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Profile of registrant

International Diabetes Federation European Region

Identification number in the register: 80267287489-88
Registration date: 21/12/11 10:29:11

The information on this organisation was last modified on 17/12/13 16:43:44
The date of the last annual update was 17/12/13 16:43:44


Registrant : Organisation or self-employed individual

Name/company name: International Diabetes Federation European Region
Acronym: IDF Europe
Legal status: AISBL
Website address: http://www.idf-europe.org

Sections

Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Ms  Sophie Peresson
Position: Regional Director

Permanent person in charge of EU relations

Surname, Name: Ms  Sophie Peresson
Position: Regional Director

Contact details:

Contact details of organisation's head office: 166 Chaussée de La Hulpe 3rd Floor
Brussels 1170
BELGIUM
Telephone number: (+322) 6392090
Fax number: (+322) 5371981
Other contact information: Sophie Peresson, Regional Director:00322 6392094
Lala Rabemananjara, Regional Executive: 00322 6392090
Katie Gallagher, Policy Officer: 00322 6392092
Gael Bassetto, Communication Officer: 00322 6392091

Newsroom website: http://newsroom.idf-europe.org/

Goals / remit

Goals / remit of the organisation: IDF Europe is an umbrella organization of 66 national diabetes associations in 47 countries in its membership. We are a diverse and inclusive multicultural network of national diabetes associations, representing both patients and health care professionals. IDF Europe is committed to tackling the diabetes epidemic through the chronic disease lens.

Our Strategic Goals:
- Drive change at European level, from National to European, to prevent diabetes
- Develop and encourage best practice in diabetes policy, management and education
- Promote European diabetes treatment, prevention and cure through scientific research
- Promote and protect the rights of people with diabetes, ensure equal access to medication and combat discrimination in Europe.
- Support the development of our Member organizations and encourage their activities

The IDF Europe mission is to promote diabetes care, prevention and a cure worldwide.
The organisation's fields of interests are:
  • national
  • European
  • global

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 2
Complementary information: Sophie Peresson: Regional Director
Katie Gallagher: Policy Officer

Persons accredited for access to European Parliament premises

No accredited persons

Activities

Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


-Reflection process on chronic diseases consultation
-World Diabetes Day in the European Parliament
-EU Diabetes Working group in the European Parliament, linked to Adoption of EP Resolution on the EU diabetes epidemic in March 2012
-Member of EPHAC - European Public Health Agriculture Consortium
-European Innovation Partnership on Active and Healthy Ageing
-review of the Clinical trials directive public consultation
-e-Health public consultation
-transparency of pricing and reimbursement of medicines public consultation
-A modernization of the Professional Qualifications Directive public consultation
-Health for Growth public consultation
-Chronic Diseases public consultation contribution
-Cross-border healthcare
-Pharmacovigilance
-Food labeling
-response to the Future of the Public Health Programme
-EU Health Policy Forum
-EU Platform for action on diet, physical activity and health
-Children and health/nutrition
-Youth leaders in diabesity
-Obesity
-EMA
-Medical Devices directive

EU Projects:
- Renewing Health
- SWEET
- IMAGE
- ePredice
- EUROCONDOR
- EurythDia
- Manage Care
- EConDA

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Agriculture and Rural Development
  • Audiovisual and Media
  • Climate Action
  • Communication
  • Consumer Affairs
  • Culture
  • Development
  • Education
  • Employment and Social Affairs
  • Environment
  • External Relations
  • Food Safety
  • General and Institutional Affairs
  • Information Society
  • Public Health
  • Regional Policy
  • Research and Technology
  • Sport
  • Taxation
  • Trans-European Networks
  • Transport
  • Youth

