following milestones and benefits have been achieved:
In Estonia, a new version of the Estonian National Patient Portal was launched on 1 July 2013 although an earlier version was available from the end of 2008. It allows patients to log in by using their ID-card and/or Mobile-ID.
By March 2014:
Currently, the detailed specification about technical possibilities to develop access to the data of health services costs is in the process of completion.
In addition, developments of the service to compile Electronic Personal Health Statements from general practitioners is in the testing phase. Recent communication activities to promote the service resulted in an immediate doubling in the number of unique users over a typical week.
In Southern Europe, SUSTAINS services are also flourishing as illustrated by the following examples:
In the Basque Region, all planned Sustains services have already been implemented and are available for the whole population (2,2 million people). Booking a consultation exam is the most popular within Sustains services with more than 2,8 million bookings completed from 2011 on.
Currently, around 32% of all non face-to-face bookings are done via the web. In addition, more than 9,000 people have already made use of the Basque Personal Health Folder, with a total of over 42000 accesses from July 2012.
In Asolo (Italy), the new EHR has been launched for professional use in 4 medical departments involving 40 healthcare professionals. The interconnected PHR is being now used by some citizens as test users and it will be soon scaled to all the users of the former EHR. The new regional eReferral service has now started and represents the first module of the shared EHR platform of the Veneto Region. It will enable the new online booking service developed in Asolo under the Sustains project to be integrated in the regional EHR.Briefing Paper accepted by EU countries
On a political level, the SUSTAINS project prepared, together with the eHealth Governance Initiative, a Briefing Paper which was accepted by the eHealth Network: eHealth representatives of all EU Member States.
The paper made recommendations regarding patient health records and, notably, patient access to health data. It recommended that access to patient data should be about making health data meaningful and understandable. It is about moving patient access from the paper-based world to the digital world and about generating added value of integrated health information portals.
Creating convergence at national level can also enhance and support access to patient data across borders or despite borders.
The aims of the SUSTAINS project (jointly funded by the partner organisations and the European Union) are to:
Project website: www.sustainsproject.eu
Details of all SUSTAINS pilots, services and other information is available here, under "Dissemination – Downloads".
Further information (including requests for interviews) can be obtained from firstname.lastname@example.org