Publications

Rare diseases

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action10 July 2013

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part I: Overview of rare disease activities in Europe

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action10 July 2013

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part II: Key developments in the field of rare diseases in Europe in 2012

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action10 July 2013

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part III: European Commission activities in the field of rare diseases

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action10 July 2013

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part IV: European Medicines Agency activities and other European activities in the field of rare diseases

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action10 July 2013

2013 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part V: Activities of Member States and other European countries in the field of rare diseases

EUCERD recommendation for a CAVOMP information flow01 September 2012

EUCERD recommendation for a CAVOMP information flow

Recommendations of the EUCERD to the European Commission and Member States on Improving Informed Decisions Based on the Clinical Added Value of Orphan Medicinal Products (CAVOMP) Information Flow (September 2012).

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action20 July 2012

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part I: Overview of rare disease activities in Europe

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action20 July 2012

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part II: Key developments in the field of rare diseases in Europe in 2011

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action20 July 2012

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part III: European Commission activities in the field of rare diseases

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action20 July 2012

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part IV: European Medicines Agency activities and other European activities in the field of rare diseases

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action20 July 2012

2012 Report on the State of the Art of Rare Diseases Activities in Europe - EUCERD Joint Action

Part V: Activities of Member States and other European countries in the field of rare diseases

Successful projects in the field of rare diseases01 September 2011

Successful projects in the field of rare diseases

This brochure presents a range of such successful projects which bring real European added value to national efforts to tackle rare diseases.

2011 Report on the State of the Art of Rare Diseases Activities in Europe - European Union Committee of Experts on Rare Diseases01 August 2011

2011 Report on the State of the Art of Rare Diseases Activities in Europe - European Union Committee of Experts on Rare Diseases

Part III: Activities in EU Member States and other European Countries

2011 Report on the State of the Art of Rare Diseases Activities in Europe - European Union Committee of Experts on Rare Diseases01 August 2011

2011 Report on the State of the Art of Rare Diseases Activities in Europe - European Union Committee of Experts on Rare Diseases

Part I: Overview of Rare Disease Activities in Europe and Key Developments in 2010

RDTF Report: Patient registries for rare diseases 01 June 2011

RDTF Report: Patient registries for rare diseases

Revision June 2011

European collaborative research projects & European clinical networks in the field of rare diseases01 November 2010

European collaborative research projects & European clinical networks in the field of rare diseases

European collaborative research projects funded by DG Research and by E-Rare in the field of rare diseases & European clinical networks funded by DG Sanco and contributing to clinical research in the field of rare diseases

The Voice of 12 000 patients01 February 2009

The Voice of 12 000 patients