11-14 March 2014, Nijmegen, Netherlands
The focus of this 4 day course will be on the moral problems generated by molecular genomics research, and the development and application of new knowledge in clinical genetics. The implications of the development of genomics will probably give rise to new understandings of health and disease, new clinical practices and routines, and shifting responsibilities for scientists, health care providers and patients in preventing, diagnosing or treating disease.
In this course we aim to find answers to questions such as: Which actual ethical issues are connected with genomics? How do ethics germinate within genomic research? What promises does genomics offer and in what ways can it be expected to influence both clinical practice and the health care system? How should we deal with questions that arise when genetic information is stored in biobanks? What are ethical requirements for personalized medicine? How should incidental findings be dealt with? And what about privacy and informed consent? What are the basic philosophical insights into human-technology relations at the core of these ethical issues?
This course is designed with participants from various backgrounds in mind: researchers working in the field of human genetics, biomedical sciences, life sciences, genetics and biology and physicians doing research that has a genetic component but also for professionals from other areas in healthcare such as physicians and nurses, health care administrators, bioethics committee members, professionals working in the pharmaceutical industry, professionals in the areas of ethics, philosophy and theology, and PhD students undertaking courses of study in any of these areas.