President, European Patients' Forum
Mr. Anders Olauson is founder, chairman and chief executive officer of the Agrenska Centre in Sweden. His vision behind setting up the Agrenska Centre in 1989 was his profound concern for children affected by rare conditions and their families and the need to move towards a fairer society that embraces and nurtures young patients rather than excludes and isolates them.
In September 2008, Mr. Olauson was appointed by the Swedish government to be a member of the Advisory Council at The National Board of Health and Welfare.
Throughout his career, Mr. Olauson has been recognised for his work with children affected by rare conditions and their families and his commitment to patients' rights. He also works closely with representatives of hospitals, education and trade unions as well as other key players in the field of rare diseases.
Mr. Olauson was instrumental in setting up the European Patients' Forum in 2003, and has been its President since 2005. EPF is an umbrella organisation of 42 European and national coalitions of patients and collectively representing their voice in EU policy debates.
Mr Olauson received HM The King of Sweden's Medal for his valuable contributions in the field of patients' rights in January 2010.
The Patient's role in healthcare innovation ( 3.06MB)
This presentation will describe the rationale behind and added value of involving patients meaningfully in health related research, fostering innovation that is patients' centred and reflects patients ' own unique experience and expertise.
The presentation will draw on the findings and the outcomes of the Value + project on meaningful patients' involvement in EU health related projects and policies, led by the European Patients Forum and involving patients' organisations and leaders from across the European Union.