Užsiregistravusi organizacija arba savarankiškai dirbantis asmuo
| Vardas ir pavardė arba organizacijos pavadinimas: |
European AIDS Treatment Group |
| Akronimas: |
EATG
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| Teisinis statusas: |
NGO
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| Svetainė: |
http://www.eatg.org
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Kategorijos
| Kategorija: |
III. Nevyriausybinės organizacijos |
| Tiksliau: |
Nevyriausybinės organizacijos, platformos ir tinklai bei panašios organizacijos |
Teisiškai atsakingas asmuo
| Pavardė ir vardas: |
Brian West
|
| Pareigos: |
chair |
Nuolatinis už ES reikalus atsakingas asmuo
| Pavardė ir vardas: |
Koen Block
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| Pareigos: |
Executive Director |
Kontaktinė informacija
| Pagrindinės organizacijos buveinės kontaktiniai duomenys: |
Mettmanner Strasse 24-26
40233 Duesseldorf
VOKIETIJA
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| Telefono numeris: |
(+32) 26269640 |
| Faksas: |
(+32) 26443307 |
| Papildoma kontaktinė informacija: |
Place Raymond Blyckaerts 13
1050 Brussels
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Tikslai ir uždaviniai
| Organizacijos tikslai ir uždaviniai: |
Founded in 1992, the European AIDS Treatment Group (EATG) is a European network of nationally-based activists. As a European patient-led advocacy organisation, it has been at the forefront of the development of the civil society response to the HIV/AIDS epidemic in Europe. It represents and defends the treatment-related interests of people living with HIV and AIDS.
EATG is a voluntary organisation made up of 105 members from over 36 different European countries. Our members are representatives of different communities affected by HIV/AIDS in Europe. Our activities focus on treatment activism and treatment advocacy.
In responding to HIV, the EATG also considers diseases frequently seen as co-infection in people with HIV, as well as other health issues that increase the risk of HIV.
The EATG’s primary geographic focus is the member states served by the World Health Organisation (WHO) Regional Office for Europe. However, the EATG does consider opportunities to collaborate with and support similar efforts in other parts of the world.
goals
1. To enable people with HIV or at risk of HIV infection and their supporters to significantly influence the development, testing and approving of HIV treatments. In this context, HIV treatment means medical devices, products and diagnostic tests that prevent or treat HIV infection and include continuous improvement in the quality of life of people affected.
2. To advocate for the best practices of care and treatment.
3. To advocate for rapidly available existing and new HIV treatment.
4. To promote the access of the latest available information about treatment legislation for patients, health care providers as well as policy makers.
5. To influence changes in legislation and patent law in order to support the lowest achievable cost for HIV treatment, including the support for generic medicine.
6. To monitor the changes in Health care systems and policies to ensure the rights and the quality of services influence positively the quality of life of people living with HIV/AIDS.
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Kokio lygmens interesams atstovauja organizacija:
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Asmenų, užsiimančių Skaidrumo registro taikymo sričiai priklausančia veikla, skaičius
| Asmenų skaičius: |
118
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Papildoma informacija:
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We are a voluntary organisation with over 100 members from over 30 countries within Europe. We have an office in Brussels where 7 staff members are employed.
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Asmenys, kuriems suteiktas leidimas patekti į Europos Parlamento patalpas
Veikla
Pagrindinės ES iniciatyvos, kurios ankstesniaisiais metais buvo įgyvendinamos vykdant Skaidrumo registro taikymo sričiai priklausančią veiklą:
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NEAT (European AIDS Treatment Network) - Nikos Dedes, steering committee member
EATG is the community partner of the EC Network of Excellence NEAT that stands for European AIDS Treatment Network, which is a platform for Academic HIV Clinical Research institutions (http://www.neat-noe.org).
