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Press Release

28 February 2013

Overview of the 26 new research projects, by alphabetical order, with all the participants

Brussels, 28 February 2013

Project Acronym

Full name

Participant Legal Name

Participant Country

EU Contribution (in €)

ADVANCE_HTA

Advancing and strengthening the methodological tools and practices relating to the application and implementation of Health Technology Assessment (HTA)

LONDON SCHOOL OF ECONOMICS AND POLITICAL SCIENCE (Coordinator)

Contact: Panos Kanavos (p.g.kanavos@lse.ac.uk)

United Kingdom

2 999 805

LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE

United Kingdom

ISTITUTO SUPERIORE DI SANITA

Italy

UNIVERSIDAD DE CASTILLA - LA MANCHA

Spain

INSTITUT ZA EKONOMSKA RAZISKOVANJA

Slovenia

TECHNISCHE UNIVERSITAT BERLIN

Germany

ESCUELA ANDALUZA DE SALUD PUBLICA SA

Spain

PAN AMERICAN HEALTH ORGANIZATION

United States

THE EUROPEAN BRAIN COUNCIL AISBL

Belgium

UNIVERSITE PARIS XII VAL DE MARNE

France

NATIONAL INSTITUTE FOR HEALTH AND CLINICAL EXCELLENCE

United Kingdom

AGENCJA OCENY TECHNOLOGII MEDYCZNYCH

Poland

TANDVARDS-OCH LAKEMEDELSFORMANSVERKET

Sweden

BALANCE

Development of a bioartificial liver therapy in acute liver failure

Academisch Medisch Centrum bij de Universiteit van Amsterdam (Coordinator)

Contact: Robert A.F.M. Chamuleau (r.a.chamuleau@amc.uva.nl)

Netherlands

 5 996 180

HEP-ART MEDICAL DEVICES BV

Netherlands

PHARMACELL BV

Netherlands

THE UNIVERSITY OF EDINBURGH

United Kingdom

BIOPREDIC INTERNATIONAL SARL

France

BESTCILIA

Better Experimental Screening and Treatment for Primary Ciliary Dyskinesia

WESTFAELISCHE WILHELMS-UNIVERSITAET MUENSTER (Coordinator)

Contact: Heymut Omran (heymut.omran@ukmuenster.de)

Germany

2 993 675

UNIVERSITAET BERN

Switzerland

CYPRUS UNIVERSITY OF TECHNOLOGY

Cyprus

THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL

United States

REGION HOVEDSTADEN

Denmark

STICHTING VU-VUMC

Netherlands

UNIVERSITY OF SOUTHAMPTON

United Kingdom

UNIVERSITY OF MIAMI

United States

INTERNATIONAL INSTITUTE OF MOLECULAR AND CELL BIOLOGY

Poland

NATIONAL AND KAPODISTRIAN UNIVERSITY OF ATHENS

Greece

EUROPEAN RESEARCH SERVICES GMBH

Germany

ROYAL BROMPTON AND HAREFIELD NATIONAL HEALTH SERVICE TRUST

United Kingdom

CHILD-EU

Orphans Unite: chILD better together –
European Management Platform for Childhood Interstitial Lung Diseases

LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN (Coordinator)

Contact: Matthias Griese (matthias.griese@med.uni-muenchen.de)

Germany

3 000 000

THE UNIVERSITY OF EDINBURGH

United Kingdom

ROYAL BROMPTON AND HAREFIELD NATIONAL HEALTH SERVICE TRUST

United Kingdom

UNIVERSITE PIERRE ET MARIE CURIE - PARIS 6

France

HACETTEPE UNIVERSITESI

Turkey

MEDIZINISCHE HOCHSCHULE HANNOVER

Germany

UNIVERSITAET ULM

Germany

UNIVERSITA DEGLI STUDI DI PADOVA

Italy

UNIVERSITAETSMEDIZIN DER JOHANNES GUTENBERG-UNIVERSITAET MAINZ

Germany

PHILIPPS UNIVERSITAET MARBURG

Germany

DESSCIPHER

To decipher the optimal management of systemic sclerosis

JUSTUS-LIEBIG-UNIVERSITAET GIESSEN (Coordinator)

