13-15 May 2010	5th European Conference on Rare Diseases Krakow, Poland
21-24 April 2010	18th International Workshop on Vascular Anomalies Brussels, Belgium
18-20 March 2010	VIth International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) Buenos Aires, Argentina
16-17 March 2010	PPTA’s 2010 International Plasma Protein Congress Berlin
13-14 March 2010	2nd Pan-European Conference on Haemoglobinopathies Berlin, Germany
26 February 2010 (tbc)	1st meeting of the European Union Committee of Experts on Rare Diseases Brussels
9 December 2009	Patient mobility: a solution for Haemophilia? Who/What should travel? Patients, clinicians, expertise and information on state of the art care Brussels
1-2 December 2009	International Conference on Myasthenia Paris, France
27-29 November 2009	Encuentro Nacional de Enfermedades Raras Totana, Spain
17-19 November, 2009	TREAT-NMD/NIH International Conference Brussels, Belgium
29-30 October 2009	Maladies rares et orphelines, entreprises et laboratoires au cœur de l’innovation Montpellier, France
26-27 October 2009	EPPOSI: 10th Workshop on Partnering for Rare Disease Therapy Development Brussels, Belgium
23 October 2009	EU Task Force on Rare Diseases Luxembourg
20 October 2009	Launching Conference of the Strategy on Rare Diseases of the Spanish National Health System Madrid, Spain
9-10 October 2009	Periodic fever syndromes and other autoinflammatory diseases Ljubljana, Slovenia
17-18 September 2009	European Working Group on Rett Syndrome – 2009 Meeting Stresa, Italy
23 July 2009	Cornelia de Lange Syndrome World Conference Brighton, UK
26-27 June 2009	2nd ELA Research Foundation Congress - Therapeutic challenge in white matter diseases Luxembourg
26-27 June 2009	Balkan Congress for Rare Diseases Cluj- Napoca, Romania
19 June 2009	Eurordis Round Table of Companies "EURORDIS Strategy 2010-2015 and Partnership with ERTC Members" Barcelona, Catalonia, Spain
13-14 June 2009	The Fourth Eastern European Conference on Rare Diseases and Orphan Drugs Plovdiv, Bulgaria
10 June 2009	10th European Symposium: Prevention of Congenital Anomalies Bilbao, Basque Country, Spain
5-7 June 2009	First European Congress on Rett Syndrome Milan, Italy
27-31 May 2009	8th Hereditary Hemorrhagic Telangiectasia - International Scientific Conference Santander, Spain
21-23 May 2009	Recent standards in diagnosis, treatment and medical care for some rare neuromuscular diseases Kharkiv, Ukrania
21 May 2009	Treatment of Rare Diseases and EU legislation Parliament of the Czech Republic, Prague
14-17 May 2009	8th Balkan Meeting on Human Genetics Cavtat, Croatia
8-9 May 2009	Eurordis Membership Meeting 2009 Athens, Greece
30 April 2009	European Union Task Force on Rare Diseases Luxembourg
26-28 April 2009	The 6th ISNS European Regional meeting on neonatal screening Prague, Czech Republic
20-21 March 2009	3rd International Congress on Rare Pulmonary Diseases and Orphan Drugs Milan, Italy
28 February 2009	Second International Rare Disease Day Everywhere!
23-25 February 2009	International Conference on Rare Diseases and Orphan Drugs in Rome (ICORD 2009) Rome, Italy
19-21 February 2009	IV Congress on Orphan Drugs and Rare Diseases Sevilla, Spain
16-18 November 2008	International Symposium on Rare Diseases: Inherited Neuromuscular Diseases: Translation from Pathomechanisms to Therapies Valencia, Spain
18 November 2008	Strategies and national plans for rare diseases in Europe: towards common recommendations Paris, France
6 November 2008	Rare Tumors in Europe: Challenges and Solutions Brussels, Belgium
1-6 November 2008	ESF-UB Conference in Biomedicine: Biobanks Sant Feliu de Guixols, Spain
27-31 October 2008	International Congress on Rare Diseases and Orphan Drugs Rome, Italy
16-17 October 2008	EPPOSI 9th Workshop on Partnering for Rare Diseases Therapy Development Paris, France
15-18 October 2008	Tenth International Meeting on Osteogenesis Imperfecta Ghent, Belgium
10-13 October 2008	6th World Rett Syndrome Congress Paris (France)
10 October 2008	Rare Diseases and Child Disability Paris (France)
3-5 October 2008	Rare Diseases Warsaw 2008: MPS and Rare Diseases Conference Warsaw, Poland
1-4 October 2008	11th European Health Forum Values in Health – From visions to reality: Rare Diseases Gastein, Austria
12-14 September 2008	The 38th Annual General Meeting of EAMDA (the European Alliance of Neuromuscular Disorders Associations) Sofia, Bulgaria
12-14 September 2008	21st Annual Conference of the European Haemophilia Consortium Dublin
3-5 September 2008	6th International Conference on Frontotemporal Dementia Rotterdam, The Netherlands
3 September 2008	Inaugural Birt Hogg Dube Syndrome Symposium Roskilde, Denmark
28-30 August 2008	International Society for Genetic Eye Diseases and Retinoblastoma Meeting 2008 Strasbourg, France
