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Profile of registrant

National Patients' Organisation - Bulgaria

Identification number in the register: 499828110213-28
Registration date: 29/11/12 15:08:07

The information on this organisation was last modified on 18/11/13 12:42:02
The date of the last annual update was 18/11/13 12:42:02


Registrant : Organisation or self-employed individual

Name/company name: National Patients' Organisation - Bulgaria
Acronym: NPO
Legal status: Non-governmental organisation
Website address: http://www.npo.bg

Sections

Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Mr  Stanimir Hasardzhiev
Position: Chairperson

Permanent person in charge of EU relations

Surname, Name: Mr  Martin Georgiev
Position: Project Officer, International Relations

Contact details:

Contact details of organisation's head office: 3 Lyuben Karavelov fl.3, office 5
Sofia 1142
BULGARIA
Telephone number: (+359 2) 980 02 77
Fax number: (+) 
Other contact information: The National Patients’ Organization (NPO) was founded in 2010 to act as an umbrella association of patient organizations. NPO is registered under the Law for legal entities as a nonprofit organization carrying out activities for the public’s benefit.

As the largest association of patient NGO organizations in Bulgaria NPO has 85 disease-specific member organizations - 31 full members involved in the most significant diseases and 43 partner organizations in all 28 regions of Bulgaria.

NPO is a full member and an active partner of the EPF (European Patients' Forum) and is partnering with organizations from across the European continent.

NPO has a special status of national representative organization to protect patients' rights, which is determined by Article 86v, par. 1 of the Health Act. This status provides NPO the opportunity to participate in the processes of healthcare policy amendments;

The nationally representative status of NPO has given the organization mandate to be involved in all health-related policy discussions in the country. NPO representatives (Board Members) are present at all discussions of the National Assembly Healthcare Committee, the Ministry of Healthcare and the National Health Insurance Fund.

Goals / remit

Goals / remit of the organisation: 1. Developing and strengthening citizen participation in management and control of the healthcare system.
2. Introducing the principle of equal tripartite partnership between government bodies, organizations of medical professionals, patients' associations in developing and adoptingstrategies, criteria and standards, policies and practices in the healthcare system.
3. Engaging representatives of patients in the management structures within the healthcare system.
4. Development, introduction and strengthening of ethical norms and rules in the work of patient organizations, and their interaction with institutions, media and society.
5. Raise the awareness and the commitment of society and the institutions;
The organisation's fields of interests are:
  • sub-national
  • national
  • European

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 2
Complementary information: Dr. Stanimir Hasardzhiev is the chairperson of the Governing board of the organisation. Stanimir Galinov Hasurdjiev: Chairperson of NPO. He holds a Masters degree in medicine, Medical University – Sofia, Bulgaria and has coordinated many projects and national campaigns.

Martin Georgiev in his capacities of Project Officer for the NPO specialized in international relations is overseeing all administrative and managerial duties assigned to a given collaboration with any international partner.

Persons accredited for access to European Parliament premises

First name Surname Start Date End Date
Stanimir Hasardzhiev 20/05/14 16/05/15

Activities

Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


FIRST CONFERENCE ON HEALTH INEQUALITIES IN THE NEW EU MEMBER STATES: POLICY MAKERS AND PATIENTS – CREATING THE CHANGE, Sofia, 20-21 September
The event convened approximately 100 participants, composed of national policy makers and governmental representatives, EU level policy makers and patient leaders from the 12 new EU member states and the candidate and acceding countries, health professionals, and media.


For the first time this Conference addressed the challenge of health inequalities in the region from the specific perspective of European policy makers, national policy makers and patients from the 12 new EU member states, as well as candidate and acceding countries. The event aimed to outline the commonalities and differences in healthcare in the region, highlighted the positive role of collaboration between countries and within and between patients’ and stakeholder groups, as well as best practices regarding the active role of patients.

„Contemporary trends and social innovation in providing long-term care”

The aim of a project called „ Contemporary trends and social innovation in providing long-term“ is an establishment and future development of a thematic network among the project applicant – European Development Agency Czech Republic, Czech partners (Institute of social services Prague 4, European Innovation Center Prague) and partners from other European countries. The aim of the project is mutual exchange of know-how,comparison and evaluation of currently existing policies in the area of providing long-term care as well as dissemination of foreign know-how among the relevant subjects in the Czech Republic.

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Budget
  • Communication
  • Food Safety
  • Information Society
  • Justice and Fundamental Rights
  • Public Health
  • Regional Policy
  • Research and Technology
  • Trans-European Networks
  • Youth

Structure

Total number of members that are natural persons: 85
Number of member organisations:
Member organisations (Number of members) :
The organisation has members/is represented in the following country(countries):
  • BULGARIA

Complementary information:

Networking

Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.




As from March 2012 we are members of the European Patients'forum

The European Patients’ Forum (EPF) was founded in 2003 to become the collective patients’ voice at EU level, manifesting the solidarity, power and unity of the EU patients’ movement. EPF currently represents 55 member organisations - which are chronic disease specific patient organisations working at European level, and national coalitions of patients organisations. EPF reflects the voice of an estimated 150 million patients affected by various diseases throughout Europe.EPF’s vision for the future is high quality, patient-centred, equitable healthcare throughout the European Union.

Financial data

Financial year: 01/2012 - 12/2012
Total budget: 80,689
of which public financing: 80,689
- from European sources:
- Procurement: 14,041
- Grants: 66,648
- from national sources: 0
- from local/regional sources: 0
from other sources: 0
- donations: 0
- contributions from members: 0
Estimated costs to the organisation directly related to representing interests to EU institutions in that year: 100000  € - 150000  €
Other (financial) information provided by the organisation:


Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.