Contact: Ulf Müller-Ladner (u.mueller-ladner@kerckhoff-klinik.de)

Germany

2 999 835

UNIVERSITAET ZUERICH

Switzerland

UNIVERSITE PARIS DESCARTES

France

UNIVERSITA DEGLI STUDI DI FIRENZE

Italy

SECONDA UNIVERSITÀ DEGLI STUDI DI NAPOLI

Italy

UNIVERSITAET BASEL

Switzerland

UNIVERSITY COLLEGE LONDON

United Kingdom

CHARITE - UNIVERSITAETSMEDIZIN BERLIN

Germany

PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS

Hungary

UNIVERSITY OF LEEDS

United Kingdom

NEW-WIN AG

Switzerland

FEDERATION OF EUROPEAN SCLERODERMA ASSOCIATIONS AISBL

Belgium

IVAN FOELDVARI

Germany

NOVAMEN SAS

France

DEVELOPAKURE

Clinical Development of Nitisinone for Alkaptonuria

ROYAL LIVERPOOL AND BROADGREEN UNIVERSITY HOSPITALS NHS TRUST (Coordinator)

Contact: Lakshminarayan Ranganath (lrang@liverpool.ac.uk)

United Kingdom

5 999 999

THE UNIVERSITY OF LIVERPOOL

United Kingdom

NARODNY USTAV REUMATICKYCH CHOROB-NURCH NIRD NATIONAL INSTITUTE OF RHEUMATIC DISEASES

Slovakia

ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS

France

PSR Group BV

Netherlands

CUDOS BV

Netherlands

NORDIC BIOSCIENCE COMPOUND DEVELOPMENT A/S

Denmark

UNIVERSITA' DEGLI STUDI DI SIENA

Italy

THE ALKAPTONURIA SOCIETY LTD

United Kingdom

SWEDISH ORPHAN BIOVITRUM AB (PUBL)

Sweden

USTAV MOLEKULARNEJ FYZIOLOGIE A GENETIKY SLOVENSKEJ AKADEMIE VIED

Slovakia

ASSOCIATION POUR LA LUTTE CONTRE L'ALCAPTONURIE

France

ASSOCIATION INSTITUT NECKER

France

DRUGSFORD

Preclinical development of drugs and drug delivery technology for the treatment of inherited photoreceptor degeneration

EBERHARD KARLS UNIVERSITAET TUEBINGEN (Coordinator)

Contact: Francois Paquet-Durand (francois.paquet-durand@klinikum.uni-tuebingen.de)

Germany

4 971 428

TO-BBB TECHNOLOGIES BV

Netherlands

BIOLOG LIFE SCIENCE INSTITUTE, FORSCHUNGSLABOR UND BIOCHEMICA- VERTRIEB GMBH

Germany

UNIVERSITA DEGLI STUDI DI MODENA E REGGIO EMILIA

Italy

LUNDS UNIVERSITET

Sweden

DSD-LIFE

Clinical European study on the outcome of surgical and hormonal therapy and psychological intervention in disorders of sex development (DSD)

CHARITE - UNIVERSITAETSMEDIZIN BERLIN (Coordinator)

Contact: Birgit Köhler (Birgit.Koehler@charite.de)

Germany

2 999 956

UNIVERSITAET ZU LUEBECK

Germany

WESTFAELISCHE WILHELMS-UNIVERSITAET MUENSTER

Germany

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

Netherlands

STICHTING VU-VUMC

Netherlands

STICHTING KATHOLIEKE UNIVERSITEIT

Netherlands

THE UNIVERSITY OF BIRMINGHAM

United Kingdom

UNIVERSITY COLLEGE LONDON HOSPITALSNHS FOUNDATION TRUST

United Kingdom

UNIVERSITE PARIS DESCARTES

France

CENTRE HOSPITALIER UNIVERSITAIRE DE TOULOUSE

France

CENTRE HOSPITALIER UNIVERSITAIRE DE MONTPELLIER

France

HOSPICES CIVILS DE LYON

France

LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN

Germany

KAROLINSKA INSTITUTET

Sweden

UNIVERSYTET MEDYCZNY W LODZI.

