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Profile of registrant

International Alliance of Patients' Organizations

Identification number in the register: 88461097114-36
Registration date: 10/11/11 12:24:10

The information on this organisation was last modified on 14/10/14 09:12:45
The date of the last annual update was 14/10/14 09:12:45


Registrant : Organisation or self-employed individual

Name/company name: International Alliance of Patients' Organizations
Acronym: IAPO
Legal status: Charity
Website address: http://www.iapo.org.uk

Sections

Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Mrs  Joanna Groves
Position: CEO

Permanent person in charge of EU relations

Surname, Name: Mrs  Joanna Groves
Position: CEO

Contact details:

Contact details of organisation's head office: 49-51 East Road 
London N1 6AH
UNITED KINGDOM
Telephone number: (+44) 20 7250 8280
Fax number: (+44) 20 7250 8285
Other contact information: info@iapo.org.uk

Goals / remit

Goals / remit of the organisation: IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.

Our members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.

IAPO's vision is that patients throughout the world are at the centre of healthcare.

IAPO's mission is to help build patient-centred healthcare worldwide by:

Realizing active partnerships with patients' organizations, maximizing their impact through capacity building
Advocating internationally with a strong patients' voice on relevant aspects of healthcare policy, with the aim of influencing international, regional and national health agendas and policies
Building cross-sector alliances and working collaboratively with like-minded medical and health professionals, policy makers, academics, researchers and industry representatives
The organisation's fields of interests are:
  • global

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 16
Complementary information: 9 Governing Board Members and 7 Staff

Persons accredited for access to European Parliament premises

No accredited persons

Activities

Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


Involved in Pharmacoepidemiological Research on Outcomes pf Theraputics by a European Consortium (PROTECT) Project
Involved in EMA Patients and Consumers Working Party
Involved in EMA Pharmacovigilance Risk Assessment Committee
Involved in IMI Get Real project

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Public Health

Structure

Total number of members that are natural persons: 244
Number of member organisations:
Member organisations (Number of members) :
The organisation has members/is represented in the following country(countries):
  • AUSTRIA
  • BELGIUM
  • BULGARIA
  • CROATIA
  • CYPRUS
  • CZECH REPUBLIC
  • DENMARK
  • ESTONIA
  • FINLAND
  • FRANCE
  • GERMANY
  • GREECE
  • HUNGARY
  • IRELAND
  • ITALY
  • LITUANIA
  • NETHERLANDS
  • POLAND
  • PORTUGAL
  • ROMANIA
  • SLOVAKIA
  • SLOVENIA
  • SPAIN
  • SWEDEN
  • UNITED KINGDOM

  • AFGHANISTAN
  • ARGENTINA
  • AUSTRALIA
  • BOSNIA-HERZEGOVINA
  • BRAZIL
  • CAMEROON
  • CANADA
  • CHILE
  • CHINA
  • COLOMBIA
  • COSTA RICA
  • EGYPT
  • EL SALVADOR
  • GEORGIA
  • GHANA
  • GUATEMALA
  • HONG KONG
  • INDIA
  • ISRAEL
  • JAPAN
  • KENYA
  • KOREA, REPUBLIC OF
  • LIBERIA
  • MACEDONIA, FORMER YUGOSLAV REPUBLIC OF
  • MALAWI
  • MOROCCO
  • NEW ZEALAND
  • NIGERIA
  • PAKISTAN
  • PERU
  • PHILIPPINES
  • RUSSIA, FEDERATION OF
  • SOUTH AFRICA
  • SRI LANKA
  • TAIWAN
  • THAILAND
  • TURKEY
  • UGANDA
  • UKRAINE
  • UNITED STATES
  • VENEZUELA
  • ZAMBIA
Complementary information:

Networking

Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.




In official relations with the World Health Organization
Special Consultative Status with UN ECOSOC
Official partnership with the World Health Professionals Alliance (WHPA)
Memorandums of Understanding with the International Hospital Federation (IHF)and the European Patients Forum (EPF)
Member of the Council of Europe’s Committee of Experts on specific topics related to counterfeit medical products and related crimes
Supporting partner of the WHO Network of Health Promoting Hospitals and Migrant Friendly Hospitals
Member of the informal Steering Group for Patients for Patient Safety, WHO World Alliance for Patient Safety and PFPS Collaborating Organization
Member of Health Policy Forum of the European Commission
Member of Health First Europe (multi-stakeholder medical technology coalition) and represented on the Steering Group
Member of the Medical Technology Group (multi-stakeholder medical technology coalition in the UK)

Financial data

Financial year: 01/2013 - 01/2014
Total budget: 726,522
of which public financing:
- from European sources:
- Procurement:
- Grants:
- from national sources:
- from local/regional sources:
from other sources: 726,522
- donations:
- contributions from members: 17,793
Healthcare Industry Partners : 409,840
Project funding : 290,736
In-kind support : 8,153
Estimated costs to the organisation directly related to representing interests to EU institutions in that year:
Other (financial) information provided by the organisation:

Figures above in US$.

More information can be found at hhtp://www.iapo.org.uk/finances

Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.