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Profile of registrant

EUROPA DONNA-The European Breast Cancer Coalition

Identification number in the register: 13080161140-33
Registration date: 13/02/09 14:35:05

The information on this organisation was last modified on 17/01/14 15:36:14
The date of the last annual update was 17/01/14 15:36:14


Registrant : Organisation or self-employed individual

Name/company name: EUROPA DONNA-The European Breast Cancer Coalition
Acronym: ED
Legal status: Non Profit
Website address: http://www.europadonna.org

Sections

Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Ms  Susan Knox
Position: Executive Director

Permanent person in charge of EU relations

Surname, Name: Ms  Karen Benn
Position: Policy Officer

Contact details:

Contact details of organisation's head office: 3 Piazza Amendola 
Milan 20149
ITALY
Telephone number: (+39) 0236592280
Fax number: (+39) 0236592284
Other contact information:

Goals / remit

Goals / remit of the organisation: EUROPA DONNA – The European Breast Cancer Coalition Mission Statement:

EUROPA DONNA, the European Breast Cancer Coalition, is an independent, non-profit organisation whose members are affiliated groups from countries throughout Europe.

The Coalition works to raise awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and care and increased funding for research. EUROPA DONNA represents the interests of European women regarding breast cancer to local and national authorities as well as to institutions of the European Union.


EUROPA DONNA TEN GOALS:
1. To promote the dissemination and exchange of factual, up-to-date information on breast cancer throughout Europe

2. To promote breast awareness

3. To emphasise the need for appropriate screening and early detection

4. To campaign for the provision of optimum treatment

5. To ensure provision of quality supportive care throughout and after treatment

6. To advocate appropriate training for health professionals

7. To acknowledge good practice and promote its development

8. To demand regular quality assessment of medical equipment

9. To ensure that all women understand fully any proposed treatment options, including entry into clinical trials and their right to a second opinion

10. To promote the advancement of breast cancer research

EUROPA DONNA Key Activities:

EUROPA DONNA is involved in the following educational and information activities:

• Jointly organises with EUSOMA and the EORTC the European Breast Cancer Conference that is held every two years. This Conference brings together 5,000 doctors, researchers, health professionals and advocates from all over the world.

• Organises a major biennial Pan-European Breast Cancer Conference and brings together over 200 breast cancer advocates from throughout Europe.

• EUROPA DONNA General Assembly meetings, which allow for all our Fora to share information and decide on important issues concerning the Coalition as well as National Representative Training sessions for leaders of our member country groups.

• Conducts Annual European Breast Cancer Advocacy Training Course- a two day training course where our members learn more about how to initiate and carry out advocacy programs in their own countries as well as at the European level.

• Launched Breast Health Day on 15 October 2008 with a media event to begin awareness campaign for prevention and early detection

• Launched a public service announcement to 40 member countries in local language to raise awareness of each woman’s right to receive services in accordance with the “EU guidelines for quality assurance in breast cancer screening and diagnosis” Published “Short Guide” to these guidelines with translation into 14 languages to use in national implementation projects.

• Produces various publications and website material concerning breast cancer on www. europadonna.org and www.breasthealthday.org
The organisation's fields of interests are:
  • European

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 2
Complementary information:

Persons accredited for access to European Parliament premises

No accredited persons

Activities

Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


Breast Cancer, cancer control plans, implementation of the European Union Guidelines for quality assurance in breast cancer screening and diagnosis at the national level. In particular, establishing an EU process for accreditation of Specialist Breast Units that will be applied Europe wide.

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Employment and Social Affairs
  • Public Health
  • Research and Technology
  • Trans-European Networks

Structure

Total number of members that are natural persons: 114,019
Number of member organisations: 46
Member organisations (Number of members) :
  • ED Albania (5 members)
  • ED Austria (50 members)
  • ED Belarus (15 members)
  • ED Belgium (500 members)
  • ED Bulgaria (80 members)
  • ED Croatia (3,200 members)
  • ED Cyprus (2,500 members)
  • ED Czech Republic (4,300 members)
  • ED Denmark (900 members)
  • ED Estonia (42 members)
  • ED Finland (900 members)
  • ED France (2,500 members)
  • ED Georgia (150 members)
  • ED Germany (5 members)
  • ED Greece (250 members)
  • ED Hungry (30 members)
  • ED Iceland (45 members)
  • ED Ireland (270 members)
  • ED Israel (20 members)
  • ED Italy (20,000 members)
  • ED Kazakhstan (5 members)
  • ED Kyrgyzstan (12 members)
  • ED Latvia (200 members)
  • ED Lithuania (2,000 members)
  • ED Luxembourg (350 members)
  • ED Macedonia (31 members)
  • ED Malta (85 members)
  • ED Moldova (5 members)
  • ED Monaco (25 members)
  • ED Netherlands (7,000 members)
  • ED Norway (15,000 members)
  • ED Poland (160 members)
  • ED Portugal (150 members)
  • ED Romania (125 members)
  • ED Russia (5 members)
  • ED Serbia (5 members)
  • ED Slovakia (5 members)
  • ED Slovenia (3,014 members)
  • ED Spain (37,000 members)
  • ED Sweden (11,500 members)
  • ED Switzerland (325 members)
  • ED Tajikistan (30 members)
  • ED Turkey (400 members)
  • ED UK (100 members)
  • ED Ukraine (720 members)
  • ED Uzbekistan (5 members)
The organisation has members/is represented in the following country(countries):
  • AUSTRIA
  • BELGIUM
  • BULGARIA
  • CROATIA
  • CYPRUS
  • CZECH REPUBLIC
  • DENMARK
  • ESTONIA
  • FINLAND
  • FRANCE
  • GERMANY
  • GREECE
  • HUNGARY
  • IRELAND
  • ITALY
  • LATVIA
  • LITUANIA
  • LUXEMBOURG
  • MALTA
  • NETHERLANDS
  • POLAND
  • PORTUGAL
  • ROMANIA
  • SLOVAKIA
  • SLOVENIA
  • SPAIN
  • SWEDEN
  • UNITED KINGDOM

  • ALBANIA
  • BELARUS
  • GEORGIA
  • ICELAND
  • ISRAEL
  • KAZAKHSTAN
  • KYRGYZSTAN
  • MACEDONIA, FORMER YUGOSLAV REPUBLIC OF
  • MOLDOVA, REPUBLIC OF
  • MONACO
  • NORWAY
  • RUSSIA, FEDERATION OF
  • SERBIA
  • SWITZERLAND
  • TAJIKISTAN
  • TURKEY
  • UKRAINE
  • UZBEKISTAN
Complementary information:

Networking

Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.




EUROPEAN PATIENT FORUM
EUROPEAN PUBLIC HEALTH ALLIANCE
ECCO-EUROPEAN CANCER ORGANISATION
EUROPEAN CANCER NETWORK

Financial data

Financial year: 01/2012 - 12/2012
Total budget: 617,149
of which public financing: 273,415
- from European sources:
- Procurement:
- Grants: 273,415
- from national sources:
- from local/regional sources:
from other sources: 343,734
- donations: 12,200
- contributions from members: 14,000
Grants / other : 317,534
Estimated costs to the organisation directly related to representing interests to EU institutions in that year:
Other (financial) information provided by the organisation:

Europa Donna publishes audited financial statements as well as annual reports on our website (http://www.europadonna.org) in accordance with the transparency guidelines established by the European Health Forum.

Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.