Poland

UNIVERSITAETSMEDIZIN GOETTINGEN - GEORG-AUGUST-UNIVERSITAET GOETTINGEN - STIFTUNG OEFFENTLICHEN RECHTS

Germany

GABO:MI GESELLSCHAFT FUR ABLAUFORGANISATION:MILLIARIUM MBH & CO KG GAB O

Germany

INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA

Poland

EURENOMICS

European Consortium for High-Throughput Research in Rare Kidney Diseases

UNIVERSITAETSKLINIKUM HEIDELBERG (Coordinator)

Contact: Franz Schaefer (franz.schaefer@med.uni-heidelberg.de)

Germany

11 994 567

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)

France

UNIVERSITAET ZUERICH

Switzerland

ISTITUTO DI RICERCHE FARMACOLOGICHE MARIO NEGRI

Italy

UNIVERSITAIR MEDISCH CENTRUM UTRECHT

Netherlands

UNIVERSITY OF MICHIGAN THE REGENTS OF THE UNIVERSITY OF MICHIGAN

United States

HACETTEPE UNIVERSITESI

Turkey

UNIVERSITY OF BRISTOL

United Kingdom

STICHTING KATHOLIEKE UNIVERSITEIT

Netherlands

THE UNIVERSITY OF MANCHESTER

United Kingdom

UNIVERSITY COLLEGE LONDON

United Kingdom

AGENCIA ESTATAL CONSEJO SUPERIOR DE INVESTIGACIONES CIENTIFICAS

Spain

UNIVERSITY OF NEWCASTLE UPON TYNE

United Kingdom

ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS

France

LEIBNIZ-INSTITUT FUR NATURSTOFF-FORSCHUNG UND INFEKTIONSBIOLOGIE EV HANS KNOELL INSTITUTE

Germany

KATHOLIEKE UNIVERSITEIT LEUVEN

Belgium

OULUN YLIOPISTO

Finland

Genomatix Software GmbH

Germany

METABOMETRIX LTD

United Kingdom

MULTIPLICOM NV

Belgium

PHILOGEN SPA

Italy

PHILOCHEM AG

Switzerland

COMPREHENSIVE BIOMARKER CENTER GMBH

Germany

MOSAIQUES DIAGNOSTICS GMBH

Germany

GABO:MI GESELLSCHAFT FUR ABLAUFORGANISATION:MILLIARIUM MBH & CO KG GAB O

Germany

Karlsruher Institut fuer Technologie

Germany

LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN

Germany

EUROFANCOLEN

Phase I/II Gene Therapy Trial of Fanconi anemia patients with a new Orphan Drug consisting of a lentiviral vector carrying the FANCA gene: A Coordinated International Action

CENTRO DE INVESTIGACIONES ENERGETICAS, MEDIOAMBIENTALES Y TECNOLOGICAS-CIEMAT (Coordinator)

Contact: Juan A. Bueren (juan.bueren@ciemat.es)

Spain

5 380 170

ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS

France

UNIVERSITY COLLEGE LONDON

United Kingdom

SERVICIO MADRILENO DE SALUD

Spain

INSTITUT CATALA DE LA SALUT

Spain

ASSOCIATION GENETHON

France

UNIVERSITE PARIS DIDEROT - PARIS 7

France

UNIVERSITAT AUTONOMA DE BARCELONA

Spain

GATC BIOTECH AG

Germany

DEUTSCHES KREBSFORSCHUNGSZENTRUM

Germany

INNOVACION DESARROLLO Y TRANSFERENCIA DE TECNOLOGIA SA

Spain

FIGHT-HLH

First Targeted  Therapy to FIGHT Hemophagocytic Lymphohistiocytosis (HLH): A novel  approach to HLH

