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Illustration Human genetic testing: what implications ? European Stakeholders' and Citizens' conference on the 25 Recommendations by the European Commission's Expert Group on the ethical, legal and social aspects of genetic testing.
Illustration Charlemagne building - Brussels, Belgium - 6 and 7 May, 2004

 
 

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Photo gallery

Commissioner Busquin conveyed his thanks to the Expert Group that spent a year working on the Report on genetic testing.
Eryl McNally, Member of the European Parliament and chair of the Expert Group, encouraged the European Commission to further engage in such a fruitful process of dialogue.
Director General Achilleas Mitsos welcomed the conference participants and encouraged them to express their opinions.
The opening of the conference. The chair, Mrs Eryl McNally and the Director General for Research, Mr Mitsos.
Hélène Tack and Bill Albert Presenting their testimonies
Thoughtful.
Rainer Gerold, director of “Science and Society” in the Directorate General for Research.
The Director General listening to the testimonies.
Experts of the Group (front row, from left to right: Eryl McNally, Detlef Niese, Henriette Roscam Abbing and Eric Tambuyser)
Bill Albert, chair of the Norfolk Coalition of Disabled People, talking about the impact genetic testing could have on disabled people.
Paul Janiaud (INSERM) making some observations.
John Harris (left) responding to Klaus Lindpainter (right) from Hoffmann La Roche, Octavi Quintana Trias is the chair (centre).
Mrisa Papaluca from EMEA, the European Agency for the Evaluation of Medicinal Products.
Anne Cambon Thomsen, the rapporteur of the Expert Group, commenting on the topic of bio banking.
Detlef Niese (Novartis) of the Expert Group speaking on pharmacogenetics.
Contributing to the discussion.
Jaanus Pikani from Estonia making some comments on biobanks and pharmacogenetics.
From left to right: Hélène Tack, Ségolène Aymé, Per Sorup.
Arthur Caplan (University of Pennsylvania) questioning the need for a new kind of informed consent.
Commissioner Philippe Busquin giving his vision on the future of “Science and Society”.
George Gaskell (London School of Economics) together with Alex Capron of WHO commenting on discrimination.
 Alastair Kent (Genetic Interest Group) speaking about how to avoid discrimination in genetic testing.
Discussion with a neighbour.
Erik Wendel, European Patients Voice, presenting the civil society perspective. Rainer Gerold, director of “Science and Society”, and Ludger Honnefelder, of the University of Bonn, discussing the civil society perspective. Interested Commission staff from “Life and Sciences” listening.
Jean-Jacques Cassiman, University of Leuven, presenting the Group’s perspectives on educational and professional requirements.
Ségolène Aymé, being critical about the concept of genetic exceptionalism. Judith Sandor, University of Budapest, commenting on regulatory issues.
Anne Cambon-Thomsen, the Rapporteur of the Group.
Thoughtful intervention.
Jan Helge Solbakk, the philosopher in the Expert Group. Public debate
 An Baeyens and Isabel Sanz of the “Ethics and Science” unit at the Commission.
Looking at the slides.
Ellettra Ronchi of the OECD Concentrating.
Summarizing on behalf of the stakeholders. From left to right: Domenico Coviello, ICP university Hospital of Milan, Heinrich Schulte, Endokrinologicum Hamburg and Bernadette Moran of the Huntington Disease Association and Genetic Inherited Disorder Organisation. 
The final panel of the stakeholders and international organizations.
The chair of the Group (Eryl McNally) presenting Brigitte Dubois, who organised the conference, with a bouquet.    
Henriette Roscam Abbing (University of Utrecht) presenting the Group’s position on data protection. Spiro Simitis, president of the German Ethics Council, speaking about data protection and privacy issues in genetic testing. Spiro Simitis and Philippe Renaudière, head of unit “Data protection” at the European Commission, listening to the debate. Arthur Caplan commenting on informed consent, Jan Hedge Solbakk, the philosopher of the Expert Group, and Laurence Lwoff of the Council of Europe.
Erik Tambuyzer (Europabio) explaining regulatory issues. Barbara Rhode, head of the “Ethics and Science” unit.    

 
 
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