Registrant : Organisation or self-employed individual
| Name/company name: |
Pain Alliance Europe |
| Acronym: |
PAE
|
| Legal status: |
aisbl
|
| Website address: |
http://www.pae-eu.eu
|
Sections
| Section: |
III - Non-governmental organisations |
| and more precisely: |
Non-governmental organisations, platforms and networks and similar |
Person with legal responsibility
| Surname, Name: |
Mr
Joop (J.W.C.) van Griensven
|
| Position: |
President |
Permanent person in charge of EU relations
| Surname, Name: |
Mr
Joop (J.W.C.) van Griensven
|
| Position: |
president |
Contact details:
| Contact details of organisation's head office: |
7 Grensstraat
P.O. box: 1831
Diegem 1831
BELGIUM
|
| Telephone number: |
(+32) 027250151 |
| Fax number: |
(+32) 027206873 |
| Other contact information: |
|
Goals / remit
| Goals / remit of the organisation: |
Missie:Het verbeteren van de kwaliteit van leven van mensen die leven met pijn in Europa.
Wij willen dat doen door middel van aandacht te vestiggen op de problemen rond chronische pijn bij politici, beleidsbepalers en door proberen de gevolgen van chronische pijn in Europa zichtbaar te maken op ieder gebied. Medisch, sociaal en economisch. Dit door onderzoek te initieren en /of zelf op te zetten
|
|
The organisation's fields of interests are:
|
|
Number of persons engaged in activities falling under the scope of the Transparency Register
| Number of persons: |
7
|
|
Complementary information:
|
7 zijn de bestuursleden die zich het meest bezig zullen houden met de gnoemde doelstelling en de daaraan gekoppelde taken.
|
Persons accredited for access to European Parliament premises
Activities
Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:
|
Launch PAE in het Europees parlement op 29 november 2011. Deze bijeenkomst werd gesponsord door Mvr. Marian Harkin MEP.
Launch website PAE op 28 maart 2012 in het Europees parlement. deze bijeenkomst werd gesponsord door Mr. Jim Higgins MEP.
Geparticipeerd in de Hearing on "Growing old in good Health" op 16 april 2012 onder auspicien van the coordinatiegroep "European year for Active Ageing and Solidarity between generations 2012"
|
Fields of interest for e-mail alerts on consultations and roadmaps;
| Fields declared by the organisation: |
- Employment and Social Affairs
- Public Health
|
Structure
| Total number of members that are natural persons: |
257,699 |
| Number of member organisations: |
18 |
| Member organisations (Number of members) : |
- Eurag (1,000 members)
- Vlaamse Pijn liga (2,000 members)
- ENFA (40,000 members)
- FAKS (250 members)
- Suomen Kipu Ry (1,300 members)
- AFVD (450 members)
- Deutsche Smertzliga (4,603 members)
- Activ Citizin (90,000 members)
- CPI (843 members)
- F.E.S. (9,863 members)
- Pijn Hoop (620 members)
- Pijn Platform (1,600 members)
- MER (400 members)
- ARMA (98,870 members)
- BackCare (2,500 members)
- Pain Concern (1,200 members)
- PPSN (900 members)
- TNA (1,300 members)
|
| The organisation has members/is represented in the following country(countries): |
- AUSTRIA
- BELGIUM
- DENMARK
- FINLAND
- FRANCE
- GERMANY
- IRELAND
- ITALY
- NETHERLANDS
- ROMANIA
- UNITED KINGDOM
|
|
Complementary information:
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PAE is een Alliantie van nationale patienten organisaties die betrokken zijn met chronische pijn.
|
Networking
Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.
|
PAe is lid van het patienten overleg met de European medicines Agency EMA
Werkt nauw samen met European Federation of IASP Chapters, EFIC
Is deelnemer aan het Societal Impact of Pain, SIP project.
|
Financial data
| Financial year: |
01/2012
-
04/2012
|
|
Total budget:
|
100,000
|
€
|
|
of which public financing:
|
|
€
|
|
- from European sources:
|
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- Procurement:
|
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€
|
|
- Grants:
|
|
€
|
|
- from national sources:
|
|
€
|
|
- from local/regional sources:
|
|
€
|
|
from other sources: |
100,000
|
€
|
|
- donations:
|
|
€
|
|
- contributions from members:
|
0
|
€
|
|
- Sponsor geld Pfizer :
|
25,000
|
€
|
|
- Toegezegd sponsor geld Mundipharma :
|
25,000
|
€
|
|
- restant budget oprichtingsfonds :
|
50,000
|
€
|
|
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Estimated costs to the organisation directly related to representing interests to EU institutions in that year:
|
< 50000
€
|
Other (financial) information provided by the organisation:
|
PAe dient zijn eerste boekjaar nog te beeindigen. Violgens de statuten gebeurd dat op 31 december 2012
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