NOVIMMUNE SA (Coordinator)

Contact: Christina de Min (cdemin@novimmune.com)

Switzerland

 5 946 262

LONZA BIOLOGICS PLC

United Kingdom

SINTESI RESEARCH SRL

Italy

OSPEDALE PEDIATRICO BAMBINO GESU

Italy

AZIENDA OSPEDALIERO-UNIVERSITARIA ANNA MEYER

Italy

PATERGRUS BVBA

Belgium

GAPVAC

Glioma actively personalized vaccine consortium

IMMATICS BIOTECHNOLOGIES GMBH (Coordinator)

Contact: Sabrina Kuttruff (kuttruff@immatics.com)

Germany

5 970 450

UNIVERSITY OF GLASGOW

United Kingdom

REGION HOVEDSTADEN

Denmark

BIONTECH AG

Germany

EBERHARD KARLS UNIVERSITAET TUEBINGEN

Germany

UNIVERSITE DE GENEVE

Switzerland

UNIVERSITAETSKLINIKUM HEIDELBERG

Germany

TECHNION - ISRAEL INSTITUTE OF TECHNOLOGY.

Israel

ACADEMISCH ZIEKENHUIS LEIDEN - LEIDS UNIVERSITAIR MEDISCH CENTRUM

Netherlands

INSTITUT CATALA DE LA SALUT

Spain

UNIVERSITY OF SOUTHAMPTON

United Kingdom

IMMUNOLOGISCHE KREBS-THERAPIE EV

Germany

BCN PEPTIDES S.A

Spain

IMPROVED

IMproved Pregnancy Outcomes by Early Detection;
personalized medicine for pregnant women: novel metabolomic and proteomic biomarkers
to detect pre-eclampsia and improve outcome.

UNIVERSITY COLLEGE CORK, NATIONAL UNIVERSITY OF IRELAND, CORK (Coordinator)

Contact: Louise Kenny (l.kenny@ucc.ie)

Ireland

5 995 390

ACCELOPMENT AG

Switzerland

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

Netherlands

KAROLINSKA INSTITUTET

Sweden

UNIVERSITY OF KEELE

United Kingdom

MEDSCINET AB

Sweden

METABOLOMIC DIAGNOSTICS LIMITED

Ireland

PRONOTA NV

Belgium

REGION HOVEDSTADEN

Denmark

RIJKSUNIVERSITEIT GRONINGEN

Netherlands

KLINIKUM DER UNIVERSITAET ZU KOELN

Germany

THE UNIVERSITY OF LIVERPOOL

United Kingdom

MEUSIX

Clinical trial of gene therapy for MPS VI - a severe lysosomal storage disorder

FONDAZIONE TELETHON (Coordinator)

Contact: Alberto Auricchio (auricchio@tigem.it)

Italy

5 995 041

REGENX BIOSCIENCES LLC

United States

GENOSAFE SAS

France

UNIVERSITA DEGLI STUDI DI NAPOLI FEDERICO II.