EUCO-Net (European Network for global cooperation in the field of AIDS & TB)
The EUCO-Net project ended in 2010. Its objective was to provide an overview of the state of the art in HIV and TB research and disease management in the different partner countries, to identify global research priorities and to boost international cooperation between leading HIV and TB experts from Europe and those countries mainly affected by the two diseases.
CHAARM (Combined Highly Active Anti-Retroviral Microbicides)
CHAARM is a new research network funded by the EC under FP7 that looks into developing combinations of new and existing microbicides that will be designed to be specifically targeted agents, which can be applied topically to reduce transmission of HIV during sexual intercourse. CHAARM stands for Combined Highly Active Anti-Retroviral Microbicide.
PROTECT
PROTECT is a European consortium financed under the Innovative Medicines Initiative IMI. PROTECT stands for Pharmaco-epidemiological Research on Outcomes of Therapeutics by a European Consortium. The EMA is the coordinator, the web site: www.imi-protect.eu/.
The goal of PROTECT is to strengthen the monitoring of the benefit risk of medicines in Europe. This will be achieved by developing a set of innovative tools and methods that will enhance the early detection and assessment of adverse drug reactions from different data sources, and enable the integration and presentation of data on benefits and risks.
EMA – Paediatric Committee
The main responsibility of the Paediatric Committee (PDCO) is to assess the content of paediatric investigation plans and adopt opinions on them including assessment of applications for full or partial waiver and applications for deferrals.
The EU HIV/AIDS Civil Society Forum
The EU HIV/AIDS Civil Society Forum (CSF) has been established by the European Commission as an informal working group to facilitate the participation of non-governmental organizations, including those representing people living with HIV/AIDS in policy development and implementation and in information-exchange activities. The CSF includes about 40 organizations from all over Europe. AIDS Action Europe (AAE) and EATG co-chair and provide support to the work of the EU HIV/AIDS Civil Society Forum, an informal advisory body to the European Commission.
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Sritys, apie kurių konsultacijas ir planuojamas iniciatyvas pageidaujama gauti pranešimus e. paštu
| Organizacijos nurodytos interesų sritys: |
- Moksliniai tyrimai ir technologijos
- Teisingumo ir pagrindinių teisių
- Visuomenės sveikata
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Struktūra
| Bendras narių („fizinių asmenų“) skaičius |
110 |
| Narių organizacijų skaičius: |
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| Organizacijų nariai (Narių skaičius) : |
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| Organizacija turi narių arba atstovų šiose šalyse: |
- AIRIJA
- AUSTRIJA
- BELGIJA
- BULGARIJA
- ČEKIJOS RESPUBLIKA
- DANIJA
- ESTIJA
- GRAIKIJA
- ISPANIJA
- ITALIJA
- JUNGTINĖ KARALYSTĖ
- LATVIJA
- LENKIJA
- LIETUVA
- NYDERLANDAI
- PORTUGALIJA
- PRANCŪZIJA
- RUMUNIJA
- SLOVĖNIJA
- SUOMIJA
- ŠVEDIJA
- VENGRIJA
- VOKIETIJA
- ALBANIJA
- ARMĖNIJA
- IZRAELIS
- JUNGTINĖS AMERIKOS VALSTIJOS
- KANADA
- KIRGIZIJA
- MAKEDONIJA (BUVUSIOJI JUGOSLAVIJOS RESPUBLIKA)
- RUSIJOS FEDERACIJA
- SERBIJA
- ŠVEICARIJA
- TADŽIKISTANAS
- TURKIJA
- UKRAINA
- UZBEKISTANAS
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Papildoma informacija:
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Tinklai. Tinklų kūrimas
Informacija apie organizacijos narystę kokioje nors asociacijoje, federacijoje, konfederacijoje arba kokiame nors tinkle (net ir apie neoficialią narystę).
