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The Joint Action on Patient Registries:
helping Member States to create tools for the setting up of registries for cross-border use

28 June 2012

The representatives of 11 EU Member States (MS) and the European Commission gathered on 12-13 June 2012 in Brussels to launch the Joint Action (JA) on Patient Registries.
The aim of this JA is to support MS in developing comparable and coherent patient registries in important fields (e.g. chronic diseases, rare diseases, medical technology).
The aim is to rationalize and harmonize the development and governance of patient registries, thus enabling analyses of secondary data for public health and research purposes.
The meeting was prepared by the first Executive Committee and was chaired by A. Ryz Director at DG Sanco and Ms Ada Hocevar Grom, deputy director of the National Institute for Public Health of Slovenia.