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Profile of registrant

Pain Alliance Europe

Identification number in the register: 75559858669-77
Registration date: 25/04/12 17:07:46

The information on this organisation was last modified on 29/03/13 08:57:14
The date of the last annual update was 29/03/13 08:57:14


Registrant : Organisation or self-employed individual

Name/company name: Pain Alliance Europe
Acronym: PAE
Legal status: aisbl
Website address: http://www.pae-eu.eu

Sections

Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Mr  Joop (J.W.C.) van Griensven
Position: President

Permanent person in charge of EU relations

Surname, Name: Mr  Joop (J.W.C.) van Griensven
Position: president

Contact details:

Contact details of organisation's head office: 7 Grensstraat 
P.O. box: 1831
Diegem 1831
BELGIUM
Telephone number: (+32) 027250151
Fax number: (+32) 027206873
Other contact information:

Goals / remit

Goals / remit of the organisation: Missie:Het verbeteren van de kwaliteit van leven van mensen die leven met pijn in Europa.
Wij willen dat doen door middel van aandacht te vestiggen op de problemen rond chronische pijn bij politici, beleidsbepalers en door proberen de gevolgen van chronische pijn in Europa zichtbaar te maken op ieder gebied. Medisch, sociaal en economisch. Dit door onderzoek te initieren en /of zelf op te zetten
The organisation's fields of interests are:
  • European

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 7
Complementary information: 7 zijn de bestuursleden die zich het meest bezig zullen houden met de gnoemde doelstelling en de daaraan gekoppelde taken.

Persons accredited for access to European Parliament premises

First name Surname Start Date End Date
Georgiana Huiban 09/01/14 06/01/15
Johannes Wilhelmus Cornelis van Griensven 08/01/14 02/01/15
Liisa Mikkonen 08/01/14 02/01/15
Maria Soledad Garcia Penalta 09/01/14 02/01/15
Viorica Cursaru 17/09/13 13/09/14

Activities

Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


Launch PAE in het Europees parlement op 29 november 2011. Deze bijeenkomst werd gesponsord door Mvr. Marian Harkin MEP.
Launch website PAE op 28 maart 2012 in het Europees parlement. deze bijeenkomst werd gesponsord door Mr. Jim Higgins MEP.
Geparticipeerd in de Hearing on "Growing old in good Health" op 16 april 2012 onder auspicien van the coordinatiegroep "European year for Active Ageing and Solidarity between generations 2012"

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Employment and Social Affairs
  • Public Health

Structure

Total number of members that are natural persons: 257,699
Number of member organisations: 18
Member organisations (Number of members) :
  • Eurag (1,000 members)
  • Vlaamse Pijn liga (2,000 members)
  • ENFA (40,000 members)
  • FAKS (250 members)
  • Suomen Kipu Ry (1,300 members)
  • AFVD (450 members)
  • Deutsche Smertzliga (4,603 members)
  • Activ Citizin (90,000 members)
  • CPI (843 members)
  • F.E.S. (9,863 members)
  • Pijn Hoop (620 members)
  • Pijn Platform (1,600 members)
  • MER (400 members)
  • ARMA (98,870 members)
  • BackCare (2,500 members)
  • Pain Concern (1,200 members)
  • PPSN (900 members)
  • TNA (1,300 members)
The organisation has members/is represented in the following country(countries):
  • AUSTRIA
  • BELGIUM
  • DENMARK
  • FINLAND
  • FRANCE
  • GERMANY
  • IRELAND
  • ITALY
  • NETHERLANDS
  • ROMANIA
  • UNITED KINGDOM

Complementary information: PAE is een Alliantie van nationale patienten organisaties die betrokken zijn met chronische pijn.

Networking

Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.




PAe is lid van het patienten overleg met de European medicines Agency EMA
Werkt nauw samen met European Federation of IASP Chapters, EFIC
Is deelnemer aan het Societal Impact of Pain, SIP project.

Financial data

Financial year: 01/2012 - 04/2012
Total budget: 100,000
of which public financing:
- from European sources:
- Procurement:
- Grants:
- from national sources:
- from local/regional sources:
from other sources: 100,000
- donations:
- contributions from members: 0
Sponsor geld Pfizer : 25,000
Toegezegd sponsor geld Mundipharma : 25,000
restant budget oprichtingsfonds : 50,000
Estimated costs to the organisation directly related to representing interests to EU institutions in that year: < 50000  €
Other (financial) information provided by the organisation:

PAe dient zijn eerste boekjaar nog te beeindigen. Violgens de statuten gebeurd dat op 31 december 2012

Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.

The organisation has also declared to be bound to the following other Code:
Joop van Griensven, President Pain Alliance Europe