Italy

HACETTEPE UNIVERSITESI

Turkey

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

Netherlands

UNIVERSITA' DEGLI STUDI DI MILANO-BICOCCA

Italy

INFORMA SRL

Italy

NET4CGD

Gene Therapy for X-linked Chronic Granulomatous Disease (CGD)

ASSOCIATION GENETHON (Coordinator)

Contact: Anne Galy (galy@genethon.fr)

France

 5 999 615

UNIVERSITY COLLEGE LONDON

United Kingdom

CHEMOTHERAPEUTISCHES FORSCHUNGSINSTITUT GEORG-SPEYER-HAUS STIFTUNG

Germany

KLINIKUM DER JOHANN WOLFGANG VON GOETHE UNIVERSITAET

Germany

UNIVERSITAET ZUERICH

Switzerland

ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS

France

GENOSAFE SAS

France

EUROPAEISCHES INSTITUT FUER FORSCHUNG UND ENTWICKLUNG VON TRANSPLANTATIONSSTRATEGIEN GMBH

Germany

DEUTSCHES KREBSFORSCHUNGSZENTRUM

Germany

GATC BIOTECH AG

Germany

FINOVATIS

France

NEUROMICS

Integrated European –omics research project for diagnosis and therapy in rare neuromuscular and neurodegenerative diseases

EBERHARD KARLS UNIVERSITAET TUEBINGEN (Coordinator)

Contact: Olaf RIESS (olaf.riess@med.uni-tuebingen.de)

Germany

 12 000 000

ACADEMISCH ZIEKENHUIS LEIDEN - LEIDS UNIVERSITAIR MEDISCH CENTRUM

Netherlands

KLINIKUM DER UNIVERSITAET ZU KOELN

Germany

UNIVERSITY OF NEWCASTLE UPON TYNE

United Kingdom

DEUTSCHES ZENTRUM FUER NEURODEGENERATIVE ERKRANKUNGEN EV

Germany

UNIVERSITY COLLEGE LONDON

United Kingdom

UNIVERSITE D'AIX MARSEILLE

France

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)

France

VIB

Belgium

UNIVERSITA DEGLI STUDI DI MILANO

Italy

UNIVERSITA DEGLI STUDI DI FERRARA

Italy

THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF CAMBRIDGE

United Kingdom

ISLENSK ERFDAGREINING EHF

Iceland

ARIADNE DIAGNOSTICS LLC

United States

PROFILOMIC SA

France

AGILENT TECHNOLOGIES SWEDEN AB

Sweden

BIO-PRODICT BV

Netherlands

THE UNIVERSITY OF WESTERN AUSTRALIA

Australia

UNIVERSITAETSKLINIKUM FREIBURG

Germany

OPTIMISTIC

Observational Prolonged Trial In Myotonic dystrophy type 1 to Improve QoL-Standards, a Target Identification Collaboration

STICHTING KATHOLIEKE UNIVERSITEIT (Coordinator)

Contact: Baziel Van Engelen (b.vanengelen@neuro.umcn.nl)

Netherlands

 3 000 000

UNIVERSITY OF NEWCASTLE UPON TYNE

United Kingdom

LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN

Germany

ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS

France

UNIVERSITY OF GLASGOW

United Kingdom

UNIVERSITY OF DUNDEE

United Kingdom

CATT-SCI LIMITED

United Kingdom

Concentris Research Management GmbH

Germany

PREVENTROP

New approach to treatment of the blinding disease Retinopathy of Prematurity (ROP)

GOETEBORGS UNIVERSITET (Coordinator)

Contact: Ann Hellström (ann.hellstrom@medfak.gu.se)

Sweden

5 990 236

PREMACURE AB

Sweden

MEDIAGNOST GESELLSCHAFT FUR FORSCHUNG UND HERSTELLUNG VON DIAGNOSTIKA GMBH

Germany

SMERUD MEDICAL RESEARCH INTERNATIONAL AS

Norway

CHILDREN'S HOSPITAL CORPORATION

United States

LUNDS UNIVERSITET

Sweden

KAROLINSKA INSTITUTET

Sweden

ISTITUTO GIANNINA GASLINI

Italy

Academisch Medisch Centrum bij de Universiteit van Amsterdam

Netherlands

THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF CAMBRIDGE

United Kingdom

PROFNAIT

Development of a prophylactic treatment for the prevention of fetal/neonatal alloimmune thrombocytopenia (FNAIT)

PROPHYLIX PHARMA AS (Coordinator)

