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Rare diseases
Past events
22-23 April 2013
Joint EPIRARE/EUCERD-JA workshop on European Platform for Rare Diseases Registries
Brussels (Belgium)
18-19 April 2013
CARE-NMD International Conference on Care in Duchenne muscular dystrophy
Budapest (Hungary)
15-17 April 2013
First Conference of the IRDiRC (International Rare Diseases Research Consortium)
Dublin, Ireland
14-16 February 2013
Spanish International Congress on Rare Diseases and Orphan Medicinal Products
Sevilla, Spain
31 January - 01 February 2013
7th meeting of the EUCERD (European Committee of Experts on Rare Diseases)
Luxembourg
25-27 January 2013
Kick-off Meeting of the RD CONNECT (An integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research) project
Barcelona (Catalonia, Spain)
04-06 November 2012
8th International Society for Newborn Screening European Regional Meeting
Budapest, Hungary
25-26 October 2012
3rd Pan-European Conference on Haemglobinopathies and Rare Anaemias: Towards the Future
Limassol, Cyprus
28 September 2012
EURORDIS Round Table of Companies - The value of orphan drugs: efficient for the patients, useful to society?
Barcelona, Spain
27-28 September 2012
EUCERD/Eurogentest Workshop on cross-referencing of terminologies
Paris, France
26 September 2012
IPOPI EU PID Forum on National Plans for Rare Diseases
European Parliament, Brussels
25-26 September 2012
EUCERD Workshop on European Reference Networks for Rare Diseases
Newcastle, England, United Kingdom
25-26 September 2012
Executive Committee of the International Rare Disease Research Consortium (IRDiRC)
Paris, France
10-11 September 2012
EUROPLAN 2012-2015: Inception Workshop on National Planning for Rare Diseases
Rome, Italy
21-23 June 2012
First Eurasian Conference on Rare Diseases & Orphan Products and Third All-Russian Conference for Rare Diseases and Rarely Used Medical Technologies
Moscow, Russia
19-20 June 2012
5th meeting of the EUCERD (European Union Committe of Experts on Rare Diseases)
Luxembourg
22 May 2012
BURQOL-RD (Social economic burden and health related quality of life in patients with rare diseases in Europe) Second Annual Meeting
Brussels, Belgium
13-14 April 2012
Fourth International Meeting on Primary Central Hypoventilation Syndromes
Warsaw, Poland
29 February 2012
World Rare Diseases Day
26-27 January 2012
4th meeting of the European Union Committee of Experts on Rare Diseases (EUCERD)
Luxembourg
24-27 November 2011
6th Eastern European Conference for Rare Diseases and Orphan Drugs and 1st Turkish National Symposium for Rare Disease and Orphan Drugs
Istanbul, Turkey
21 November 2011
15th Workshop of the EURORDIS Round Table of Companies “Early Access to Rare Disease Therapies: Compassionate Use and Early Access Programmes”
Paris
27-28 October 2011
2nd South Caucasian Conference on Rare Diseases and Orphan Drugs
Tbilisi, Georgia
25-26 October 2011
Cluster meeting of projects in the area of rare diseases (Luxembourg, 25 – 26 October 2011)
24-25 October 2011
3rd meeting of the European Union Committee of Experts on Rare Diseases (EUCERD)
Luxembourg
08-09 October 2011
Third meeting of the International Rare Disease Research Consortium (IRDiRC)
Montreal (Québec, Canada)
14-18 September 2011
18th Pediatric Rheumatology European Society Congress (PRES2011)
Bruges, Belgium
08 September 2011
EUCERD Workshop on a EUCERD Recommendation on Quality Criteria for National centres of expertise for rare diseases
Luxembourg
04-07 September 2011
15th International Workshop on Fragile X and Early-Onset Cognitive Disorders
Berlin
11-14 May 2011
12th International Conference on Thalassaemia and the Haemoglobinopathies
Antalya, Turkey
21-22 April 2011
2nd All-Russian Conference for Rare Diseases and Rarely Used Medical Technologies
Saint-Petersburg, Russia
24-25 February 2011
EUROPLAN (European Project for Rare Diseases National Plans Development) Final Conference
Roma
29-30 November 2010
11th EPPOSI Workshop on Rare Disease Therapy Development Workshop
Prague, Czech Republic
26 November 2010
Congress on congential malformations, their surveillance systems and primary prevention
Roma (Italy)
19-20 November 2010
3rd European Symposium on Rare Anaemias and 1st Spanish Thalassemia meeting for Patients and Professionals
Madrid, Spain
01-03 July 2010
Fifth Eastern European Conference for Rare Diseases and Orphan Drugs “Rare Diseases in the Focus of Personalized Medicine” and First All-Russian Conference for Rare Diseases and Rarely Used Medical Technologies
Saint Petersburg (Russian Federation)
18 June 2010
Retooling the EU Orphan Drug Regulation and US Orphan Drug Act for Better and Faster Development of Rare Disease Therapies
Barcelona (Catalonia, Spain)
18 March 2010
VIth International Conference on Rare Diseases and Orphan Drugs (ICORD 2010)
Buenos Aires, Argentina
01 March 2010
European Workshop "Bridging Patients and Researchers to Build the Future Agenda for Rare Disease Research in Europe"
Brussels
28 February 2010