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Profile of registrant

ADHD-Europe

Identification number in the register: 51133501289-52
Registration date: 03/03/09 19:17:52

The information on this organisation was last modified on 04/03/14 07:06:00
The date of the last annual update was 04/03/14 07:06:00


Registrant : Organisation or self-employed individual

Name/company name: ADHD-Europe
Acronym: ADHD-Europe
Legal status: international non-profit association
Website address: http://www.adhdeurope.eu

Sections

Section: III - Non-governmental organisations
and more precisely: Non-governmental organisations, platforms and networks and similar

Person with legal responsibility

Surname, Name: Mrs  Andrea Bilbow
Position: President

Permanent person in charge of EU relations

Surname, Name: Mrs  Andrea Bilbow
Position: president

Contact details:

Contact details of organisation's head office: 13 Avenskouter 
Merelbeke 9820
BELGIUM
Telephone number: (+32473) 617279
Fax number: (+) 
Other contact information: Andrea Bilbow, president

Sue Chrysostomou, secretary

Goals / remit

Goals / remit of the organisation: The purpose of ADHD-Europe ivzw is to advance the rights of, and advocate on every level throughout Europe for, people affected by ADH/HD and co-morbid conditions in order to help them fulfill their full potential.
ADHD-Europe shall facilitate the efforts of national and regional AD/HD organisations in Europe to acquire the necessary funding to enable them to implement projects and prodcedures to improve the lives of people with AD/HD.
It shall also promote the dissemination of information and support to those who live, or are in contact, with persons who have AD/HD.
ADHD-Europe shall promote AD/HD awareness and information on a European level, promoting evidence-based treatment and supporting the efforts of its members throughout Europe, in an effort to combat ignorance, stigma and intolerance with regard to AD/HD.
Other fiels of activity shall be in the area of
- public and professional education,
- rights of individuals and their families,
- support for, and participation in, scientific research with particular emphasis on early intervention.
As an information center, ADHD-Europe shall encourage discussion, opinion forming and public debate in the area of mental health care.
The organisation's fields of interests are:
  • national
  • European

Number of persons engaged in activities falling under the scope of the Transparency Register

Number of persons: 9
Complementary information:

Persons accredited for access to European Parliament premises

No accredited persons

Activities

Main EU initiatives covered the year before by activities falling under the scope of the Transparency Register:


Organisation of the AD/HD Awareness Week September 2010

Participation in events such as:
- Advocacy Engagement Workshop (EATG, IFPA and EUFAMI): 16/11/2010
- ADHD Awareness Event "Paying attention: the impact of ADHD in Europe", hosted by Ms Nessa Childers, MEP; our president Myriam Menter spoke for ADHD-Europe: 10/11/2010.
- Challenging Poverty – Creating Hope. Breaking the Cycle of Poverty and Mental Health Problems (Mental Health Europe: 22-23/10/2010
- II Foro Social sobre Salud Mental, Barcelona: 18/10/2010

Fields of interest for e-mail alerts on consultations and roadmaps;

Fields declared by the organisation:
  • Education
  • Employment and Social Affairs
  • Home Affairs
  • Justice and Fundamental Rights
  • Public Health
  • Research and Technology
  • Youth

Structure

Total number of members that are natural persons: 28
Number of member organisations: 26
Member organisations (Number of members) :
  • Adapt Verein (1 members)
  • ADHD-ASC-Dyslexia Family Resources Brussels (1 members)
  • TDAH Belgique (1 members)
  • Hyperactive dreamers (1 members)
  • ADHD Liitto (1 members)
  • Hypersupers TDAH France (1 members)
  • ADHS Deutschland (1 members)
  • O Kiriakos (1 members)
  • ADHD Hellas (1 members)
  • ADHD Hungary (1 members)
  • HADD (1 members)
  • INCADDS (1 members)
  • AIFA Onlus (1 members)
  • Treffpunkt ADHS (1 members)
  • ADHD Family Support Group Malta (1 members)
  • Impuls (1 members)
  • ADANA Foundation (1 members)
  • FEAADAH (1 members)
  • Riksförbundet Attention (1 members)
  • ADHD Norge (1 members)
  • ADHD Denmark (1 members)
  • Hiperaktivite (1 members)
  • ADD-ADHD Cyprus (1 members)
  • ADDISS UK (1 members)
  • AdS.e.V. Germany (1 members)
  • Aandacht ADHD volwassenen (1 members)
The organisation has members/is represented in the following country(countries):
  • AUSTRIA
  • BELGIUM
  • CROATIA
  • CYPRUS
  • DENMARK
  • FINLAND
  • FRANCE
  • GERMANY
  • GREECE
  • HUNGARY
  • IRELAND
  • ITALY
  • LUXEMBOURG
  • MALTA
  • NETHERLANDS
  • SPAIN
  • SWEDEN
  • UNITED KINGDOM

  • NORWAY
Complementary information:

Networking

Information on (i) organisation's membership of any associations/federations/confederations or (ii) relationships to other bodies in formal or informal networks.




- World Federation of ADHD
- Mental Health Europe
- European Public Affairs Directory
- European Patient Group Directory
- Fundamental Rights Platform

Financial data

Financial year: 01/2012 - 12/2012
Total budget: 4,500
of which public financing: 0
- from European sources:
- Procurement:
- Grants:
- from national sources: 0
- from local/regional sources: 0
from other sources: 4,500
- donations: 0
- contributions from members: 4,500
Estimated costs to the organisation directly related to representing interests to EU institutions in that year: < 50000  €
Other (financial) information provided by the organisation:

At the Annual Global Meeting of 2009 the members decided that ADHD-Europe does not accept funding from pharmaceutical companies, but ADHD-Europe will collaborate in the creation of educational materials and projects funded by such companies, provided these are not linked to promotion of a particular product.


Code of conduct

By its registration the organisation has signed the Transparency Register Code of Conduct.