Structure

Total number of members that are natural persons: 4
Number of member organisations: 71
Member organisations (Number of members) :
  • Shoqata Shqipëtare Diabetike (682 members)
  • Armenian Diabetes Association (Provisional) (1,213 members)
  • Österreichische Diabetes Gesellschaft (899 members)
  • Azerbaijan Diabetes Society (2,600 members)
  • Belarussian Humanitarian Organisation (2,875 members)
  • Vlaamse Diabetes Vereniging (21,661 members)
  • Association Belge du Diabète (8,165 members)
  • Bulgarian Society of Endocrinology (385 members)
  • Hrvatski savez dijabetickih udruga (5,000 members)
  • Cyprus Diabetic Association (13,516 members)
  • SVAZ Diabetikù Ceské Republiky (830 members)
  • Ceska Diabetologicka Spolecnost (1,010 members)
  • Diabetesforeningen (69,430 members)
  • Estonian Diabetes Association (813 members)
  • Diabetesfelag Foroya (625 members)
  • Finnish Diabetes Association (57,225 members)
  • Association Française des Diabétiques (25,000 members)
  • Georgian Union of Diabetes and Endocrine Associations (3,860 members)
  • DiabetesDE (622 members)
  • Hellenic Diabetes Federation (4,200 members)
  • Hellenic Diabetes Association (1,503 members)
  • National Federation of Hungarian Diabetics (69 members)
  • Magyar Diabetes Tarsasag (2,950 members)
  • Samtök Sykursjúkra (1,062 members)
  • Diabetes Federation of Ireland (4,300 members)
  • Israel Diabetes Association (4,000 members)
  • FAND - Associazione Italiana Diabetici (21,100 members)
  • Associazione Medici Diabetologi (1,900 members)
  • Associazione Italiana per la Difesa degli Interessi dei Diabetici (1,234 members)
  • Societa Italiana di Diabetologia (1,400 members)
  • Associazione Nazionale Italiana Atleti Diabetici (680 members)
  • Diabetes Association of the Republic of Kazakhstan (1,201 members)
  • Diabetes Association of Kyrgyzstan (680 members)
  • Latvian Diabetes Federation (2,963 members)
  • Latvian Diabetes Association (3,405 members)
  • Lithuanian Diabetes Association (6,000 members)
  • Association Luxembourgeoise du Diabète (1,255 members)
  • Macedonian Diabetes Association (2,500 members)
  • Ghaqda Kontra D-dijabete (1,000 members)
  • Prodiab (196 members)
  • Norges Diabetesforbund (41,312 members)
  • Polskie Towarzystwo Diabetologiczne (872 members)
  • Polskie Stowarzyszenie Diabetyków (1,768 members)
  • Associação Protectora dos Diabéticos de Portugal (9,780 members)
  • Sociedade Portuguesa de Diabetologia (7,186 members)
  • Societatea Romana de Diabet, Nutritie si (665 members)
  • Russian Diabetes Federation (1,134 members)
  • Serbian Association for the Study of Diabetes (50 members)
  • Diabetes Association of Serbia (7,000 members)
  • ZVAZ Diabetikov Slovenska (18,282 members)
  • Slovenska Diabetologicka Spolocnost (487 members)
  • Zveza Drustev Diabetikov Slovenije (4,000 members)
  • Sociedad Española de Diabetes (1,620 members)
  • Swedish Society for Diabetology (3,600 members)
  • Svenska Diabetesförbundet (26,481 members)
  • Schweizerische Diabetes-Gesellschaft (24,786 members)
  • Diabetesvereniging Nederland (55,394 members)
  • Netherlands Diabetes Federation (10 members)
  • Türk Diabet Cemiyeti (2,301 members)
  • Turkish Diabetes Foundation (186 members)
  • Ukrainian Diabetic Federation (10,530 members)
  • Diabetes UK (155,213 members)
  • Association of Endocrinologists of the Republic of Uzbekistan (560 members)
  • Federacion Espanola de Diabetes (2,000 members)
  • Nederlandse Vereniging Voor Diabetesonderzoek (400 members)
  • Bulgarian Diabetes Association (737 members)
  • DIAbeticky DOrast (756 members)
  • International Diabetes Association of Ukraine (8,117 members)
  • Tashkent Charity Public Asso for the Disabled & People w/Diabetes (948 members)
  • Federacion de Diabeticos Espanoles (18 members)
  • Panhellenic Federation of People w/Diabetes (15,000 members)
The organisation has members/is represented in the following country(countries):
  • AUSTRIA
  • BELGIUM
  • BULGARIA
  • CROATIA
  • CYPRUS
  • CZECH REPUBLIC
  • DENMARK
  • ESTONIA
  • FINLAND
  • FRANCE
  • GERMANY
  • GREECE
  • HUNGARY
  • IRELAND
  • ITALY
  • LATVIA
  • LITUANIA
  • LUXEMBOURG
  • MALTA
  • NETHERLANDS
  • POLAND
  • PORTUGAL
  • ROMANIA
  • SLOVAKIA
  • SLOVENIA
  • SPAIN
  • SWEDEN
  • UNITED KINGDOM

  • ALBANIA
  • ARMENIA
  • AZERBAIJAN
  • BELARUS
  • FAROE ISLANDS
  • GEORGIA
  • ICELAND
  • ISRAEL
  • KAZAKHSTAN
  • KYRGYZSTAN
  • MACEDONIA, FORMER YUGOSLAV REPUBLIC OF
  • MOLDOVA, REPUBLIC OF
  • NORWAY
  • RUSSIA, FEDERATION OF
  • SERBIA
  • SWITZERLAND
  • TURKEY
  • UKRAINE
  • UZBEKISTAN
Complementary information:

Networking

Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.




IDF Europe is member of:
EPHAC - European Public Health Agriculture Consortium
EPHA - European Public Health Alliance
EPF - European Patients Forum
EFPIA - European Federation of Pharmaceutical Industries and Associations
EU Public Health Alliance
ESWI - European Scientific Working group on Influenza
EMA - European Medicines Agency
ECDA - European Chronic Disease Alliance
EU Platform for action on diet, physical activity and health
EURADIA - Alliance for European Diabetes Research
ECD - European Coalition for Diabetes
EY2012 Coalition
EU Health Policy Forum
Health First Europe
EASD - European Association for the Study of Diabetes (Attendance to EASD General Assembly)

Financial data

Financial year: 01/2012 - 12/2012
Total budget: 894,634
of which public financing: 894,634
- from European sources:
- Procurement:
- Grants: 64,500
- from national sources:
- from local/regional sources:
Corporate Partners Membership : 335,000
Corporate Partners Sponsoring : 495,134
from other sources: 0
- donations: 0
- contributions from members: 0
Estimated costs to the organisation directly related to representing interests to EU institutions in that year: 150000  € - 200000  €
Other (financial) information provided by the organisation:

Corporate Partners:

* Abbott
* AstraZeneca & Bristol Myers Squibb alliance
* Bayer Healthcare
* Becton Dickinson
* Dexcom
* Eli Lilly
* GlaxoSmithKline
* Janssen Pharmaceutica
* Medtronic
* Merck Sharp & Dohme
* Novartis
* Novo Nordisk
* Pfizer Europe
* Roche Diagnostics
* Sanofi

Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.