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Profil registracijskega zavezanca

European AIDS Treatment Group

Identifikacijska številka v Registru: 49959188061-85
Datum registracije: 13.2.12 16:32:26

Podatki o tej organizaciji so bili nazadnje spremenjeni dne: 21.1.14 9:59:42
Datum zadnje letne spremembe: 21.1.14 9:59:42


Registracijski zavezanec: organizacija ali samozaposlena oseba

Ime ali naziv podjetja: European AIDS Treatment Group
Kratica: EATG
Pravni status: NGO
Spletna stran: http://www.eatg.org

Oddelki

Oddelek: III. – Nevladne organizacije
natančneje: Nevladne organizacije, forumi, mreže in podobno

Oseba, ki je pravno odgovorna

Priimek, ime Brian West
Položaj: chair

Stalna oseba, ki je pristojna za stike z EU:

Priimek, ime Koen Block
Položaj: Executive Director

Kontaktni podatki:

Podatki o sedežu organizacije: Mettmanner Strasse  24-26
40233 Duesseldorf
NEMČIJA
Telefon: (+32) 26269640
Telefaks: (+32) 26443307
Drugi podatki: Place Raymond Blyckaerts 13
1050 Brussels

Cilji in naloge

Cilji in naloge organizacije: Founded in 1992, the European AIDS Treatment Group (EATG) is a European network of nationally-based activists. As a European patient-led advocacy organisation, it has been at the forefront of the development of the civil society response to the HIV/AIDS epidemic in Europe. It represents and defends the treatment-related interests of people living with HIV and AIDS.

EATG is a voluntary organisation made up of over 100 members from over 35 different European countries. Our members are representatives of different communities affected by HIV/AIDS in Europe. Our activities focus on treatment activism and treatment advocacy.

In responding to HIV, the EATG also considers diseases frequently seen as co-infection in people with HIV, as well as other health issues that increase the risk of HIV.

The EATG’s primary geographic focus is the member states served by the World Health Organisation (WHO) Regional Office for Europe. However, the EATG does consider opportunities to collaborate with and support similar efforts in other parts of the world.

goals

1. To enable people with HIV or at risk of HIV infection and their supporters to significantly influence the development, testing and approving of HIV treatments. In this context, HIV treatment means medical devices, products and diagnostic tests that prevent or treat HIV infection and include continuous improvement in the quality of life of people affected.

2. To advocate for the best practices of care and treatment.

3. To advocate for rapidly available existing and new HIV treatment.

4. To promote the access of the latest available information about treatment legislation for patients, health care providers as well as policy makers.

5. To influence changes in legislation and patent law in order to support the lowest achievable cost for HIV treatment, including the support for generic medicine.

6. To monitor the changes in Health care systems and policies to ensure the rights and the quality of services influence positively the quality of life of people living with HIV/AIDS.
Interesi organizacije so na ravni:
  • evropski

Število oseb, ki se ukvarjajo z dejavnostmi iz področja uporabe registra za preglednost

Število oseb: 122
Dodatne informacije: We are a voluntary organisation with over 100 members from over 30 countries within Europe. We have an office in Brussels where 6 staff members are employed.

Osebe z izkaznico za vstop v stavbo Evropskega parlamenta

Ni akreditiranih oseb

Dejavnosti

Glavne pobude EU, ki so jim bile v predhodnem letu namenjene dejavnosti iz področja uporabe registra za preglednost:


 CHAARM (Combined Highly Active Anti-Retroviral Microbicides) is a research network funded by the EC under FP7 that looks into developing combinations of new and existing microbicides that will be designed to be specifically targeted agents, which can be applied topically to reduce transmission of HIV during sexual intercourse. CHAARM stands for Combined Highly Active Anti-Retroviral Microbicide.

 EMA – Paediatric Committee
The main responsibility of the Paediatric Committee (PDCO) is to assess the content of paediatric investigation plans and adopt opinions on them including assessment of applications for full or partial waiver and applications for deferrals.