Contact: Jens Kjeldsen-Kragh  (jkk@prophylixpharma.com)

Norway

5 986 000

REGION NORDJYLLAND (NORTH DENMARK REGION)

Denmark

BIOTEST AG

Germany

DRK-BLUTSPENDEDIENST BADEN-WURTTEMBERG-HESSEN GGMBH

Germany

STOCKHOLMS LAENS LANDSTING

Sweden

LARIX AS

Denmark

LUNDS UNIVERSITET

Sweden

OSLO UNIVERSITETSSYKEHUS HF

Norway

UNIVERSITETET I TROMSOE

Norway

UNIVERSITETSSYKEHUSET NORD-NORGE HF

Norway

SKANE LANS LANDSTING

Sweden

RARE-BESTPRACTICES

Platform for sharing best practices for management of rare diseases

ISTITUTO SUPERIORE DI SANITA (Coordinator)

Contact: Domenica Taruscio (domenica.taruscio@iss.it)

Italy

2 000 000

JAMARAU

United Kingdom

KAROLINSKA INSTITUTET

Sweden

HEALTHCARE IMPROVEMENT SCOTLAND

United Kingdom

LONDON SCHOOL OF ECONOMICS AND POLITICAL SCIENCE

United Kingdom

CONSIGLIO NAZIONALE DELLE RICERCHE

Italy

EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

France

Associazione per la Ricerca sulla Efficacia della Assistenza Sanitaria Centro Cochrane Italiano

Italy

UNIVERSITAETSKLINIKUM FREIBURG

Germany

BULGARIAN ASSOCIATION FOR PROMOTION OF EDUCATION AND SCIENCE

Bulgaria

FUNDACION CANARIA DE INVESTIGACION Y SALUD

Spain

UNIVERSITEIT MAASTRICHT

Netherlands

UNIVERSITY OF NEWCASTLE UPON TYNE

United Kingdom

EUROPEAN ACADEMY OF PAEDIATRICS AISBL

Belgium

INSTITUTO DE SALUD CARLOS III

Spain

RD-CONNECT

RD-CONNECT: An integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research

UNIVERSITY OF NEWCASTLE UPON TYNE (Coordinator)

Contact: Hanns Lochmueller (hanns.Lochmuller@ncl.ac.uk)

United Kingdom

11 997 111

FUNDACIO PRIVADA PARC CIENTIFIC DE BARCELONA

Spain

UNIVERSITE D'AIX MARSEILLE

France

ISTITUTO SUPERIORE DI SANITA

Italy

UPPSALA UNIVERSITET

Sweden

ACADEMISCH ZIEKENHUIS LEIDEN - LEIDS UNIVERSITAIR MEDISCH CENTRUM

Netherlands

FUNDACION CENTRO NACIONAL DE INVESTIGACIONES ONCOLOGICAS CARLOS III

Spain

FONDAZIONE TELETHON

Italy

UNIVERSIDADE DE AVEIRO

Portugal

KAROLINSKA INSTITUTET

Sweden

UNIVERSITY OF PATRAS

Greece

EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

France

INTERACTIVE BIOSOFTWARE SARL

France

FINOVATIS

France

INSTITUTO DE SALUD CARLOS III

Spain

INNOLYST INC CORPORATION PATIENTCROSSROADS

United States

MEDIZINISCHE UNIVERSITAT GRAZ MEDUNI GRAZ

Austria

UNIVERSITE PARIS DIDEROT - PARIS 7

France

UNIVERSITA TA MALTA

Malta

FONDATION MALADIES RARES

France

UNIVERSITAET ULM

Germany

UNIVERSITAET ZUERICH

Switzerland

UNIVERZITA KARLOVA V PRAZE

Czech Republic

NATIONAL INSTITUTE OF HEALTH - OFFICE OF RARE DISEASES RESEARCH

United States

MURDOCH UNIVERSITY

Australia

DEPARTMENT OF HEALTH GOVERNMENT OF WESTERN AUSTRALIA

Australia

EUROPEAN MOLECULAR BIOLOGY LABORATORY

Germany

SKIP-NMD

A phase I/IIa clinical trial in Duchenne muscular dystrophy using
systemically delivered morpholino antisense oligomer to skip exon 53

