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2012

Prémio de Jornalismo da UE no domínio da saúde

É jornalista e interessa-se por questões de saúde?

Artigos : Doenças raras

Alen can finally move his little arms: article by Meta Černoga »pdf
EU Health Prize for Journalists, National winner 2012 for Slovenia

The article presents the story of Alen, a kid who was unable to lift, bend his arms or use his hands unaided.

When lupus sinks its teeth into the body, it never lets its victim go: article by Marcela Fuknová »pdf
EU Health Prize for Journalists, National winner 2012 for the Slovak Republic

The article focuses its attention on the lupus disease, called this way because the wounds left on the skin are similar to wolf bites.

Black balls: article by Tomasz Przybysz-Przybyszewski »pdf
EU Health Prize for Journalists, National winner 2012 for Poland

The article underlines the difficulties that Polish patients affected by rare diseases face when dealing with the national health system.

A disease with no one right course of treatment: article by Ellen de Visser »pdf
EU Health Prize for Journalists, National winner 2012 for the Netherlands

The article presents the difficult situation that patients suffering from Cystic Fibrosis have to face.

Medical geneticist: A rare disease is a real disaster in Estonia. People don’t always get the treatment they need, as Estonia is such a small country: article by Silja Paavle »pdf
EU Health Prize for Journalists, National winner 2012 for Estonia

The article demonstrates the difficulties of having a rare disease in such a small country as Estonia.

Seltenes sichtbar machen, by Dani Schumacher»pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

Luxemburger Wort. Initiativen der EU-Kommission im Kampf gegen seltene Krankheiten.

Factor VIII, by Jana Kollarova»pdf
EU Health Prize for Journalists, National winner 2011 for Slovak Republic

When Blanka Halčinová was growing up, the life of haemophiliacs was hospitals, transfusions and damaged joints. Her sons inject the coagulation factor themselves.

The curse of San Bartolomé, by Senne Starckx»pdf
EU Health Prize for Journalists, National winner 2011 for Belgium

In a remote village on Gran Canaria, over the course of several decades, dozens of children died from sudden cardiac arrest.

La UE crea un comité para estudiar las enfermedades raras en red, by Mayka Sànchez»pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

El País. Las enfermedades raras son las que afectan a menos de cinco personas por cada 100.000 habitantes.

Vienisiams pagalbos ranka, by Aisté Masionyté»pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

Sveikata ir vaistai - Lietuvos zinios

Ligação a outros países é essencial para tratar as doenças raras - Diana Mendes»pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

Diário de Notícias.

Malattie rare, strategia Ue - by Lucilla Vazza»pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

Sanità. Le indicazioni della Commissione europea sulle azioni comuni per diagnosi e cura.

6000 maladies rares et 30 millions de malades, brève de la Libre Belgique »pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

La Libre Belgique. The article anounces the conference and introduces a web portal dedicated to rare diseases: Orphanet.

Европейски действия за подобряване живота на пациентите с редки болести, by Дарина СТОЕВА»pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

Meno ignoranza sulle malattie rare, by Margherita Bac»pdf
Conference on Rare Diseases - European actions to improve the life of patients living with rare diseases (25-26/10/2011)

Corriere della sera. La Commissione Europea presenterà i risultati delle azioni finora promosse a favore della lotta contro le malattie rare...

Fixing hearts, by Olga Woźniak»pdf
EU Health Prize for Journalists, National winner 2010 for Poland

Each year in Poland, 2000 young hearts need extensive repairs before they even start beating. Most repairs are successful. Is there anything that paediatric cardiac surgeons cannot do?

Extraordinary disorders, extreme measures, by Ainhoa Iriberri»pdf
EU Health Prize for Journalists, National winner 2010 for Spain

A film tells the story of a father who set up a biotechnology company so that a researcher could develop a drug for his children’s illness // Many parents in the same situation take similar action

A rare disease has made Natalja’s life hell. “It's very painful. Sometimes I can only move by crawling on my knees." By Silja Paavle »pdf
EU Health Prize for Journalists, National winner 2010 for Estonia

An Estonian woman is suffering from a disease that has been puzzling doctors all over the world

Medicine's orphans, by Katharina Kluin»pdf
EU Health Prize for Journalists, National winner 2009 for Germany

They're only a minority. And yet there are a lot of them: over 4 million Germans suffer from a rare disease. They often have to wait years the right diagnosis and there are hardly any treatments. Often, their only source of comfort and hope is self-help groups.

No support and no social benefits, by Victor Vella»pdf
EU Health Prize for Journalists, National winner 2009 for Malta

The article raises awareness amongst the public on ME (Myalgic Encephalopathy) and clarifies some misconceptions. It is a human, personal interest story in which the reader can identify with the people in the article.

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Última atualização:09/06/2014 | Topo