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Public Health (11-02-2014)

First meeting of the Expert Group on Rare Diseases: 11-12 February 2014

The recently appointed Expert Group on Rare Diseases meet in Luxembourg today and tomorrow to discuss possible future activities of the group. During several plenary sessions, topics such as EU programmes that could support rare diseases activities, progress reports of the Commission Communication and Council Recommendation on Rare Diseases will be discussed

The members and representatives of the expert group meeting today were selected following a call for expression of interest under the Commission Decision, adopted on 30 July 2013, which sets up a Commission expert group on rare diseases. The Commission may consult the expert group on any matters relating to rare diseases, for example:

  • Help with drawing up legal instruments and policy documents, including guidelines and recommendations
  • Advice on the implementation of EU actions and suggestions for improvement
  • Advice on the monitoring, evaluation and dissemination of results of measures taken both at EU and national level
  • Assistance with fostering exchange of experiences and practices between EU countries and the various parties involved.

For more information on EU policy on rare diseases: