European Reference Networks
Call for applications 2016
The first call for interest to establish a European Reference Network (ERN) and the call for grants for ERN are now closed.
Call 2016 outcome
- 24 applications received 370 hospitals and almost 1000 highly specialised units involved
- 26 Countries (25 EU Member States + Norway) involved
Approval of applicants: First wave of the 2016 Call
On 15 December 2016 the European Reference Network Board of Member States approved the following ERNs:
|1. BOND||European Reference Network on Rare Bone Disorders|
|2. CRANIO||European Reference Network on Rare craniofacial anomalies and ENT disorders|
|3. Endo-ERN||European Reference Network on Rare Endocrine Conditions|
|4. EpiCARE||European Reference Network on Rare and Complex Epilepsies|
|5. ERKNet||European Rare Kidney Diseases Reference Network|
|6. ERN-RND||European Reference Network on Rare Neurological Diseases|
|7. ERNICA||European Reference Network on Rare inherited and congenital anomalies|
|8. ERN-LUNG||European Reference Network on Rare Respiratory Diseases|
|9. ERN-Skin||European Reference Network on Rare and Undiagnosed Skin Disorders|
|10. EURACAN||European Reference Network on Rare Adult Cancers (solid tumors)|
|11. EuroBloodNet||European Reference Network on Rare Hematological Diseases|
|12. EURO-NMD||European Reference Network for Rare Neuromuscular Diseases|
|13. ERN-EYE||European Reference Network on Rare Eye Diseases|
|14. ERN GENTURIS||European Reference Network on GENetic TUmour RIsk Syndromes|
|15. GUARD-HEART||Gateway to Uncommon And Rare Diseases of the HEART|
|16. ITHACA||European Reference Network on Rare Congenital Malformations and Rare Intellectual Disability|
|17. MetabERN||European Reference Network for Rare Hereditary Metabolic Disorders|
|18. PaedCan-ERN||European Reference Network for Paediatric Cancer (haemato-oncology)|
|19. RARE-LIVER||European Reference Network on Rare Hepatological Diseases|
|20. ReCONNET||Rare Connective Tissue and Musculoskeletal Diseases Network|
|21. RITA||Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases Network|
|22. TRANSCHILD||European Reference Network on Transplantation in Children (incl. HSCT, heart, kidney, liver, intestinal, lung andmultiorgan)|
|23. VASCern||European Reference Network on Rare Multisystemic Vascular Diseases|
The next round of approvals, for the second wave of the 2016 call for interest to become a ERN, should follow in February.
Call 2016 assessment process
Any group of at least 10 healthcare providers established in at least 8 Member States which fulfill the legal provision established in the ERN legislation , were invited to submit an application for establishing an ERN in a given field of expertise by the deadline of 22 July 2016.
Only ERN proposals positively assessed according to the legislation and the Assessment Manual for ERNs, and approved by the ERN Board of Member States are eligible for a grant.
The European Commission has already completed the first eligibility check of the applications.
The Independent Assessment Body (IAB) contracted to carry out the technical assessment of the proposals received has already started working.
The final decision on the approval of the ERN proposal will be taken by the ERN Board of Member States (BoMS).