Directorate General Health & Consumers
European Reference Networks
European Reference Network Conference
Brussels, 23 June 2014
Directive 2011/24/EU on the application of patients' rights in cross-border healthcare strengthens cooperation between highly specialised healthcare providers across the European Union by the establishment of a system of European Reference Networks.
Establishing European Reference Networks of highly specialised healthcare providers represents a clear added value for the EU and will help to provide affordable, high-quality and cost-effective healthcare to patients with conditions requiring a particular concentration of resources or expertise, and to improve these patients' access to the best possible expertise and care available in the EU for their condition.
The legal framework, as foreseen in the Directive 2011/24/EU, was adopted on 10th of March by the Commission, after an exhaustive consultation process with national authorities, experts, and stakeholders, providing for the criteria and conditions that Networks and its Members shall fulfil and for the establishment and evaluation of future Networks.
DG SANCO organised a conference on European Reference Network on 23rd of June in Brussels which brought together highly specialised healthcare providers, experts, national authorities, decision–makers, and independent bodies with experience in the assessment and evaluation of healthcare providers.
The aim of the conference was to discuss the state of play on the organisation of highly specialised networks and their members across the EU and to look into the next steps of the deployment process, in preparation for the forthcoming call for European Reference Networks in 2015.
The video recording of the morning Plenary Session and the Breakout Session A "Highly specialised healthcare for low prevalence, rare and complex diseases" is available below:
Only Connect: What ICT networks can do for society?
Director-General for DG CONNECT: Communications Networks, Content and Technology
Complex Systems and Networks
Institute for Biocomputation and Physics of Complex Systems (BIFI). University of Zaragoza
Past, present and future of centres of expertise and European reference Networks
Clinical Institute of Neurology, Medical University of Vienna, Austria
The importance of sharing expertise and the challenge to manage the exchange of knowledge in highly specialised healthcare.
Josep Maria Borras
Partnership for Action Against Cancer (EPAAC)
Research priorities and Networks
Irene Norstedt and Philippe Cupers
European Commission - DG Health and Consumers
The ERN model: Criteria and conditions for Networks and providers. Implementation of Networks: organisation framework
European Commission - DG Research and Innovation
The view of the professionals
European Union of Medical Specialists
The view of the managers
European Health Management Association
The view of the patients
European Patients Forum
Specialised Commissioning Services in the NHS of England
Specialised Commissioning Team, NHS England UK
National Specialized Medical Care (NSMC) in Sweden
National Board of Health and Welfare of Sweden
The Portuguese model of Centres of Reference
Ministry of Health of Portugal
The Paediatric Cancer network-Expor-Net
The refractary- epilepsy Network
European Network for Rare and Congenital Anaemias: ENERCA
Joan Lluis Vives Corron
EURORDIS Photo Contest 2013
Director for European Public Affairs, EURORDIS
Enhancing medical professionalism, interdisciplinarity and quality of health care through clinical practice guideline development
German Association of the Scientific Medical Societies´Institute of Medical Knowledge-Management (AWMF-IMWi) at Philipps-University, Marburg. Germany
Establishment of clinical criteria: Best Practices, clinical guidelines and patient pathways
Clinical Pathways NICE. United Kingdom
Assessment of the use of EU clinical guidelines in a Network environment (experiences)
The Lombardy Cancer Network (ROL). Italy
Recognition and approval of highly specialised hospital services in Denmark
Danish Health and Medicines Authority. Denmark
The healthcare accreditation model of France
Accreditation of Hospitals in Poland
National Centre for Quality Assessment in Health Care (NCQA) Poland
Independent assessment/accreditation models
Accreditation Canada International
Should you have any further questions on the event, please send an eamil to: email@example.com.