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ENCE-CF-LAM-LTX

European Networks of Centres of Expertise for CF (Cystic Fibrosis), LAM (Lymphangioleiomyomatosis), and LTX (Lung Transplantation)

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European Centres of Expertise Networks for rare diseases have been identified by the European Commission as one important area of future activity in the attempt to optimise healthcare for European citizens. Especially in rare diseases the joined forces of experts networking throughout Europe are more likely than isolated national services to meet the patients' needs and expectations. Against this background, ENCE-CF-LAM-LTX aims at designing a blueprint for the implementation of Networks of Centres of Expertise for Rare Diseases - exemplified here by Cystic Fibrosis, Lymphangioleiomyomatosis and Lung Transplantation, but ultimately to be applied to other rare diseases as well.

Coordinator:
Prof. Dr Thomas Wagner
Goethe University Hospital
Frankfurt am Main, Germany
t.wagner@em.uni-frankfurt.de
EC contribution: EUR 857 310
Duration: 24 months
Starting date: 01/04/2009
Project web-site: http://www.ence-plan.eu