European Reference Networks

Call for applications 2016

 
 

The first call for interest to establish a European Reference Network (ERN) and the call for grants for ERN are now closed.

Call 2016 outcome

  • 24 applications received 370 hospitals and almost 1000 highly specialised units involved
  • 26 Countries (25 EU Member States + Norway) involved

Approval of applicants: First wave of the 2016 Call

On 15 December 2016 the European Reference Network Board of Member States approved the following ERNs:
 

1. BOND European Reference Network on Rare Bone Disorders
2. CRANIO European Reference Network on Rare craniofacial anomalies and ENT disorders
3. Endo-ERN European Reference Network on Rare Endocrine Conditions
4. EpiCARE European Reference Network on Rare and Complex Epilepsies
5. ERKNet European Rare Kidney Diseases Reference Network
6. ERN-RND European Reference Network on Rare Neurological Diseases
7. ERNICA  European Reference Network on Rare inherited and congenital anomalies
8. ERN-LUNG European Reference Network on Rare Respiratory Diseases
9. ERN-Skin European Reference Network on Rare and Undiagnosed Skin Disorders
10. EURACAN European Reference Network on Rare Adult Cancers (solid tumors)
11. EuroBloodNet  European Reference Network on Rare Hematological Diseases
12. EURO-NMD European Reference Network for Rare Neuromuscular Diseases
13. ERN-EYE European Reference Network on Rare Eye Diseases
14. ERN GENTURIS European Reference Network on GENetic TUmour RIsk Syndromes
15. GUARD-HEART Gateway to Uncommon And Rare Diseases of the HEART
16. ITHACA  European Reference Network on Rare Congenital Malformations and Rare Intellectual Disability
17. MetabERN  European Reference Network for Rare Hereditary Metabolic Disorders
18. PaedCan-ERN European Reference Network for Paediatric Cancer (haemato-oncology)
19. RARE-LIVER European Reference Network on Rare Hepatological Diseases
20. ReCONNET  Rare Connective Tissue and Musculoskeletal Diseases Network
21. RITA  Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases Network
22. TRANSCHILD  European Reference Network on Transplantation in Children (incl. HSCT, heart, kidney, liver, intestinal, lung andmultiorgan)
23. VASCern  European Reference Network on Rare Multisystemic Vascular Diseases


The next round of approvals, for the second wave of the 2016 call for interest to become a ERN, should follow in February.

Call 2016 assessment process

Any group of at least 10 healthcare providers established in at least 8 Member States which fulfill the legal provision established in the ERN legislation , were invited to submit an application for establishing an ERN in a given field of expertise by the deadline of 22 July 2016.

Only ERN proposals positively assessed according to the legislation and the Assessment Manual for ERNs, and approved by the ERN Board of Member States  are eligible for a grant.

The European Commission has already completed the first eligibility check of the applications.

The Independent Assessment Body (IAB) contracted to carry out the technical assessment of the proposals received has already started working.

The final decision on the approval of the ERN proposal will be taken by the ERN Board of Member States (BoMS).