Projects - 2006

Year of fundingProject TitleOrganisation
2006European Porphyria Network: providing better healthcare for patients and their families(EPNET)Assistance Publique - Hôpitaux de Paris
2006EUROCAT: Surveillance of Congenital Anomalies in Europe(EUROCAT)University of Ulster
2006A European Network of Centres of Reference for Dysmorphology(DYSCERNE)The University of Manchester
2006European Register on Cushing’s Syndrome(ERCUSYN)Institut de Recerca Endocrinologia de l' Hospital de la Santa Creu i Sant Pau
2006European Centres of Reference Network for Cystic Fibrosis(ECORN-CF)Klinikum der Johann Wolfgang Goethe-Universität
2006Surveillance of rare cancers in Europe(RARECARE)Istituto Nazionale per lo Studio e la Cura dei Tumori
2006Rare Diseases Portal(RD Portal)Institut National de la Santé et de la Recherche Médicale
2006Establishment of an European Network of Rare Bleeding Disorders(EN-RBD)Università degli Studi di Milano
2006Patient Associations and Alpha1 International Registry(PAAIR)Stichting Alpha1 International Registry