Commission expert group on rare diseases

To support EU policy on rare diseases, the Commission expert group on rare diseases may:

  • assist the Commission in the drawing up of legal instruments and policy documents, including guidelines and recommendations; 
  • advise the Commission in the implementation of Union actions and suggest improvements to the measures taken; 
  • advise the Commission in the monitoring, evaluation and dissemination of the results of measures taken at Union and national level; 
  • advise the Commission on international cooperation
  • provide an overview on Union and national policies
  • foster exchanges of relevant experience, policies and practices between the Member States and the various parties involved.