UNIVERSITY COLLEGE LONDON (Coordinator)

Contact: Francesco Muntoni (f.muntoni@ucl.ac.uk)

United Kingdom

 5 512 424

ASSOCIATION INSTITUT DE MYOLOGIE

France

CONSULTANTS FOR RESEARCH IN IMAGING AND SPECTROSCOPY SCRL

Belgium

UNIVERSITY OF NEWCASTLE UPON TYNE

United Kingdom

UNIVERSITA CATTOLICA DEL SACRO CUORE

Italy

CHARLES RIVER LABORATORIES PRECLINICAL SERVICES EDINBURGH LTD

United Kingdom

ROYAL HOLLOWAY AND BEDFORD NEW COLLEGE

United Kingdom

SYSNAV SAS

France

SAREPTA THERAPEUTICS INC CORPORATION

United States

Great Ormond Street Hospital for Children NHS Trust

United Kingdom

STRONG

European Consortium for the Study of a Topical Treatment of  Neovascular Glaucoma

UNIVERSITAETSMEDIZIN DER JOHANNES GUTENBERG-UNIVERSITAET MAINZ (Coordinator)

Contact: Norbert Pfeiffer (norbert.pfeiffer@unimedizin-mainz.de)

Germany

 5 745 334

AIBILI ASSOCIACAO PARA INVESTIGACAO BIOMEDICA E INNOVACAO EM LUZ E IMAGEM

Portugal

KLINIKUM DER UNIVERSITAET ZU KOELN

Germany

MOORFIELDS EYE HOSPITAL NHS FOUNDATION TRUST

United Kingdom

GENE SIGNAL SAS

France

TECHNO-STAT LIMITED

Israel

AMATSI SAS

France

BUNDESVERBAND GLAUKOM-SELBSTHILFE EV

Germany

SUPPORT-IRDIRC

Support for international rare disease research to serve the IRDiRC objectives

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (Coordinator)

Contact: Segolene Ayme (segolene.ayme@inserm.fr)

France

2 000 000

FONDATION MALADIES RARES

France

THALAMOSS

THALAssaemia MOdular Stratification System for personalized therapy of beta-thalassemia

UNIVERSITA DEGLI STUDI DI FERRARA (Coordinator)

Contact: Roberto Gambari (gam@unife.it)

Italy

 5 020 000

THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH

Cyprus

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

Netherlands

BIOMEDICAL RESEARCH FOUNDATION, ACADEMY OF ATHENS

Greece

CORNELL UNIVERSITY CORPORATION

United States

Masarykova univerzita

Czech Republic

UNIVERSITA DEGLI STUDI DI CAGLIARI

Italy

KING'S COLLEGE LONDON

United Kingdom

GENIKO LAIKO NOSOKOMEIO ATHINON*GENERAL HOSPITAL OF ATHENS LAIKO

Greece

NOVAMECHANICS LIMITED

Cyprus

BIOCEPS

Israel

HARBOUR ANTIBODIES BV

Netherlands

IRBM SCIENCE PARK SPA

Italy

TRAUMAKINE

Interferon-beta treatment of acute respiratory distress syndrome (ARDS)

FARON PHARMACEUTICALS OY (Coordinator)

Contact: Markku Jalkanen (markku.jalkanen@faronpharmaceuticals.com)

Finland

5 997 278

UNIVERSITY COLLEGE LONDON HOSPITALSNHS FOUNDATION TRUST

United Kingdom

UNIVERSITA DEGLI STUDI DI TORINO

Italy

TURUN YLIOPISTO

Finland