Projects - 2006

Year of fundingProject TitleOrganisation
2006Rare Diseases Portal(RD Portal)Institut National de la Santé et de la Recherche Médicale
2006Surveillance of rare cancers in Europe(RARECARE)Istituto Nazionale per lo Studio e la Cura dei Tumori
2006EUROCAT: Surveillance of Congenital Anomalies in Europe(EUROCAT)University of Ulster
2006A European Network of Centres of Reference for Dysmorphology(DYSCERNE)The University of Manchester
2006European Porphyria Network: providing better healthcare for patients and their families(EPNET)Assistance Publique - Hôpitaux de Paris
2006European Centres of Reference Network for Cystic Fibrosis(ECORN-CF)Klinikum der Johann Wolfgang Goethe-Universität
2006European Register on Cushing’s Syndrome(ERCUSYN)Institut de Recerca Endocrinologia de l' Hospital de la Santa Creu i Sant Pau
2006Patient Associations and Alpha1 International Registry(PAAIR)Stichting Alpha1 International Registry
2006Establishment of an European Network of Rare Bleeding Disorders(EN-RBD)Università degli Studi di Milano