Tenders: Rare diseases - New born screening
Please note that the deadline for submission of tenders in the following calls passed.
Evaluation of population newborn screening practices for rare disorders in Member States of the European Union
CALL FOR TENDER
There is a need for identifying what are the current practices in the Member States, for what reasons the diseases to be screened are selected, how the decisions to expand the list of diseases are taken, what are the technologies used and what organisation is in place to ensure comprehensive screening of all newborns and to evaluate the performance of the programmes. That evaluation of the current situation is the aim of this tender.
The expected outcomes of the evaluation are:
- An extensive report on the practices of NBS for rare disorders implemented in all the Member States including number of centres, estimation of the number of infants screened and the number of disorders included in the NBS as well as reasons for the selection of these disorders.
- Identification of types of medical management and follow-up implemented in the Member States.
- Establishment of a network of experts analysing the information and formulating a final opinion containing recommendations on best practices and recommending a core panel of NBS conditions that could be included in all MS practices;
- Developing a decision-making matrix that could be used by Member States programs to systematically expand (or contract) screening mandates.
Documents
- Contract notice

- Invitation to tender



- Technicals specifications



- Annex I - Tender submission form



- Annex II - Financial identification form



- Annex III – Form for natural persons only



- Annex IV - Certification Exclusion Criteria NEW




- Annex V - Financial offer



- Annex VI - Contract



- Annex VII - Financial capacity overview

- Annex VIII - Checklist




- Questions and Answers


For more information please contact: EAHC-HP-TENDER@ec.europa.eu
NB: The official and original documents on which your offer is to be based are those provided in English. Translations of the specifications, draft contract and other tender documents into French and German are made available for information. In case of doubt, only the English version is authentic.