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Profile of registrant

Associazione Italiana Celiachia

Identification number in the register: 04440176142-73
Registration date: 05/07/11 10:43:09

The information on this organisation was last modified on 09/06/14 10:37:28
The date of the last annual update was 09/06/14 10:37:28


Registrant : Organisation or self-employed individual

Name/company name: Associazione Italiana Celiachia
Acronym: A.I.C.
Legal status: Onlus
Website address: http://www.celiachia.it

Sections

Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Ms  Elisabetta Tosi
Position: Presidente

Permanent person in charge of EU relations

Surname, Name: Mrs  Ivana Losa
Position: UE delegate

Contact details:

Contact details of organisation's head office: 10 Via Caffaro 
Genova 16124
ITALY
Telephone number: (+39) 0102510016
Fax number: (+39) 0108449404
Other contact information:

Goals / remit

Goals / remit of the organisation: Associazione Italiana Celiachia is the leading charity working for people with coeliac disease and dermatitis herpetiformis. Our goal is to improve the lives of people with coeliac disease through support, campaigning and research.
The organisation's fields of interests are:
  • national
  • European

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 3
Complementary information:

Persons accredited for access to European Parliament premises

No accredited persons

Activities

Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


- supporting health and rights of celiac persons and their family;

- ameliorating the life quality of these patients;

- funding research about celiac disease and related issues that is carried out at scientific institutions, university and hospitals in Italy;

- completing the education of young researchers in Italy and abroad by offering fellowship awards for further study;

- informing the public and raising awareness of progress in celiac disease research.

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Humanitarian Aid
  • Public Health

Structure

Total number of members that are natural persons: 500
Number of member organisations:
Member organisations (Number of members) :
The organisation has members/is represented in the following country(countries):
  • ITALY
  • MALTA
  • SPAIN
  • UNITED KINGDOM

Complementary information:

Networking

Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.





Financial data

Financial year: 01/2010 - 12/2010
Total budget: 900,000
of which public financing: 900,000
- from European sources:
- Procurement:
- Grants:
- from national sources: 900,000
- from local/regional sources:
from other sources:
- donations:
- contributions from members:
Estimated costs to the organisation directly related to representing interests to EU institutions in that year:
Other (financial) information provided by the organisation:


Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.