1st July 2008	EHC Roundtable of stakeholders: Is there a need for bleeding disorders centres of excellence in Europe? Brussels, European Parliament
27-28 June 2008	5th International Cystinosis Conference Dublin (Ireland)
19-20 June 2008	European Symposium "Ethics and paediatric clinical research in Europe" Marseille (France)
11-14 June 2008	31st European Cystic Fibrosis Conference Prague (Czech Republic)
31 May - 3 June 2008	40th European Human Genetics Conference Barcelona (Catalonia, Spain)
29 May - 1 June 2008	Translational Research in Paediatric Rheumatology (TRiPR) Conference Genoa, Italy
20-22 May 2008	International Conference on Rare Diseases and Orphan Drugs in Washington DC (ICORD 2008) Washington DC (USA)
16-17 May 2008	First International Meeting of Moebius Syndrome València (Spain)
16-17 May 2008	Eurordis Membership Meeting Copenhagen
14-15 April 2008	Workshop on Clinical Trials and Natural History of Rare Diseases Madrid
4-8 April 2008	Fifth International Congress on FMF and Systemic Autoinflammatory Diseases Rome, Italy
4-5 April 2008	Second Congress of the Fragile X Europe Association Torino, Italy
27-29 March 2008	Rare Disease Congress in Latin America - ER2008LA Buenos Aires, Argentina
13-14 March 2008	2nd European Symposium on Rare Anaemias Nicosia (Cyprus)
8-12 March 2008	ESF-UB Conference in Biomedicine: Rare Diseases: Channels and Transporters Sant Feliu de Guixols (Spain)
4 March 2008	Public Hearing on Rare Diseases European Parliament, Brussels
1-2 March 2008	Third Eastern European Conference on Rare Diseases and Orphan Drugs “Rare Diseases – Prevention, Diagnosis, Treatement" Plovdiv, Bulgaria
29 February 2008	First European Rare Diseases Day
28 February 2008	EU Task Force on Rare Diseases
23 January 2008	Plasma Products in the Treatment of Rare Diseases European Parliament, Brussels
7 December 2007	Lowe Syndrome Second International Symposium London, United Kingdom
27-28 November 2007	Fourth European Conference on Rare Diseases Lisbon, Portugal
5-8 November 2007	Annual International Conference on Rare Diseases and Orphan Drugs Roma, Italy
2-3 November 2007	Rare Diseases - from Identification of Needs to Establishing Priorities Zalau, Romania
23 October 2007	EU Task Force on Rare Diseases Luxembourg
18-19 October 2007	8th EPPOSI Partnering Workshop on Orphan Drugs Copenhagen
27-30 September 2007	16th ESGLD - European Study Group on Lysosomal Diseases Perugia, Italy
13-17 September 2007	The IV Conference on Stem Cell Gene Therapy Halkidiki, Thessaloniki, Greece
13 September 2007	European Union Conference on Research on Rare Diseases Brussels, Belgium
9-12 September 2007	World Congress on Huntington's Disease Dresden, Germany
5 September 2007	Conference on Clinical Research for Rare Diseases: Opportunities, Challenges, and Solutions Washington, USA
13-14 July 2007	European Workshop on Centres of Reference for Rare Diseases Prague, Czech Republic
21-24 June 2007	6th International Prader-Willi syndrome conference / 1st Romanian Prader-Willi syndrome and Rare Diseases conference Cluj-Napoca, Romania
24-27 May 2007	International Mucopolysaccharidosis (MPS) Network Conference Serock, Poland
18-20 May 2007	Building a Network for Haemophilia Care Parma, Italy
4-5 May 2007	EURORDIS’ 10 year anniversary and Annual Membership Meeting Paris, France
26-29 April 2007	12th European Conference on Neurofibromatosis Lisbon, Portugal
22-25 March 2007	Fifth international conference of the European Chromosome 11q Network Hohenwart-Pforzheim, Germany
8 March 2007	First European Symposium on Rare Anaemias Barcelona, Spain
15 February 2007	Orphanet Celebrates its 10th Birthday Ministry of Health, Paris, France
14-17 February 2007	III International Congres on Orphan Drugs and Rare Diseases Sevilla, Spain
9-12 November 2006	XIV Annual Congress of the European Society of Gene Therapy Athens, Greece
26-27 October 2006	7th EPPOSI Workshop on Partnering for Rare Disease Therapy Development Madrid, Spain
4-7 October 2006	IXth Meeting of the International Patients Organisation For Primary Immunodeficiencies Budapest, Hungary
27 September 2006	Meeting of the European Federation of Associations of Patients with Hemochromatosis Barcelona, Spain
18-19 September 2006	International Meeting on Rare Diseases and Orphan drugs Rome, Italy
8-9 September 2006	Second Eastern European Conference on Rare Diseases and Orphan Drugs Plovdiv, Bulgaria
9-12 July 2006	Fourth European Meeting on Elastin Lyon, France
19 - 20 June 2006	EU Consensus Conference on Primary Immunodeficiencies Frankfurt am Main, Germany
31 May - 3 June 2006	11th International Human Genome Meeting Helsinki
05-06 May 2006	Eurordis Membership Meeting 2006 Berlin
21-22 June 2005	European Conference on Rare Diseases 2005 From difficulties to solutions for the rare disease community Chamber of commerce of Luxembourg

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Meetings of the Task Force on Rare Diseases