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Profile of registrant

Epilepsy Advocacy Europe

Identification number in the register: 18456627532-50
Registration date: 22/12/11 13:34:14

The information on this organisation was last modified on 25/11/13 12:47:04
The date of the last annual update was 25/11/13 12:47:04

Registrant : Organisation or self-employed individual

Name/company name: Epilepsy Advocacy Europe
Acronym: EAE
Legal status: none
Website address:


Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Ms  Ann Little
Position: Administrator

Permanent person in charge of EU relations

Surname, Name: Ms  Ann Little
Position: Administrator

Contact details:

Contact details of organisation's head office: 11 Prior Hall Blackrock
Dublin 0000
Telephone number: (+353) 12108850
Fax number: (+353) 12108450
Other contact information:

Goals / remit

Goals / remit of the organisation: To encourage increased EU funding for epilepsy research
To promote epilepsy awareness initiatives in Europe
To reduce the stigma associated with epilepsy in Europe
To improve standards of care for all people with epilepsy in Europe
The organisation's fields of interests are:
  • European

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 10
Complementary information:

Persons accredited for access to European Parliament premises

No accredited persons


Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:

Celbbration of European Epilepsy Day in the EU Parliament in February 2013.
Workshop on the Costs and Prevalence of Epilepsy, held in the EU Parliament in February 2013.
European Forum on Epilepsy Research, held in Dublin in May 2013, which was funded under the Irish President of the European Union.

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Public Health


Total number of members that are natural persons: 10
Number of member organisations:
Member organisations (Number of members) :
The organisation has members/is represented in the following country(countries):

Complementary information:


Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.

Financial data

Financial year: 01/2012 - 12/2012
Total budget: 135,000
of which public financing: 100,000
- from European sources:
- Procurement:
- Grants: 100,000
- from national sources:
- from local/regional sources:
from other sources: 35,000
- donations: 35,000
- contributions from members:
Estimated costs to the organisation directly related to representing interests to EU institutions in that year: 100000  € - 150000  €
Other (financial) information provided by the organisation:

Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.