 The EU HIV/AIDS Civil Society Forum has been established by the European Commission as an informal working group to facilitate the participation of non-governmental organizations, including those representing people living with HIV/AIDS in policy development and implementation and in information-exchange activities. The CSF includes about 40 organizations from all over Europe. AIDS Action Europe (AAE) and EATG co-chair and provide support to the work of the EU HIV/AIDS Civil Society Forum, an informal advisory body to the European Commission.

CHAARM (Combined Highly Active Anti-Retroviral Microbicides)
is a research network funded by the EC under FP7, it stands for Combined Highly Active Anti-Retroviral Microbicide. EATG is part of the working group for dissemination and advocacy activities, and has an appointed representative on the CHAARM Steering Committee.
The EATG’s role is to help identify target groups for dissemination of CHAARM activities and also to facilitate the organisation of 4 dedicated workshops focusing on CHAARM’s scientific activities and achievements starting from the second year of the project.

EUROCOORD
EuroCoord is a Network of Excellence established by several of the biggest HIV cohorts and collaborations within Europe - CASCADE, COHERE, EuroSIDA, and PENTA. EuroCoord has access to data from over 250,000 HIV-infected children and adults across the European continent and beyond. The multidisciplinary research undertaken by the network addresses key areas aimed at improving the management and life of HIV-infected individuals, whilst allowing differences within sub-groups to be explored.

EUPATI is an IMI-funded consortium project, led by the European Patients' Forum, to educate patients and the lay public about how medicines’ R&D works. A consortium of 29 organisations is developing training courses, educational toolkits and a web-based library to provide objective and credible information about medicines R&D and how patients can get involved. EUPATI will cover seven languages in 12 countries.

The main activity of work package 7 (WP7) was the preparation of a catalogue and a report on successful public private partnerships (PPPs) between patients’ organisations, industry and academia. The catalogue provides references and examples of successful collaborations that can be used as guidance for future partnerships, addressing the need for more active involvement of patient experts in medicines R&D.

NEAT - European AIDS Treatment Network is a network of Excellence funded by the European Commission under the FP6 Programme. Its mission is to strengthen European HIV clinical research capacity. Nikos Dedes is the EATG project leader. The final version of the ECAB Review (which is funded by NEAT) has been published in June (see 3.5 The ECAB Review).

ECRAN – European Communication on Research Awareness Needs project is designed to develop a portfolio of open educational resources, including a film, for the general population about the challenges raised by independent clinical research. EATG is a non-leading partner in 4 work packages of the project: Creation of a multi-language website, Production of an animated film on clinical trials, planning and development of communication tools and materials.

Področja, za katera želite prejemati elektronska obvestila o posvetovanjih in časovnicah;

Področja interesov, ki jih je navedla organizacija:
  • Javno zdravje
  • Pravosodje in temeljnih pravic
  • Raziskave in tehnologija

Sestava

Število včlanjenih „fizičnih oseb“ skupaj: 122
Število včlanjenih organizacij:
Včlanjene organizacije (Število članov) :
Organizacija ima člane oziroma je zastopana v naslednjih državah:
  • AVSTRIJA
  • BELGIJA
  • BOLGARIJA
  • ČEŠKA
  • DANSKA
  • ESTONIJA
  • FINSKA
  • FRANCIJA
  • GRČIJA
  • HRVAŠKA
  • IRSKA
  • ITALIJA
  • LATVIJA
  • LITVA
  • MADŽARSKA
  • NEMČIJA
  • NIZOZEMSKA
  • POLJSKA
  • PORTUGALSKA
  • ROMUNIJA
  • SLOVAŠKA
  • SLOVENIJA
  • ŠPANIJA
  • ŠVEDSKA
  • ZDRUŽENO KRALJESTVO

  • ALBANIJA
  • ARMENIJA
  • IZRAEL
  • KANADA
  • KIRGIZISTAN
  • MAKEDONIJA (NEKDANJA JUGOSLOVANSKA REPUBLIKA)
  • RUSIJA
  • SRBIJA
  • ŠVICA
  • TADŽIKISTAN
  • TURČIJA
  • UKRAJINA
  • UZBEKISTAN
  • ZDRUŽENE DRŽAVE AMERIKE
Dodatne informacije:

Omrežja

Informacije o članstvu organizacije v enem ali več združenjih ali zvezah ali morebitni povezanosti v mrežo, četudi začasni.




