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    Profile of registrant

International Alliance of Patients' Organizations

Identification number in the register: 88461097114-36
Registration date: 10/11/2011 12:24:10

The information on this entity was last modified on: 14/10/2014 09:12:45
The date of the last annual update was: 14/10/2014 09:12:45

This entry follows the format of the previous Register. It will be changed to the new format when the entity makes the next update.
Next update due latest on: 27/04/2015

    Registrant : Organisation or self-employed individual

International Alliance of Patients' Organizations

IAPO

Charity

    Section of registration

III - Non-governmental organisations

Non-governmental organisations, platforms and networks and similar

    Contact details

East Road, 49-51
London N1 6AH
UNITED KINGDOM

(+44) 20 7250 8280

(+44) 20 7250 8285

info@iapo.org.uk

    Person with legal responsibility

Ms  Joanna Groves

CEO

    Person in charge of EU relations

Ms  Joanna Groves

CEO

    Goals / remit

IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.

Our members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.

IAPO's vision is that patients throughout the world are at the centre of healthcare.

IAPO's mission is to help build patient-centred healthcare worldwide by:

Realizing active partnerships with patients' organizations, maximizing their impact through capacity building
Advocating internationally with a strong patients' voice on relevant aspects of healthcare policy, with the aim of influencing international, regional and national health agendas and policies
Building cross-sector alliances and working collaboratively with like-minded medical and health professionals, policy makers, academics, researchers and industry representatives

global

    Activities

Involved in Pharmacoepidemiological Research on Outcomes pf Theraputics by a European Consortium (PROTECT) Project
Involved in EMA Patients and Consumers Working Party
Involved in EMA Pharmacovigilance Risk Assessment Committee
Involved in IMI Get Real project

    Number of persons involved in the activities described in the box above

16

9 Governing Board Members and 7 Staff

    Persons accredited for access to European Parliament premises

No accredited persons

    Fields of interest

  • Public Health

    Membership and affiliation

244

  • AUSTRIA
  • BELGIUM
  • BULGARIA
  • CROATIA
  • CYPRUS
  • CZECH REPUBLIC
  • DENMARK
  • ESTONIA
  • FINLAND
  • FRANCE
  • GERMANY
  • GREECE
  • HUNGARY
  • IRELAND
  • ITALY
  • LITUANIA
  • NETHERLANDS
  • POLAND
  • PORTUGAL
  • ROMANIA
  • SLOVAKIA
  • SLOVENIA
  • SPAIN
  • SWEDEN
  • UNITED KINGDOM
  • AFGHANISTAN
  • ARGENTINA
  • AUSTRALIA
  • BOSNIA-HERZEGOVINA
  • BRAZIL
  • CAMEROON
  • CANADA
  • CHILE
  • CHINA
  • COLOMBIA
  • COSTA RICA
  • EGYPT
  • EL SALVADOR
  • GEORGIA
  • GHANA
  • GUATEMALA
  • HONG KONG
  • INDIA
  • ISRAEL
  • JAPAN
  • KENYA
  • KOREA, REPUBLIC OF
  • LIBERIA
  • MACEDONIA, FORMER YUGOSLAV REPUBLIC OF
  • MALAWI
  • MOROCCO
  • NEW ZEALAND
  • NIGERIA
  • PAKISTAN
  • PERU
  • PHILIPPINES
  • RUSSIA, FEDERATION OF
  • SOUTH AFRICA
  • SRI LANKA
  • TAIWAN
  • THAILAND
  • TURKEY
  • UGANDA
  • UKRAINE
  • UNITED STATES
  • VENEZUELA
  • ZAMBIA

In official relations with the World Health Organization
Special Consultative Status with UN ECOSOC
Official partnership with the World Health Professionals Alliance (WHPA)
Memorandums of Understanding with the International Hospital Federation (IHF)and the European Patients Forum (EPF)
Member of the Council of Europe’s Committee of Experts on specific topics related to counterfeit medical products and related crimes
Supporting partner of the WHO Network of Health Promoting Hospitals and Migrant Friendly Hospitals
Member of the informal Steering Group for Patients for Patient Safety, WHO World Alliance for Patient Safety and PFPS Collaborating Organization
Member of Health Policy Forum of the European Commission
Member of Health First Europe (multi-stakeholder medical technology coalition) and represented on the Steering Group
Member of the Medical Technology Group (multi-stakeholder medical technology coalition in the UK)

    Financial data

01/2013  -  01/2014

726,522 €

 €

 €

 €

 €

 €

726,522 €

 €

17,793 €

409,840 €

290,736 €

8,153 €

Figures above in US$.

More information can be found at hhtp://www.iapo.org.uk/finances

    Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.