In order to enhance transparency, a number of changes are being introduced on this Register, notably by improving data availability and reliability. It is expected that this process will be completed by 31 December 2016. Until then, information published on individual expert groups and/or on expert group members may still be missing, be inaccurate or incomplete.
Group Details - Commission Expert Group Return to News section
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Members
Name:
Commission expert group on rare diseases (E03015)
Active
Group which operates on a permanent basis
Policy Area:
Public Health
Lead DG:
SANTE - DG Health and Food Safety
Type:
Formal, Permanent
Scope:
Limited
Mission:
To coordinate actions and initiatives to develop health activities and actions to support policy on Rare Diseases.
Task:
Assist the Commission in the preparation of legislative proposals and policy initiatives
Coordinate with Member States, exchange of views
Contact:
SANTE-EXPERT-GROUP-RARE-DISEASES@ec.europa.eu
Publication in RegExp:
07 Feb 2014
Creating Act:
COMMISSION DECISION of 30 July 2013 setting up a Commission expert group on rare diseases and repealing Decision 2009/872/EC, (2013/C 219/04) DECISION of 7 January 2014 on the appointment of the members and their representatives to the Commission expert group on rare diseases set up by Decision (2013/C 219/04)
Link to Website:
Last updated:
13 Jan 2015
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