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Profile of registrant

Motor Neurone Disease Association

Identification number in the register: 67865376622-75
Registration date: 09/09/11 10:15:58

The information on this organisation was last modified on 13/08/14 10:02:27
The date of the last annual update was 13/08/14 10:02:27

Registrant : Organisation or self-employed individual

Name/company name: Motor Neurone Disease Association
Legal status: Charity
Website address:


Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Mr  Chris James
Position: Director of External Affairs

Permanent person in charge of EU relations

Surname, Name: Mrs  Alison Railton
Position: Public Affairs Manager

Contact details:

Contact details of organisation's head office: 10-15 Notre Dame Mews 
Northampton NN1 2BG
Telephone number: (+01604) 250505
Fax number: (+01604) 624726
Other contact information:

Goals / remit

Goals / remit of the organisation: The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
The organisation's fields of interests are:
  • national

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 15
Complementary information:

Persons accredited for access to European Parliament premises

No accredited persons


Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Research and Technology


Total number of members that are natural persons: 130
Number of member organisations:
Member organisations (Number of members) :
The organisation has members/is represented in the following country(countries):

Complementary information:


Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.

Association of Medical Research Charities

Financial data

Financial year: 02/2010 - 01/2011
Total budget: 14,000,000
of which public financing: 0
- from European sources:
- Procurement: 0
- Grants: 0
- from national sources: 0
- from local/regional sources: 0
from other sources: 14,000,000
- donations: 14,000,000
- contributions from members: 0
Estimated costs to the organisation directly related to representing interests to EU institutions in that year: < 50000  €
Other (financial) information provided by the organisation:

Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.