European Commission
Public Health

6th European Conference on Rare Diseases & Orphan Products (ECRD)

Brussels, Belgium

BURQOL-RD (Social economic burden and health related quality of life in patients with rare diseases in Europe) Second Annual Meeting

Brussels, Belgium

Fourth International Meeting on Primary Central Hypoventilation Syndromes

Warsaw, Poland

World Rare Diseases Day

Workshop on Clinical Practice Guidelines on Rare Diseases

Rome

Rare Cancers Conference: Improving the methodology of clinical research

Brussels

ICORD (International Conference on Rare Diseases & Orphan Drugs)

Tokyo (Japan)

4th meeting of the European Union Committee of Experts on Rare Diseases (EUCERD)

Luxembourg

EUCERD/WHO Technical Workshop on the Classification of Genetic Diseases

Luxembourg

6th Eastern European Conference for Rare Diseases and Orphan Drugs and 1st Turkish National Symposium for Rare Disease and Orphan Drugs

Istanbul, Turkey

15th Workshop of the EURORDIS Round Table of Companies “Early Access to Rare Disease Therapies: Compassionate Use and Early Access Programmes”

Paris

4th European Sysmposium on Rare Anaemias

Sofia, Bulgaria

Treat-NMD Global Conference

Geneva, Switzerland

Rare 2011: The Eurobiomed Meetings on Rare Diseases

Montpelier, France

2nd South Caucasian Conference on Rare Diseases and Orphan Drugs

Tbilisi, Georgia

Cluster meeting of projects in the area of rare diseases (Luxembourg, 25 – 26 October 2011)

3rd meeting of the European Union Committee of Experts on Rare Diseases (EUCERD)

Luxembourg

Genodermatoses in the Mediterranean - Together Against Genodermatoses

Paris

Third meeting of the International Rare Disease Research Consortium (IRDiRC)

Montreal (Québec, Canada)

24th Annual European Haemophilia Consortium Conference

Budapest, Hungary

18th Pediatric Rheumatology European Society Congress (PRES2011)

Bruges, Belgium

EUCERD Workshop on a EUCERD Recommendation on Quality Criteria for National centres of expertise for rare diseases

Luxembourg

15th International Workshop on Fragile X and Early-Onset Cognitive Disorders

Berlin

Kick Off Meeting of the EPIRARE (Building Consensus and Synergies for the EU Registration of Rare Disease Patients) Project

Rome

EURORDIS Membership Meeting

Amsterdam, The Netherlands

12th International Conference on Thalassaemia and the Haemoglobinopathies

Antalya, Turkey

2nd All-Russian Conference for Rare Diseases and Rarely Used Medical Technologies

Saint-Petersburg, Russia

EUROPLAN (European Project for Rare Diseases National Plans Development) Final Conference

Roma

World Orphan Drug Congress

Geneva (Switzerland)

11th EPPOSI Workshop on Rare Disease Therapy Development Workshop

Prague, Czech Republic

Congress on congential malformations, their surveillance systems and primary prevention

Roma (Italy)

nEUroped Extended Network Meeting

Bruxelles

3rd European Symposium on Rare Anaemias and 1st Spanish Thalassemia meeting for Patients and Professionals

Madrid, Spain

Fifth Eastern European Conference for Rare Diseases and Orphan Drugs “Rare Diseases in the Focus of Personalized Medicine” and First All-Russian Conference for Rare Diseases and Rarely Used Medical Technologies

Saint Petersburg (Russian Federation)

Retooling the EU Orphan Drug Regulation and US Orphan Drug Act for Better and Faster Development of Rare Disease Therapies

Barcelona (Catalonia, Spain)

Vth European Conference on Rare Diseases

Krakow, Poland

VIth International Conference on Rare Diseases and Orphan Drugs (ICORD 2010)

Buenos Aires, Argentina

European Workshop "Bridging Patients and Researchers to Build the Future Agenda for Rare Disease Research in Europe"

Brussels

Rare Disease Day

International Conference on Rare Diseases and Orphan Drugs

Rome, Italy