100 million European Joint Programme Cofund on Rare Diseases launched to implement a research and innovation pipeline "from bench to bedside"
European Joint Programme on Rare Diseases EJP RD started on 1 January 2019. This new initiative will implement an integrative research and innovation programme for rare diseases to optimise the flow of information and knowledge on rare diseases ensuring rapid translation of research results into clinical applications and uptake in healthcare for the benefit of the patients.
Coordinated by the French National Institute of Health and Medical Research INSERM, the EJP RD will run over five years. It comprises more than 130 entities from 35 countries (including 27 EU Member States, seven Associated Countries and Canada). It brings together resources at the national and European level involving research funders, universities, research organisations, research infrastructures, hospitals and patient organisations.