EU Institutions and Executive Agencies
DG Sanco – Health and Consumer Protection; DG Enterprise and Industry; DG Research; DG Trade; European Parliament; European Medicines Agency (EMA); European Monitoring Centre for Drugs and Drug Addiction (EMCDDA); European Centre for Disease Control (ECDC)

Other EU Platforms
EU Health Policy Forum; HIV/AIDS Civil Society Forum (CSF); Pharmaceutical Forum
United Nations programs and organisations
UNAIDS, the Joint United Nations Programme on HIV/AIDS; World Health Organisation (WHO), the directing and coordinating authority for health within the United Nations
International Organisations
International Organisation for Migration (IOM); International Harm Reduction Association (IHRA); International AIDS Society (IAS); International Planned Parenthood Federation (IPPF)

HIV/AIDS Organisations and Networks
AIDS Action Europe; AIDS Treatment Activists Coalition (ATAC); International Treatment Preparedness Coalition (ITPC); Global Network of People Living with HIV/AIDS (GNP+); International Community of Women Living with HIV/AIDS (ICW); Eastern European & Central Asian Union of PLWH Organisations (ECUO); Global Campaign for Microbicides (GCM); International AIDS Vaccine Initiative (IAVI); AIDS Vaccine Advocacy Coalition (AVAC); HIV in Europe; NAM; Terrence Higgins Trust (THT)

Public Health Networks
European Public Health Alliance (EPHA); Concord; EU Civil Society Contact Group; International Harm Reduction Development Program (IHRD); Eurasian Harm Reduction Network (EHRN); Health Action international (HAI); Médecins Sans Frontières (MSF), European Forum for Good Clinical Practice (EFGCP)

EATG involvement via projects
AIDS and Mobility Europe; AIDS Action Integration; European HIV Resistance Network; HIV/STI Prevention & Health Promotion among Migrant Sex Workers (TAMPEP); Health GAP (Global Access Project); European AIDS Treatment Network (NEAT);

Other European organisations
European Patients’ Forum (EPF); International Alliance of Patient Organisations (IAPO); European Forum for Good Clinical Practice (EFGCP); European Federation of Pharmaceutical Industries and Associations (EFPIA); European Coalition of Positive People (ECPP); European AIDS Clinical Society (EACS); European Platform for Patients Organisations, Science and Industry (EPPOSI)

Other organisations and networks
Platform for International Cooperation on Undocumented Migrants (PICUM); Open Society Institute (OSI); Human Rights Watch (HRW); Correlation European Network Social Inclusion and Health; The Global Fund to fight AIDS, Tuberculosis and Malaria (GFTAM); Global Health Council; Association Internationale de la Mutualité (AIM); European Consumer’s Organisation (BEUC); Comité Permanent des Médecins Européens (CPME); the European Network on Drugs and Infections Prevention in Prison (ENDIPP)

Finančni podatki

Finančno leto: 01/2012 - 12/2012
Skupni proračun: 1.034.480
pri čemer so javna finančna sredstva: 68.388
- iz evropskega vira:
- Javno naročilo:
- Subvencije: 62.432
- iz nacionalnega vira:
- iz regionalnega/lokalnega vira:
reimbursement of expenses : 5.956
pri čemer so drugi viri: 966.092
- donacije: 846.940
- prispevki članov: 4.165
reimbursements : 11.240
foundations : 44.038
interest : 852
other project funding : 56.110
other : 2.747
Ocena stroškov neposrednih dejavnosti pri zastopanju interesov, ki jih je v navedenem finančnem letu izvedla organizacija pri evropskih institucijah: < 50000  €
Dodatne finančne informacije, ki jih je zaradi preglednosti dala organizacija:

EATG Expenditure 2012
Governance & Administration: 344.149 EUR
Policy & Advocacy: 149.379 EUR
Capacity Building: 165.058 EUR
Research & Development: 350.033 EUR
Communication: 67.764 EUR

Total: 1.076.382 EUR (100%)

Kodeks ravnanja

Organizacija je z registracijo sprejela tudi pravila ravnanja registra za preglednost.