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EU Institutions and Executive Agencies
DG Sanco – Health and Consumer Protection; DG Enterprise and Industry; DG Research; DG Trade; European Parliament; European Medicines Agency (EMA); European Monitoring Centre for Drugs and Drug Addiction (EMCDDA); European Centre for Disease Control (ECDC)
Other EU Platforms
EU Health Policy Forum; HIV/AIDS Civil Society Forum (CSF); Pharmaceutical Forum
United Nations programs and organisations
UNAIDS, the Joint United Nations Programme on HIV/AIDS; World Health Organisation (WHO), the directing and coordinating authority for health within the United Nations
International Organisations
International Organisation for Migration (IOM); International Harm Reduction Association (IHRA); International AIDS Society (IAS); International Planned Parenthood Federation (IPPF)
HIV/AIDS Organisations and Networks
AIDS Action Europe; AIDS Treatment Activists Coalition (ATAC); International Treatment Preparedness Coalition (ITPC); Global Network of People Living with HIV/AIDS (GNP+); International Community of Women Living with HIV/AIDS (ICW); Eastern European & Central Asian Union of PLWH Organisations (ECUO); Global Campaign for Microbicides (GCM); International AIDS Vaccine Initiative (IAVI); AIDS Vaccine Advocacy Coalition (AVAC); HIV in Europe; NAM; Terrence Higgins Trust (THT)
Public Health Networks
European Public Health Alliance (EPHA); Concord; EU Civil Society Contact Group; International Harm Reduction Development Program (IHRD); Eurasian Harm Reduction Network (EHRN); Health Action international (HAI); Médecins Sans Frontières (MSF), European Forum for Good Clinical Practice (EFGCP)
EATG involvement via projects
AIDS and Mobility Europe; AIDS Action Integration; European HIV Resistance Network; HIV/STI Prevention & Health Promotion among Migrant Sex Workers (TAMPEP); Health GAP (Global Access Project); European AIDS Treatment Network (NEAT); Europrise
Other European organisations
European Patients’ Forum (EPF); International Alliance of Patient Organisations (IAPO); European Forum for Good Clinical Practice (EFGCP); European Federation of Pharmaceutical Industries and Associations (EFPIA); European Coalition of Positive People (ECPP); European AIDS Clinical Society (EACS); European Platform for Patients Organisations, Science and Industry (EPPOSI)
Other organisations and networks
Platform for International Cooperation on Undocumented Migrants (PICUM); Open Society Institute (OSI); Human Rights Watch (HRW); Correlation European Network Social Inclusion and Health; The Global Fund to fight AIDS, Tuberculosis and Malaria (GFTAM); Global Health Council; Association Internationale de la Mutualité (AIM); European Consumer’s Organisation (BEUC); Comité Permanent des Médecins Européens (CPME); the European Network on Drugs and Infections Prevention in Prison (ENDIPP)
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Finansiniai duomenys
| Finansiniai metai: |
01/2011
-
12/2011
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Bendras biudžetas:
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1 094 302
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€
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viešųjų lėšų dalis:
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121 915
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€
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- iš Europos finansavimo šaltinių:
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- Viešieji pirkimai:
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€
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- Dotacijos:
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121 915
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€
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- iš nacionalinių finansavimo šaltinių:
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€
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- iš vietos (regioninių) finansavimo šaltinių:
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€
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iš kitų finansavimo šaltinių: |
972 387
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€
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- dovanotos lėšos:
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926 113
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€
|
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- narystės mokesčiai:
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2 725
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€
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- reimbursements :
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15 849
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€
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- foundations :
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24 497
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€
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- interest and other :
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3 203
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€
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Organizacijos išlaidų, siejamų su tiesioginiu lobizmu ES institucijose toliau nurodytais finansiniais metais, sąmata:
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< 50000
€
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Kita finansinė informacija arba papildomi duomenys, kuriuos organizacija pateikė skaidrumo dėlei:
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EATG expenditure 2011
governance & administration: 289.316 EUR
policy & advocacy: 231.438 EUR
capacity building: 160.202 EUR
research & development: 356.938 EUR
communication: 27.804 EUR
total: 1.065.699 EUR (100%)
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